Just needed to be heard for a little while

Errata

codemonkey wrote: »

Trigeminal neuralgia. Otherwise known as "Holy 5h!t, why does my face want to kill me?". For me, it feels like my worst migraine, worst earache, and worst toothache all at the same time, combined with electric shocks down my face and Mike Tyson punching me in the face.

That's the best desription of it I've ever read. Nerve pain is more painful than giving birth, wearing spanx for a week and joggers nipple combined - by a factor of several magnitudes.

lostinrates

codemonkey wrote: »

heh. Don't I feel like a massive wimp now. :rotfl:

I haven't even seen a neurologist. I got diagnosed in A&E, and then put straight onto drugs by the GP. I asked for a referral as I'm not confident with the way it's been handled and got told I can't have one until I've tried all the drugs. However, in the grand scheme of things, it's not going to kill me, and people are much worse off.

At least my nipples behave. :rotfl:

Its called the suicide pain for a reason, You shouldn't feel wimpish for a second. Its horrid. Its just contextual.....for me it doesn't get in my way much.

Try all the drugs, get the referral. There are even surgical options for people with persistent stright up tn even, but I don't know anything about them I'm afraid.

People are much worse up than even ery one els,e but we are still entitled to feel horrid about what feels like a knife stabbing the side of our face. Pretty grim world of that doesn't deserve sympathy IMO.

It gets mine, very much.


I think some kind of thing people wear under motorcycle helmets helps some people, but I don't know what that would be.

I never get to hot under my fur hat I'm afraid. Though, one night this week I'll admit I did the last whoosh with the dogs in just my hat and my boots

lostinrates

Errata wrote: »

That's the best desription of it I've ever read. Nerve pain is more painful than giving birth, wearing spanx for a week and joggers nipple combined - by a factor of several magnitudes.

Tn sufferer errata? Or other nerve pain?

I went to a big hospital in London this year to talk to a pain specialist and I was trying to description the different pains to him, and I was saying

' if you have the knives like tn, then the darning needles, then long sharpened knitting needles pushed in slowly, then pins and needles, shot by bows and arrows ...' He looked at me like the sharp implements had blown out my brains.


Should add, I have found 'tens ' useful with the facial pain this year, having never found it useful before. Won't work for lots of people because of the pad pressure, but I am fine with that...slight masochistic tendency, ( like the earrings) and used on a 'whispering' technique, its good for me. I also find holding our electric fence helps, but ......probably wouldn't recommend it to others....but did make me more open minded to try tens which I had dismissed a few years ago as ' useless'.

Waves_and_Smiles

TN was something they questioned at A&E when they treated me for the headaches. They picked on the fact that I get frequent electric shocks down my face that make me screw it up against the pain/sensation with accompanying terrible head pain. I presume the neurologists appointment will cover that. I had always associated it with psychosis but the doctor didn't believe it was that at all.

whitewing

I was feeling a tiny bit sorry for myself earlier but now I don't feel so bad at all compared to electric shocks, knitting needles and nipples. I have mild aches, and I can feel tiny worries wanting to grow those long legs and go running amok.

I shall think instead of DD in the car earlier this week, roaring with laughter. She found it enormously funny that while we were driving along at night, the moon was following us.

Pyxis

Had to post you this - it made me really laugh! :-

whitewing

DD likes watching The Little Princess on channel 5 at 8am. I didn't like it to start with, partly because her teeth look too round to me, but I really enjoy it now. There is a cat in there that makes me laugh, but all the characters are uniquely charming.

haybel19

whitewing wrote: »

I was feeling a tiny bit sorry for myself earlier but now I don't feel so bad at all compared to electric shocks, knitting needles and nipples. I have mild aches, and I can feel tiny worries wanting to grow those long legs and go running amok.

I shall think instead of DD in the car earlier this week, roaring with laughter. She found it enormously funny that while we were driving along at night, the moon was following us.

Oh bless her heart. How sweet.

Big hugs Whitewing- my worries are tending to grow legs as well at the moment.

Huge hugs to everyone else too.

whitewing

I have woken up today feeling much more cheerful, thanks haybel. So cheerful, in fact, that I have completely forgotten all the pearls of wisdom that I intended to impart on this thread!

Iiiiiiiiiiiiiiiittttttttttttttttttt'sssss Sunday and I think we are going to have a duvet day. (Not DH, he has already left for work, hence the reason I am awake already when I could be asleep).

And Happy Birthday (again), MU!

lostinrates

Happy birthday MU.



Any way these worrying with legs can be cut of at the knees?