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I HATE the name of this forum - Disability and Dosh !

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  • billywilly
    billywilly Posts: 468 Forumite
    SingleSue wrote: »
    How do you know that they didn't have to scrimp and save to get those items or got them second hand cheaper? Or had to take out finance they could ill afford but felt forced into having just to have a semblance of a normal life.

    I couldn't really afford my wheelchair but I also couldn't afford (for my own health, sanity and family life) to wait until I could be assessed and get one on the NHS....I went without other things and did the bill shuffle to get a second hand one which then allowed us all to have more of a family life.

    People do go without to provide the extra things for their loved ones, especially if they are disabled and it would makes things easier, just because they happen to have these things now, no-one really knows what they have had to go without to get them.

    Let's see now. I've had to buy a powerchair, and a Wheelchair Accessible Vehicle, all from my own money. And these things aren't cheap

    Maybe that is the answer to your question?
  • SingleSue
    SingleSue Posts: 11,718 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    edited 7 June 2015 at 12:56AM
    No it doesn't...they may have had to buy it from their own money but it doesn't state what they had to do to do so.

    As I said, finance could well have been taken, it could have been a second hand WAV (they are available on Ebay), they could have taken out loans, borrowed money from family, sold another family car etc.

    My wheelchair should have been £500, it cost me £85 second hand and even then, it was a struggle to afford it....but I still have a RRP £500 wheelchair.

    People will move heaven and earth to get things for their loved ones if they are needed, most of the time, it is a case of needs must. They have to do it otherwise their family life, the health of the disabled person etc, would be horrendously impacted, you find a way of doing it somehow.

    It certainly does not mean that they are made of money and can do without the financial assistance a DLA or PIP award gives the disabled person.
    We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.
  • System
    System Posts: 178,364 Community Admin
    10,000 Posts Photogenic Name Dropper
    merlin68 wrote: »
    You said in a previous thread that you claimed esa from 2009-2014 and dla for 20 years.
    Its Andy

    We all know what he says is complete bull and should just be ignored ;)
    This is a system account and does not represent a real person. To contact the Forum Team email forumteam@moneysavingexpert.com
  • densol_2
    densol_2 Posts: 1,189 Forumite
    billywilly wrote: »
    ESA from when I was 60 in 2009, DLA from 1995 and IIDB from 1995
    So?

    And you was working all that time but YOU still claimed - yet you spend your life on here trying to put other people off claiming! Shame on you!

    You have also bragged about keeping ANY money or assets out of your name and into your wifes name so as to keep the claiming as high as you can - this trust is just another example !
    Stuck on the carousel in Disneyland's Fantasyland :D

    I live under a bridge in England
    Been a member for ten years.
    Retired in 2015 ( ill health ) Actuary for legal services.
  • cheesemouse_2
    cheesemouse_2 Posts: 19 Forumite
    edited 7 June 2015 at 11:21AM
    billywilly wrote: »
    Your financial situation sounds exactly like the one that I have posted about in the past.
    If you had the available funds from your own private resources to buy all of that equipment, then I would question as to why you should be entitled to PIP/DLA.
    Why should someone in your financial position be paid the same level of financial support as someone with no savings and living on ESA or IS?
    Your case actually makes the argument of means testing PIP/DLA stronger.

    Hmmm... interesting that you automatically assume that (a) I can comfortably afford the things I've mentioned, and (b) that I'm claiming PIP/DLA.

    For your information I don't claim any benefits. And the powerchair I'm talking about is a secondhand one, because there was no way my husband and I could afford a brand new one. And the wheelchair accessible vehicle I've had to buy is eleven years old because again that's all we could afford, and if you've seen my thread on the Motoring forum you'll know that we are facing a bill of several hundred pounds to fix a fault on it. We shall have to find that money somewhere. I need that car to get me to my work.

    Please do not assume anything about my financial situation. I replied on this thread because I felt it important to mention that, contrary to what you seem to think, disability doesn't cost anything. It most certainly does, perhaps not in all cases but certainly in some, including mine. These extra costs have been difficult for us. Just because we've found the money to pay them does not suggest it was easy to do so.

    In order to buy these things, we've had to scrimp on other areas of our life. We certainly do not have loads of savings to help. I shouldn't have to explain my financial situation to you or anyone else on this forum, yet I know feel obliged to do so simply because of your ill-informed reply to me.

    SingleSue - thanks for understanding where I'm coming from. I really appreciate it.
  • lisyloo
    lisyloo Posts: 30,094 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    My MIL & FIL both get higher rate attendance allowance (about £160 total per week).
    They pay £30 for a cleaner weekly, £20 for someone to fetch the shopping.
    £15 every 6 weeks to get toenails cut.

    So whilst both are housebound, they do not spend the total that they get.

    Some do, some don't.
    It seems to me it's a blunt instrument rather than being needs based.

    There are some people like my in-laws who are fairly comfortable because they get more than they need.
    There are some who don't get enough.

    It clearly not a good thing to be judgmental when you don't know the full facts.
  • billywilly
    billywilly Posts: 468 Forumite
    I felt it important to mention that, contrary to what you seem to think, disability doesn't cost anything. It most certainly does, perhaps not in all cases but certainly in some.

    Yes it does for some but not everyone.

    So why are people claiming these benefits when they don't have those extra costs?
  • cbrown372
    cbrown372 Posts: 1,513 Forumite
    Part of the Furniture 1,000 Posts Name Dropper
    billywilly wrote: »
    Yes it does for some but not everyone.

    So why are people claiming these benefits when they don't have those extra costs?

    So why do you claim benefits?
    Its not that we have more patience as we grow older, its just that we're too tired to care about all the pointless drama ;)
  • billywilly
    billywilly Posts: 468 Forumite
    edited 7 June 2015 at 11:48AM
    lisyloo wrote: »
    My MIL & FIL both get higher rate attendance allowance (about £160 total per week).
    They pay £30 for a cleaner weekly, £20 for someone to fetch the shopping.
    £15 every 6 weeks to get toenails cut.

    So whilst both are housebound, they do not spend the total that they get.

    Some do, some don't.
    It seems to me it's a blunt instrument rather than being needs based.

    There are some people like my in-laws who are fairly comfortable because they get more than they need.
    There are some who don't get enough.

    It clearly not a good thing to be judgmental when you don't know the full facts.

    You have laid out the facts - your family claim £160 a week, yet only spend £55 a week of it on the 'extra costs associated with the disability

    Where does the other £105 go to and why are they both claiming, when it is clear that only one needs to claim to cover those costs?

    It seems to me that entitlement counts for more than need.

    Having harped on this subject for a while, I have now decided to claim Attendance Allowance in my own right having lost my DLA due to the PIP transfer. I don't need the money (which would amount to an extra £200 a week) but as it seems that everybody is 'at it' , I might as well do the same. Thanks everyone for helping to make my mind up.
  • cbrown372
    cbrown372 Posts: 1,513 Forumite
    Part of the Furniture 1,000 Posts Name Dropper
    billywilly wrote: »
    You have laid out the facts - your family claim £160 a week, yet only spend £55 a week of it on the 'extra costs associated with the disability

    Where does the other £105 go to and why are they both claiming, when it is clear that only one needs to claim to cover those costs?

    And you laid out the facts that you claimed £600+ a week as disabled, allegedly, pensioners.
    Its not that we have more patience as we grow older, its just that we're too tired to care about all the pointless drama ;)
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