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Nice People Thread Number 11 - A Treasury of Nice People
Comments
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neverdespairgirl wrote: »My Dad is sure that, had he not gone to a grammar school, he'd had left at 15. It hadn't ever really occurred to anyone in his family before that staying on later was an option. It was, however, suggested as a serious option to his parents and to him once he started at the grammar school, and became a reality. He was the first in his family to stay past minimum leaving age, and then took A levels and went to university.
My mum was raised in a very poor single parent family in the 40-50s. Her mum's neighbours thought she was an idiot for allowing her to continue school past 14/15 let alone to get teacher training.
Her mum decided that the 3 kids would never be poor. They might not be rich but they'd never be poor by 1920-1960 standards.0 -
Gen, your long post just goes to prove you aRe indeed, very special;).
How long ago was the hematologist diagnosed with the missing lymphoma? Has he been OK since?0 -
My mum was raised in a very poor single parent family in the 40-50s. Her mum's neighbours thought she was an idiot for allowing her to continue school past 14/15 let alone to get teacher training.
Her mum decided that the 3 kids would never be poor. They might not be rich but they'd never be poor by 1920-1960 standards.
My mum was born into a stongly republican family in Dublin in the late 20s, her father was 'active' and died when she was 15, money was very tight. In the same year she won a scholarship and a place at Trinity College . She went to work in tailoring workshop:(.
No other opportunities ever came her way.0 -
.
1st response: Not lymphoma.
Dr: BS. We had lymphoma cells in the biopsy. Re-diagnose and tell me it's a lymphoma.
2nd response: Nope, not a lymphoma
Dr: Ok. What about Whartin's?
3rd response: Nope.
So now I'm back with the specialist. He imparts the above and says that as a 55 year old (?) doctor he's only once come across a situation like this. A back of envelope calculation says he's seen about a thousand lymphomas so this is statistically significant.
So I don't have Whartin's Tumour, a cyst or lymphoma. The next step is to go to a hematologist to rule out really rare or unusual stuff. The great thing about about maybe having a very rare disease is that you're really very unlikely to have it!
Now here's the twist that any TLDR people will miss. The hematologist I'm off to see is the only other patient that my specialist has seen who has had a mysterious disappearing lymphoma.
Gen
That sounds very hopeful.0 -
Good. Tired from the op still but good overall.
That's good to hear
I get booked in for a PET scan.
That's even better... if it's nothing except the original tumor is showing in the PET scan that suggests that it hasn't metastasized and may very well be cured already (even if it is/was a dangerous cancer).
Not all cancers show up on PET scans, though, so I wonder why they haven't MRI'd you. (I don't know enough about the type of cancer to know the answer, maybe MRI isn't good for this particular type).3rd response: Nope.
Oh. I don't really like that... but I agree that sending you to the high powered experts is a good idea. I don't like rare diseases because it takes too long to diagnose them and get a treatment plan settled.
If it's your bog-standard lymphoma it's been studied to death and there's a nice little flow diagram that says exactly how they should treat it.“The ideas of debtor and creditor as to what constitutes a good time never coincide.”
― P.G. Wodehouse, Love Among the Chickens0 -
My mum was born into a stongly republican family in Dublin in the late 20s, her father was 'active' and died when she was 15, money was very tight. In the same year she won a scholarship and a place at Trinity College . She went to work in tailoring workshop:(.
No other opportunities ever came her way.
That's heart-rending. How devastating for her.
Do you know anyone who's bereaved? Point them to https://www.AtaLoss.org which does for bereavement support what MSE does for financial services, providing links to support organisations relevant to the circumstances of the loss & the local area. (Link permitted by forum team)
Tyre performance in the wet deteriorates rapidly below about 3mm tread - change yours when they get dangerous, not just when they are nearly illegal (1.6mm).
Oh, and wear your seatbelt. My kids are only alive because they were wearing theirs when somebody else was driving in wet weather with worn tyres.
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I'll talk about it more tomorrow.
This is all too much. I'm getting messages from all over the place.0 -
That's good to hear
That's even better... if it's nothing except the original tumor is showing in the PET scan that suggests that it hasn't metastasized and may very well be cured already (even if it is/was a dangerous cancer).
Not all cancers show up on PET scans, though, so I wonder why they haven't MRI'd you. (I don't know enough about the type of cancer to know the answer, maybe MRI isn't good for this particular type).
Oh. I don't really like that... but I agree that sending you to the high powered experts is a good idea. I don't like rare diseases because it takes too long to diagnose them and get a treatment plan settled.
If it's your bog-standard lymphoma it's been studied to death and there's a nice little flow diagram that says exactly how they should treat it.
My thought is that if the PET scan shows nothing and the grand biopsy(?) shows nothing then the options are that there could be something very rare or very odd going on. Either way, I am very unlikely to get either by definition.
Do you disagree?
Certainly yes, a lymphoma is Australia's second most popular cancer. They love a good old skin cancer but if they can't have one of those then we have a lymphoma.
Is it likely for me to have something unlikely? It seems.....unlikely.0 -
I'll talk about it more tomorrow.
This is all too much. I'm getting messages from all over the place.
Turn everything off and take as long a break as you need. The messages will still be there when you're ready to deal with them. Do you know anyone who's bereaved? Point them to https://www.AtaLoss.org which does for bereavement support what MSE does for financial services, providing links to support organisations relevant to the circumstances of the loss & the local area. (Link permitted by forum team)
Tyre performance in the wet deteriorates rapidly below about 3mm tread - change yours when they get dangerous, not just when they are nearly illegal (1.6mm).
Oh, and wear your seatbelt. My kids are only alive because they were wearing theirs when somebody else was driving in wet weather with worn tyres.0 -
Sure, Generali.
Now onto other issues... bike riding. I have all these gear things, so I was wondering precisely which of them I'm supposed to be using while going up a short but very steep incline.“The ideas of debtor and creditor as to what constitutes a good time never coincide.”
― P.G. Wodehouse, Love Among the Chickens0
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