Nice people thread part 7 - a thread in its prime

morag1202

Spirit wrote: »

Thank you.

I did it about 10 minutes ago. I got the pen loaded with the needle and left it for a while, then really did back myself into a wall and injected into my tummy.

I could barely feel it. It is the thought of it that is so awful. I will just get on with it because I have to. I am very pragmatic but the whole idea of it is an anthema at the moment.

The other bit is that I am now legally required to test my blood sugars everytime before I drive. I am not even sure what I am supposed to be looking for or what to do if I find 'it'. Woefully ill equipped for the inconvenience of long term conditions. It si just not how I 'see myself'.

Well done you! Trust me, it will soon become second nature.

For those of you who remember Inspector Monkfish, he's just posted this on Facebook.

Daisy Palmer
Trust


22 minutes ago

Hi. Just to
give you all an update on Daisy.

She is still very poorly. No matter
how well she may look, underneath it all she is very very ill. We can't hide
this anymore. The past few weeks have really brought this home to us.


She is no longer just about 'not being able to eat' , there are many many more
complications involved with Daisy now that are slowly getting worse as a knock
on effect ...
from her primary diagnosis, pseudo obstruction.


She will never 'get better' as many people often ask. We know
everybody means well, but we feel we can't mask things any longer. Bottom line
is, there is no cure, and Daisy will only get worse, never better. The best we
can do is to make her comfortable with many painkillers etc, to give her at
least some quality of life.

We have a good team of Doctors who are now
working collectively to come up with the best possible care plan, that will
strike a comfortable balance between all of Daisy's many many complications. But
this will take time with a lot of monitoring and sadly it looks as though she
will be in here for Christmas.

There are no real positives to take
from anything, but we guess its a good thing that the Docs and Medical staff are
now treating Daisy as unique rather than just lumping her under the 'pseudo
obstruction' umbrella and expecting her to respond as some other children might.
Daisy simply does not follow any text books.

It's now a case of what,
how and when we can get Daisy comfortable enough so that we can care for her at
home. With the Docs hopefully now on the case, we of course hope that's not too
long, but its a game of trial and error with Daisy, so only time will tell.


There are not many people out there that can fully understand the sheer
hell we are going through, we would not wish this upon anyone. It's so so very
difficult sitting watching Daisy go through this pain day after day after day,
while we sit here feeling so helpless. All we can do is chase the Docs and care
for her the best we can 24/7.

Not a day goes by without Daisy being in
some kind of pain, but she keeps us strong with her courage and bravery. If she
can go through this, we can damn well learn from her and help her the best we
can. It's not easy, and its certainly not getting any easier. But we will not
give up while Daisy is still here with a cheeky smile and witty comeback to make
us all laugh :-)

But please don't think she will ever 'get better'
because she simply won't. But we can hopefully make her comfortable again. We
wish as always that we could be more positive, but bottom line is, we just can't
at the moment.

Thank-you for all your support and kind words as
always. Tracy & Damon xx



So very, very sad.

vivatifosi

Thanks morag. That's so terribly sad.

Spirit_2

That is heartbreaking. It sounds hopeless and they are asking for so little.Just the chance to make her comfortable.

Please god let them get this.

GDB2222

lostinrates wrote: »

It is the most perfect winter morning here.

It's so crisp and hard I could have worn my slippers accross the fields and come in dry and clean (I didn't). Most of the horses with black manes and tails have had their coiD weather transformation, each hair coated in a sparkling frost (showing they are well insulated by their coats).

They are hovering around the yard and barn. The puppy, who loves could dry weather, but like me is not keen on mud , and he also hates cold rain, he was tearing around the garden like a racing greyhound, while I held the greyhound on a tight leash promising that so will she in a few weeks, so will she.

The chickens demanded warm water to replace their ice, and I shall have to pop out a few times to attend to this today I guess, though they did say this afternoon might be sunny.

Each tree is outlined or totally frosted in glittering, silvery white, and the sky is clean and clean, no freezing fog here. The boiler, (which this morning is burning) is filling the clean crisp air with the delightful scent of pine and cloves.

Everything utilitarian is turned into a thing of beauty...ugly metal gate? No, glittery gate way to winter wonderland! Handle less backet? No! Sparkling receptical for feathered ice, concrete yard...no, shiny sparking dance floor of a yard. (I must spread grit soon!)

The sun rose a coral colour heavy in a halo of gold but in a cold lavender sky. It's so beautiful, so terribly, awesomely beautiful.

Gdb, I hope you can see some of these things to help make these shortest days as full of their magic as possible, to help alleviate the lack of light and sun.

I woke, my head so sore I could not walk in a straight line, and stumbled down the stairs before bundling my grumpy self into my clothes, and I came back in full of the wonder of the world and so grateful I have seen a small corner of this beauty this morning.

LIR, what a lovely, lyrical description!

I was out this morning at about 10, and I saw an amazing spider's web covered in Frost. As you say, everything is incredibly bright and clean.

