miraculously cured!!! update!

vvvvvvvvvvvvvvvv

http://www.youtube.com/watch?v=jgyX5yY98F4&feature=related

shykins

mazza a good doc does make all the difference.. mine didnt really know me as i hadnt seen him for a while just kept taking the tabs

but since i turned up there sobbing about my levels of pain i think he now realises how it affects me

dragon dont u know that perfectly qualifies u for a job (sarcasm) after all u could do ummmm, well ummm . i mean what exactly do they expect u to do. if they send u to a job which excaerbates your condition then what??

mazza111

You're not kidding there. My dd has EDS/HMS which is quite rare. Well the tell us it's rare, in all honesty, since reading up on it, I personally think it's just so under diagnosed that it's showing as rare. Because docs don't seem to know a lot about it.

As soon as I mentioned HMS and rapid onset, he sat up and took notice and was really interested in her condition. Gave her a lot of encouragement about her physio etc. He was just first class. He's a doc I would really love to stay on at the surgery.

prepareathome

The_Dragon wrote: »

My Doc wants to know what ATOS use as I am apparently cured as well (he wants it for the rest of his patients!)

I didn't even have a medical, I just got a letter saying I am now in the Work Related Activity Group

Dragon did you ask them to look at your claim again. I didn't get called for a medical but like you got told I was being put in WRAG so called them to ask them to look at it again, followed this up with a letter(you must do this but they do not tell you this at all) and a call to my MP, who said she would have a word with DWP ,result in under a week they had looked at my claim again and found I did fit at least one of the descriptors for support group. This is not an appeal and not everyone knows you can ask for this, if you still are not happy then you go down the appeals path. They have put me in support group for 2 years and I doubt I will get away without a medical again.

OP good luck, have no info that can help you, wish I did. Sending you all lots of postive vibes and hugs to everyone.

Love that about ATOS being the new Lourdes, brilliant:D

ankspon

My illness is degenerative and there is no cure yet i had to get my MP involved to help my illness get recognised for the ESA support group,keep fighting it works.

The_Dragon

prepareathome wrote: »

Dragon did you ask them to look at your claim again. I didn't get called for a medical but like you got told I was being put in WRAG so called them to ask them to look at it again, followed this up with a letter(you must do this but they do not tell you this at all) and a call to my MP, who said she would have a word with DWP ,result in under a week they had looked at my claim again and found I did fit at least one of the descriptors for support group. This is not an appeal and not everyone knows you can ask for this, if you still are not happy then you go down the appeals path. They have put me in support group for 2 years and I doubt I will get away without a medical again.

OP good luck, have no info that can help you, wish I did. Sending you all lots of postive vibes and hugs to everyone.

Love that about ATOS being the new Lourdes, brilliant:D

No I didn't know this! Thank you I will run it by Dr Dragon tonight

shykins

RE ATOS i was put in the work group but i appealed this, its now been 9months and i still havent heard.

funny enough said to hubs yesterday think i will write to my MP about this

good luck everyone

rogerblack

shykins wrote: »

RE ATOS i was put in the work group but i appealed this, its now been 9months and i still havent heard.

Did you appeal this in writing to the DWP.
Are you sure they received it?

shykins

I range DWP and she said they hadnt as yet received it, so i rang the local office who said they were still re-assessing it. since then nothing. i really need to chase it again but things have been a bit difficult lately so i havent got round to it

i shall go do it right now!!!

lyniced

I often read these posts with fear and trepidation - I am in a wheelchair full time, due to FA. I can hardly do anything for myself now. I gave up work about 3 years ago. I receive DLA (higher rate for both) and support group ESA. Will I have to be assessed?