P.I.P. timescales...

Indie_Kid

kk - is your daughter seeing any consultants at the moment? Might be worth talking to them and getting evidence of your daughter's difficulties.

kken2303

Indie_Kid wrote: »

kk - is your daughter seeing any consultants at the moment? Might be worth talking to them and getting evidence of your daughter's difficulties.

She is under the care of the acute team at our local mental health centre which took months to arrange even though she was classed as an emergency case. However,they often cancel appts at the last minute due to staffing issues. She has always been under the care of Nephrologists, pediatric side when she was younger but now adult nephrology. She has care plans for both. I also sent DWP her discharge notes as she was admitted to hospital in June for kidney problems again which had an nb for our doctor saying that this last admittance was due to her decreased fluid intake messing up her kidneys. I have just sent them her assessment for SPLD (Dyslexia and Dyspraxia) which is an official assessment from an Educational Psychologist and highlighted all the parts of it that are relevant to her needing care. Cannot get my head around them declining her at all with all the medical/professional evidence they have, but havent seen the decision paperwork yet as we are still waiting for that to arrive. Should be interesting! I do wonder if one of the problems is due to the fact her main care needs are mental health related even though they are now impacting on her physical health. Seems to be more difficult to get them to take mental health seriously. I know how debilitating it is and Jade is particularly severe. I know people can get better from mental health problems so maybe they think along those lines when making their decisions. Who knows:(

kken2303

Just received my daughters notification and she was awarded 4 points for daily care. 2 for preparing food - saying she just needs prompting and 2 for washing and bathing saying she needs prompting to wash and bathe in a timely manner. I am beyond words!!!

geordie_girl_2

kken2303 wrote: »

Just received my daughters notification and she was awarded 4 points for daily care. 2 for preparing food - saying she just needs prompting and 2 for washing and bathing saying she needs prompting to wash and bathe in a timely manner. I am beyond words!!!

HI kken,don't give in.Your medical evidence should swing it They have admitted that she needs prompting in two tasks.It should be commonsense that she needs help with them all.Try not to worry to much. You have nothing to lose by the MR or even if it has to go to appeal.You have to find the strenght to carry on.

Dandydoo

Hi all I'm new here and thought I would share my story I was diagnosed with acute myeloid leukaemia in sept 2013 on 8th nov 2013 I applied for pip and had a bone marrow transplant since then after numerous phone calls etc I have finally got an appointment for an assessment on Friday after 9 months of waiting to get just this far I am hoping and praying that it will not be too long after this for a decision but not holding out much hope in the waiting game

LL30

geordie_girl wrote: »

HI kken,don't give in.Your medical evidence should swing it They have admitted that she needs prompting in two tasks.It should be commonsense that she needs help with them all.Try not to worry to much. You have nothing to lose by the MR or even if it has to go to appeal.You have to find the strenght to carry on.

Got to agree. But that might suggest they have common sense...

Indie_Kid

They don't apply common sense. You have to spell it out for them.

kken2303

geordie_girl wrote: »

HI kken,don't give in.Your medical evidence should swing it They have admitted that she needs prompting in two tasks.It should be commonsense that she needs help with them all.Try not to worry to much. You have nothing to lose by the MR or even if it has to go to appeal.You have to find the strenght to carry on.

Hi Geordie girl,
Dont worry, I intend to fight it. I just have a few concerns over the wording of my letter, hoping it is good enough. Read the notification properly now as just skimmed it before and it is pure fantasy. Loads left out and things added which werent even discussed. One sentence talks about my daughter being able to eat and socialise at special occasions. Nothing at all was discussed remotely connected to 'special occasions'. 99% of the report is complete fiction. I will exhaust every route possible to get this overturned and am happy to help anyone else I can to do the same. Cant promise to know the law as this is my first foray into benefits but I am going to educate myself and pass on anything I think might be useful to others. Totally peed off with them which actually helps me fight back. Thanks so much for your support and know it is returned:)

vonniemc

Hi there everyone. Well my story begins with me returning from holiday last June and returned to work. Two days later I was struck with Encephalitis Herpes Simplex virus type 1 which is normally detected on the mortuary slab so I am a survivor. I was working full time up until this illness. I was in hospital for some time released and then admitted again.Adult Social services advised me to apply for PIP I did so in December 2013. I completed the appropriate paperwork and returned it accordingly. Then I waited but heard nothing. My daughter who deals with everything for me as I have been left with short term memory loss chronic headaches poor concentration and a weakness to my right hand side. I get confused easily so phone calls are a no no for me now a days. My daughter phoned DWP in March as we hadnt even received acknowledgement my forms had been received. They said they had received my form and I had to wait for an assessment with ATOS speculating that the time scale was 12 weeks the 12 weeks came and went nothing then told 16 weeks nothing next told 20 weeks then nothing after being told that it was then22 weeks my daughter wrote to our MP who miraculously emailed me two days later saying an appointment was in the post for the 24th June 2014, I went for the assessment which absolutely exhausted me lots of questions to answer and my brain cant cope too well with this now as part of it is damaged due to the virus. The Dr told me she would submit the report and I should have a decision with in the next couple of weeks, I had a letter on the 9th July to say DWP had received all relevant paperwork and would be in contact hadnt heard anything so today my daughter phoned DWP asking for an update on my claim. She was told the report had been received on the 26th June 2014 and this should have been dealt with within three weeks but nothing had been decided yet and now they were running two weeks over the allocated time the person it was in the critical stages now as they had went over the time allocated but gave no further information as to when the claim would be dealt with. I feel let down once again with the system.Yesterday I have received an appointment for Physio after 13mnths being discharged from hospital and I fear I wont be able to attend this as I dont have the money to pay out for a taxi and my family all work in the daytime, I am now reaching the end of my wits. Like everyone else on this forum I didnt ask to be ill and left with a condition. I wish for nothing more than to get up one morning and say I am off to work. I am totally devastated my employer medically retired me in March it broke my heart and I felt another part of me had been robbed as well as part of my brain. I dont know if this is helpful to others or have other people had a similar experience

kittykat17

vonniemc wrote: »

Yesterday I have received an appointment for Physio after 13mnths being discharged from hospital and I fear I wont be able to attend this as I dont have the money to pay out for a taxi and my family all work in the daytime, I am now reaching the end of my wits. Like everyone else on this forum I didnt ask to be ill and left with a condition.

Hi, so sorry to hear what an awful time you've had. Just a thought about your physio appointment. Get your daughter to speak to your GP's surgery and find out if they can arrange an ambulance to take you for your appointment (and bring you home). As I couldn't get my mum in my car we used to do this for all her hospital appointments. Good luck and I hope you get the right PIP decision quickly.