“Rock bottom became the solid foundation on which I rebuilt my life.”

WannabeFree

Yes tea mine definitely wont be back until the new school year. So a totally new school for DS. With big changes going from primary to junior school. 

Milann it has made me consider home schooling youngest full time to be honest. The other two definitely not. They do definitely need the interaction of other children and adults. Its amazing the difference it's made to youngest though - and the sleep they've all been getting. Even though its getting a bit boring for the older two they have coped far better than I expected so far. It's a long time to be isolated completely. 

We are still just getting through each day. Trying the best I can to just keep everything on an okay level. 

Hope you're all okay I miss keeping up with diaries. 

WannabeFree

Afternoon. Been a stressful night with no sleep. Youngest is out of sorts. Numbers are reflecting this and it's being stuck with how to move forward. We can go in and get checked. But covid risk. Stay home and watch and wait. I dont really have taxi fares and things and then the risk info us going to a covid hot point. 

For now just waiting and an added antibiotic. Team seem okay with that I've passed numbers over and things  feels like quite a heavy weight. Its definitely not covid. We have no way of picking it up. Its definitely lack of physio and things. However respiratory symptoms means you're sent to a hot area until a negative test. Really hoping it doesn't get worse and antibiotics work. 

Going to have to try and get her working harder with physio and find things to do indoors that are more active. Her AFOs are too small so standing and things means sore legs. Need to find a balance though thats better than now. 

Hope you're all keeping well. 

Happy VE day x

[Deleted User]

Oh no what a worry! I hope she feels better soon and you won't have to go in!

jwil

Fingers crossed she improves x

beanielou

Sorry to read this 

Sun_Addict

Hope you can get her sorted without having to go to hospital xx

Chrystal

Thinking of you and hoping littlest improves quickly (((hugs)))

WannabeFree

It was another rough night. More for me than her though. Hoping the antibiotics start showing some improvement today. Going to have to come up with ways to do better physio at home and invest in items to help with this next month to see us through this period at home. Its sure exhausting. 

Older two have been entertaining themselves more. Playing board games and things. 

Thank you for the replies x

Cherryfudge

I don't know if you have enough internet for your children to do the Joe Wicks workouts on YouTube? It's not physio but it's fun and good for all-round health. What sort of physio equipment do you need? Perhaps someone has some they could donate?

milann

Sorry to hear things aren’t too good. Hope the meds do the trick 👍