This afternoon, I had to walk over to the hospital at Hampstead, and I walked up Parliament Hill. At that height, it was clear enough to see to Crystal Palace, which must be 10 or 15 miles, but looking down into London there were banks of fog obscuring a lot of the buildings. For some reason, the sky was very red, even though it was only just past 1 PM. I heard someone remark that it looked like Mordor (LOTR), which I thought was extraordinarily apt.

lostinrates

GDB2222 wrote: »

LIR, what a lovely, lyrical description!

I was out this morning at about 10, and I saw an amazing spider's web covered in Frost. As you say, everything is incredibly bright and clean.

This afternoon, I had to walk over to the hospital at Hampstead, and I walked up Parliament Hill. At that height, it was clear enough to see to Crystal Palace, which must be 10 or 15 miles, but looking down into London there were banks of fog obscuring a lot of the buildings. For some reason, the sky was very red, even though it was only just past 1 PM. I heard someone remark that it looked like Mordor (LOTR), which I thought was extraordinarily apt.

Hope it gladdened your soul too. . Not long now before we hit the dark day and start creeping up.

An MSE chum on another thread doesn't see the sun at all again until mid January. It has become our habit to light a bonfire in a celebration of the return of the sun over the hill so she can see it.

I never really got to enjoy walking much over there, I got I'll so quickly. I remember dh and I lugging the hugest watermelon inthe world and a picnic basket down the hill then up again to meet friends and later I walked the cats a bit on my side. Fed ducks. I used to love swimming on the heath but ofcourse, I got too I'll, and then when I felt strong enough to swim I wasn't strong enough to get home afterwards. . I think really, over all the London parks I love bushy and Richmond best. And bushy only gets in because of the extreme tame ness of the deer.

LydiaJ

Oh poor poor Daisy and Tracy and Damon.
Wish there was something any of us could do.
Thoughts and prayers for you all.

lostinrates

LydiaJ wrote: »

Oh poor poor Daisy and Tracy and Damon.
Wish there was something any of us could do.
Thoughts and prayers for you all.

I feel like this too.

lemonjelly

Spirit wrote: »

Thank you.

I did it about 10 minutes ago. I got the pen loaded with the needle and left it for a while, then really did back myself into a wall and injected into my tummy.

I could barely feel it. It is the thought of it that is so awful. I will just get on with it because I have to. I am very pragmatic but the whole idea of it is an anthema at the moment.

The other bit is that I am now legally required to test my blood sugars everytime before I drive. I am not even sure what I am supposed to be looking for or what to do if I find 'it'. Woefully ill equipped for the inconvenience of long term conditions. It si just not how I 'see myself'.

lemonjelly wrote: »

My dad was diagnosed in the 80's, & was straight onto needles. He too is fairly needle-phobic.

He's managed ever since, up to a serious illness a few years ago, following which despite going from2 to 4 injections a day he was unable to keep his levels consistent or safe, so he was fitted with a pump.

He tells me that at first, he shook like a leaf. What focussed him was the consequences of not doing it!:eek:

You'll manage Spirit. our mind always makes it worse than the reality...:)

I would say I don't like to say I told you so but... ah nuts to it, told ya so!:p

Soon enough it'll become 2nd nature spirit, & you'll wonder what all the fuss was.:)

As you test your sugar levels, you'll also become more aware of other signs. I remember my dad having hypo's. As a kid, it was quite scary, as he had no control at all over himself & reactions. The closest similarity I can draw, is severe drunken-ness. Cognitive functions are affected. Therefore it is important for you to do it for your own wellbeing, as well as others.

lemonjelly

Thanks for the update morag.

I still miss Inspector Monkfish. He really is one of the best.

Still amazed when you go through all the photo's that pretty much all of them have smiling faces all the time.

SingleSue

lemonjelly wrote: »

I would say I don't like to say I told you so but... ah nuts to it, told ya so!:p

Soon enough it'll become 2nd nature spirit, & you'll wonder what all the fuss was.:)

As you test your sugar levels, you'll also become more aware of other signs. I remember my dad having hypo's. As a kid, it was quite scary, as he had no control at all over himself & reactions. The closest similarity I can draw, is severe drunken-ness. Cognitive functions are affected. Therefore it is important for you to do it for your own wellbeing, as well as others.

Ex hubby would have 3 type of hypos (or reactions as we called them), one would be the silly drunk, another incoherent unable to do anything type and the last...the violent type.

Thankfully the violent type was very rare and only occured if he felt threatened, one reason why if I had to give him the emergency jab, he advised me to never let him see the needle...I became a dab hand at grabbing him around the nether regions, flipping him over, putting his arms in a lock with my legs and just jabbing him in the butt!

The boys still remark on the hypo where he put a cup upside down on his head...full of tea! He just stood there with a cup on his head, tea dripping down his face with a big silly grin :rotfl:

Best one was in preparation for middle son's baptism, we had to attend church at an awkward time for his food and he went into a hypo, there were some weird religeous types there who thought he was possessed by the devil