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Nice People 12: Nice in Nice
Comments
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PasturesNew wrote: »That's probably something that has another name..... a thing that we don't speak of directly until after it's over.
I can say it now, even if I don't like it. It's a bit like my voldemort. There was a time that even trying to say it would make me feel ill though. Sometimes it's the 't' word, out 'that thing'.0 -
Cute as a button
Liking the look of the light that's photobombing too
That light was a gift from another MSEer. It has lots of little lights in it but I need a plug adapter to put them in and a cable to descretely run along a beam to connect these two points. Its not designed to be an actual lamp shade, but its working. Its bedecked with hops.
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I don't feel it even qualifies as an oddity.
Likewise, those of us who know each other's real names shouldn't use them on here, even if the real name is very similar to the person's screen name.
I agree re the non-oddity. Likewise I expect people to not answer any questions/ comments that they would prefer not to.
Who would be stupid enough to use something close to their real name as their online alias?
I guess maybe someone who only intended to lurk once the board became hidden?0 -
Lydia- thanks for the thought, and for asking. Not going so well (still). Not feeling great about it all, and the next few weeks are going to be busy busy anyway. Trying not to give up
Sending hugs.
How can we best support you?
PS lir - DD loves Kiwi's selfie. Do you know anyone who's bereaved? Point them to https://www.AtaLoss.org which does for bereavement support what MSE does for financial services, providing links to support organisations relevant to the circumstances of the loss & the local area. (Link permitted by forum team)
Tyre performance in the wet deteriorates rapidly below about 3mm tread - change yours when they get dangerous, not just when they are nearly illegal (1.6mm).
Oh, and wear your seatbelt. My kids are only alive because they were wearing theirs when somebody else was driving in wet weather with worn tyres.0 -
Seriously tempted to buy a sloe tree after reading this thread...
Nikki, hang in there
I second what Lydia says, any way we can support you. Apart from the positive vibes and dodgy hugs, they go without saying! “I could see that, if not actually disgruntled, he was far from being gruntled.” - P.G. Wodehouse0 -
Happy New Year to all Jewish NPs/their spouses!
From the other side of the world, something I'm very much angry about.:mad:
http://action.sumofus.org/a/australia-breast-cancer-patent-laws/?sub=fb
It's easy to take a view on this that corporations shouldn't own genes but we should think very carefully before ripping up the system of pharmaceutical development that has delivered huge increases in quality and quality of life.
It's the essence of Smith's invisible hand: by seeking to profit companies can do more than by seeking to help.0 -
Youngest has finally worked out he has a TA in the classroom just for him, they are trying to allow him to be independent but have someone there for when he appears to be struggling...worked well so far as he has not felt 'special' (he hates feeling or looking to be 'special') whilst his needs are also being looked after.
Tiredness is still a big issue for him, he is horrendously fatigued and is having difficulty keeping going and keeping awake as the week goes on, so his sleeping pattern is completely up the swanney!
But he is still loving it....phew!We made it! All three boys have graduated, it's been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk - now having fun and games as a wheelchair user.0 -
It's easy to take a view on this that corporations shouldn't own genes but we should think very carefully before ripping up the system of pharmaceutical development that has delivered huge increases in quality and quality of life.
It's the essence of Smith's invisible hand: by seeking to profit companies can do more than by seeking to help.
I'm cynical. Even the Americans had the sense to refuse patenting of human genes.
If you're a fan of Ben Goldacre, you might find this informative.
There is no honour to be had in not knowing a thing that can be known - Danny Baker0 -
It's easy to take a view on this that corporations shouldn't own genes but we should think very carefully before ripping up the system of pharmaceutical development that has delivered huge increases in quality and quality of life.
It's the essence of Smith's invisible hand: by seeking to profit companies can do more than by seeking to help.
I'm not sure I understand the issues concerned, at all. Drugs cost an enormous amount to test. Either the state takes on that cost, or we have to pay drug companies an enormous amount for their products. Most people accept that, so why are genes different?
Are patents being granted on genes that simply existed all along? Or are the patents on genes that have been manipulated in some non-obvious way?No reliance should be placed on the above! Absolutely none, do you hear?0 -
I'm not sure I understand the issues concerned, at all. Drugs cost an enormous amount to test. Either the state takes on that cost, or we have to pay drug companies an enormous amount for their products. Most people accept that, so why are genes different?
Are patents being granted on genes that simply existed all along? Or are the patents on genes that have been manipulated in some non-obvious way?
Genes are body parts/components (albeit microscopic ones) and by common agreement cannot be owned any more than complete people.
They can be used as a basis for therapies and as part of the global human genome project it was agreed by all researchers that genes discovered could not be used as the basis for exclusive commercial products that would preclude others from developing cheaper alternative therapies so as to maximise profits for particular companies.There is no honour to be had in not knowing a thing that can be known - Danny Baker0
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