Just needed to be heard for a little while

lostinrates

codemonkey wrote: »

Whenever the weather changes or when it's windy outside which in Scotland is always. Yesterday I had my scarf wrapped round my head to protect me from the wind. Normally I wouldn't have the confidence to do that, but that's another thing this thread has helped with.

Will take some additional vitamin C and will order some Chinese takeaway because chilli, garlic and ginger are very beneficial

Messed Up you will need to teach me to accessorise because I try and something goes wrong somewhere. I love your style.

Yes, wind and pressure change for me too

My dog walking hat has ear flaps, faux fur. This I accessorise with fleece pjs and a hideous purple anorak. Ask me for style advice! I used to be rather stylish.

elsien

It's Sunday tomorrow, a day for rest, recuperation, and lying in bed listening to the Archers if you're a sad person like me.
(Or recovering from wild parties, if you're a slightly more exciting person like MU). So recuperate away anyone who needs to.

Today's cheery thought - I hit a target I didn't expect to on the fitness regime. Which was marred very slightly by my online tracker informing me that I had eaten twice as many calories with my celebratory mars bar than I'd used in my exertions. :rotfl:

codemonkey

elsien wrote: »

It's Sunday tomorrow, a day for rest, recuperation, and lying in bed listening to the Archers if you're a sad person like me.
(Or recovering from wild parties, if you're a slightly more exciting person like MU). So recuperate away anyone who needs to.

Today's cheery thought - I hit a target I didn't expect to on the fitness regime. Which was marred very slightly by my online tracker informing me that I had eaten twice as many calories with my celebratory mars bar than I'd used in my exertions. :rotfl:

Yes, but the exercise will have increased your metabolism which means your body will burn off the mars bar much faster.

Tomorrow is taking my ageing parents shopping day and then a trip to the inlaws for dinner.

Lir, your hat sounds fabulous. I love hats with ear flaps but I get too hot in them.

elsien

I was hoping that exercise would help my my circulation. I have Reynauds syndrome and get horrendous chilblains every year. Not working so far though - I'm jogging away and my body is sweating and my hands are still freezing. Circulation seems to stop at the wrists and ankles.

Codemonkey, if you need something to protect your ears without overheating, have you seen the walking fleece bands that go over the ears? I find them invaluable when it's windy.

seven-day-weekend

What's TN? .

codemonkey

elsien wrote: »

I was hoping that exercise would help my my circulation. I have Reynauds syndrome and get horrendous chilblains every year. Not working so far though - I'm jogging away and my body is sweating and my hands are still freezing. Circulation seems to stop at the wrists and ankles.

Codemonkey, if you need something to protect your ears without overheating, have you seen the walking fleece bands that go over the ears? I find them invaluable when it's windy.

Should give you some of my meds. One of the side effects seems to be roasting hot hands and feet. I have a few friends with Reynauds and they really suffer. Poor you.

It's the side of my face that causes the problem rather than my actual ears. But I might give them a go anyway. I was seriously considering a niqab.

codemonkey

seven-day-weekend wrote: »

What's TN? .

Trigeminal neuralgia. Otherwise known as "Holy 5h!t, why does my face want to kill me?". For me, it feels like my worst migraine, worst earache, and worst toothache all at the same time, combined with electric shocks down my face and Mike Tyson punching me in the face.

lostinrates

Edited because I don't like talking in too much detail about health

codemonkey

lostinrates wrote: »

Missed this bit.

I don't mean to sound a bit 'tough' but I recognise typing it sounds so, and I cannot think of another way to type it.

Tn is just a small part of what I have, so its 'not that big a deal' any more. I get similar pains to tn in random places around my body and other pain too.

One neurologists on meeting me for the first time said, well, you don't have tn......because I was wearing earrings. No, I do not have constant tn. And earrings are removable through out the day. My tn is bilateral , but not all the time, and that's pretty unusual too. It is usually worse on the left though, and was exclusively on the left for at least a year or so.

Often when it 'fires' much to some people's horror I push back at it. Its actually one of the pains I've found easiest to ' make friends with' because at least more pain specialists understand it. Because my neurological situation is very rare and has made a few turns in unexpected directions the tn is a bit ....familiar. Its 'harmless' to me at least.


There are other odd things I have. I have developed reynauds syndrome. In my nipples. Yes. Not in my fingers and toes like normal people, or maybe , but I don't notice because of other sensation issues, I did notice my fingers went blue twice and took pictures of them. But my nipples.......all the time.

Apparently this is usually pretty much reserved for breat feeding mothers. It started in that cold winter about five years ago, when people got snowed on all over the place, and I just thought it was like smelling the snow.....I got snow antenna nipples these days......until my nipples started saying it was going to snow in July!

heh. Don't I feel like a massive wimp now. :rotfl:

I haven't even seen a neurologist. I got diagnosed in A&E, and then put straight onto drugs by the GP. I asked for a referral as I'm not confident with the way it's been handled and got told I can't have one until I've tried all the drugs. However, in the grand scheme of things, it's not going to kill me, and people are much worse off.

At least my nipples behave. :rotfl:

seven-day-weekend

codemonkey wrote: »

Trigeminal neuralgia. Otherwise known as "Holy 5h!t, why does my face want to kill me?". For me, it feels like my worst migraine, worst earache, and worst toothache all at the same time, combined with electric shocks down my face and Mike Tyson punching me in the face.

Oh! My husband had that recently, he had two wisdom teeth out under general anaesthetic and had trigeminal neuralgia constantly for several weeks afterwards, he said it was unbearable. Luckily it has gone now.

Oh poor you to suffer with that.:( How dreadful.