My journey to a debt free life

Onebrokelady

badmemory said:

I really should not google anything medical!!!!!!!!

Dr Google is the worst. I only ever do it when I have a firm diagnosis and then I always regret it . I will also google if we get a patient in with something I haven't heard of before 😊

Drawingaline

Just catching up, really hope the steroids work.

Become how your mum was treated, at least you know what to look out for and that you really need to be properly managed and will ensure this happens. It certainly sounds like they are taking it super seriously. 

Cherryfudge

It must be very alarming to have that diagnosis, but at least you saw immediate results from the steroids, and also have your Mum's example to learn from - I hope you get those bone density meds and whatever else you might need to bolster your system! DH was on steroids for an auto immune condition for years: he had to switch meds in the end (he was in his twenties so I suppose longer term would have had an accumulation of side effects) but in the meantime the steroids did what they needed to and also got rid of his eczema as a side effect.

How are you feeling today?

Sun_Addict

Steroids are great in the short term. I had infected eczema a few years ago and had to take them for a couple of weeks. They certainly sorted it out. Mr SA also had them to reduce swelling in his brain in the first stages of his tumour. 

I’m glad something is being done and you’re finally on the radar of the medics. Fingers crossed for some progress at long last🤞

enthusiasticsaver

I hope the steroids help you with the pain and don't have too many side effects.  My mum was diagnose with PMR many years ago but then rediagnosed a few years later with Rheumatoid arthritis.  She takes Methotrexate which has helped a lot. 

Onebrokelady

Drawingaline said:

Just catching up, really hope the steroids work.

Become how your mum was treated, at least you know what to look out for and that you really need to be properly managed and will ensure this happens. It certainly sounds like they are taking it super seriously. 

They are definitely taking it seriously and also I do have to take into account that mum was diagnosed 30 years ago so treatment is probably more fine tuned now 🤞

Onebrokelady

Cherryfudge said:

It must be very alarming to have that diagnosis, but at least you saw immediate results from the steroids, and also have your Mum's example to learn from - I hope you get those bone density meds and whatever else you might need to bolster your system! DH was on steroids for an auto immune condition for years: he had to switch meds in the end (he was in his twenties so I suppose longer term would have had an accumulation of side effects) but in the meantime the steroids did what they needed to and also got rid of his eczema as a side effect.

How are you feeling today?

It was quite alarming but at least it's treatable and no one has fobbed me off this time . I will be getting the other meds on Wednesday . Apart from the fact that I have managed to catch a horrible cold I feel great ,no pain anywhere and I haven't taken any heavy duty painkillers since Wednesday night which is a miracle in itself 😊

Onebrokelady

Sun_Addict said:

Steroids are great in the short term. I had infected eczema a few years ago and had to take them for a couple of weeks. They certainly sorted it out. Mr SA also had them to reduce swelling in his brain in the first stages of his tumour. 

I’m glad something is being done and you’re finally on the radar of the medics. Fingers crossed for some progress at long last🤞

I did take them once before years ago when I had a very severe allergic reaction to some chestnuts one Christmas but that was only for about 4 days,this will be at least two years so hopefully I will get on with them 🤞

Onebrokelady

enthusiasticsaver said:

I hope the steroids help you with the pain and don't have too many side effects.  My mum was diagnose with PMR many years ago but then rediagnosed a few years later with Rheumatoid arthritis.  She takes Methotrexate which has helped a lot. 

They seem to working so far,I've not felt this good for years 😊. They did test me for Rheumatoid arthritis and the tests were negative. My symptoms are similar to RA but not quite right so I think they are now on the right track. My friend has RA and takes Methotrexate and she does well on them. They can be used for PMR if you so get on with steroids but then they come with their own side effects too 

Onebrokelady

Just updating to say my joint pain has completely gone today 🎉🎉🎉 if I didn't currently have the most horrible cold I would say I feel great, I do feel great in my joints with no pain but I feel awful with cold symptoms which is just typical 🙄I'm hoping this will be gone by Sunday because I'm supposed to be going on the Polar Express with DD1 and my Dgs, I have just been informed that we have to wear Pjs which I'm not sure about, I hope she isn't winding me up 😀

I was supposed to be going to a festive afternoon tea today with the girls from work but couldn't go so I'm annoyed about that. My friend dropped my Christmas card and a large bar of chocolate through my letter box though so that cheered me up 😍

Yesterday I was called by the eye until at work to say they wanted to see me that afternoon to  check the arteries in my head and look at my eyes to see if there was any inflammation, I told them I had a cough and other symptoms but they said it was an emergency so I was ok to go in anyway so long as I wore a mask . I had to phoned a taxi so I could get there in time and I hope the poor driver doesn't catch my cold. I did wear a mask and gelled my hands before I got in the car and when I got out, I also paid by card so I didn't have to handle any money and fortunately I didn't cough once while I was in the car so hopefully it will be ok. The good news is there is no inflammation in my optic nerve or any of the veins they could see,she said the steroids might already have helped but in unlikely I have the GCA which is a relief 🎉🎉🎉 the headache hasn't come back even though I've got a cold which is good. I was there for 5 hours so it was a long afternoon and I forgot to take a book or anything to do which was annoying but I'm glad it's all been checked out.

I just need to make sure I take the steroids earlier in the day because I'm not sleeping, she warned me this would happen so I'm going to set my alarm to make sure I get up early. I have to take them after food so need to have breakfast first. I was late this morning because I felt so ill didn't wake up until late and had to take them late which is not ideal. 

Im obviously not doing anything today apart from sitting under a blanket and feeling sorry for myself, hopefully I will be recovered by Sunday 🤞🤞🤞