The Nice People Thread, No.16: A Universe of Niceness.

Jackmydad

Pyxis wrote: »

Can you not get flyscreens here? I'm sure I've seen them for sale in catalogues like Cooper's of Stortford.


Dear God!
So you've struggled for years on your own, probably to the detriment of your health, and they say you have attitude?



I just don't understand it.
Act all helpless and needy, and you get help. Try your hardest to help yourself, and get a bum's rush. :mad:

I've seen similar things happen over the years.
People who make any effort to help themselves are not seen as "needy"
Those who know that, make sure they're seen as being "needy"
Sad but true.

GDB2222

SingleSue wrote: »

How about this for annoying. I am apparently borderline for a powered wheelchair from the wheelchair service, not because my level of disability is not bad enough but because I am stubborn and have a "will attempt to do stuff regardless of the cost to me" attitude. So, if I didn't push myself, was a drama llama and didn't push through, I would have comfortably met the criteria.

A powered chair would change my life. It would give me some independence back, it would help with the isolation whilst the boys are away from home at uni but more than that, it would also stop the damage still being done by my having to attempt to do things just to do the basics of living.

I did ask her what did she expect me to do when I am on my own, if I didn't attempt to do stuff, to fight against the pain and the dislocations, I would go hungry, thirsty and would be laying in my own toilet functions if I didn't!

She did say she was going to ask for the adaptations to be enlarged to include widening doorways inside the home and I am to give her a call and go through the referral process again once they are done but that my biggest obstacle would still be my attitude.

How frustrating. I think that there's a theory that it's better for people to make efforts. That's not a judgemental puritan sort of attitude. The idea is that pushing yourself around keeps you stronger and fitter, whilst having a powered chair means that your muscles get weaker etc.

The trouble is that that may generally be true, but perhaps not in EDS cases, as you keep damaging connective tissue, which may become weaker rather than stronger as a result.

vivatifosi

Pyxis wrote: »

Can you not get flyscreens here? I'm sure I've seen them for sale in catalogues like Cooper's of Stortford.

You can get them, but they tend to be flimsy hanging ones. Mine are made from very stiff fibreglass. There is now a company in the UK now that does really good flyscreens (The Fly screen Queen), but now I've started getting my stuff in America and doing it "One Piece at a Time" I want them all to match. Though it does make me chuckle and want to break out in song to the tune of Johnny Cash.

SingleSue

Storm!! Absolutely chucking it down and it is right over us.

antrobus

GDB2222 wrote: »

How frustrating. I think that there's a theory that it's better for people to make efforts. That's not a judgemental puritan sort of attitude. The idea is that pushing yourself around keeps you stronger and fitter, whilst having a powered chair means that your muscles get weaker etc.

....

That's what physios think. They don't like powered wheelchairs. They don't like recliners. They don't like anything that makes things easy. They want you to get up off your fat arriss and work those muscles. And pain is a good sign that you're doing the right thing.

vivatifosi

For Herts NPs who know the Hemel Hempstead area... plus anyone else who wants to see an amazing photo...


https://m.facebook.com/groups/705244626157981?view=permalink&id=2283599774989117

PasturesNew

Where's that s0ddin' moon? Cloudy here I think...

I can see small clouds... but I think there might be blanket coverage much much higher up.... that just looks like open sky, but isn't.

Pyxis

Zilch moon, and zilch ISS. :(


Cloud was far too thick. Not even a glimmer.



And cool and breezy..... so much so that I had a strange thing on called a coat!


Really annoying about that moon, though.

SingleSue

antrobus wrote: »

That's what physios think. They don't like powered wheelchairs. They don't like recliners. They don't like anything that makes things easy. They want you to get up off your fat arriss and work those muscles. And pain is a good sign that you're doing the right thing.

Except when you have EDS, pain is the signal that you have taken it too far and have caused damage and is a very bad thing physio wise.

It's why normal physios will not touch people like me, too much potential to be sued when (and it is when for most of them), they push it too far/treat us like everyone else and irreparable damage is caused.

SingleSue

Pyxis wrote: »

Can you not get flyscreens here? I'm sure I've seen them for sale in catalogues like Cooper's of Stortford.


Dear God!
So you've struggled for years on your own, probably to the detriment of your health, and they say you have attitude?



I just don't understand it.
Act all helpless and needy, and you get help. Try your hardest to help yourself, and get a bum's rush. :mad:

More that the can do attitude counts against me, that I will still try to push things and have quite given in yet. I'll meet the criteria when I have a I give up attitude and won't still try to walk around and do things.

I don't understand it either but them's the rules...