Support and information after multiple miscarriages thread

abis21

Hi Skintchick / cleofish,

Just wondered how you were both getting on?

xxxxxxx

Floxxie

Just wanted to pop by and post a message as reading the posts brought back all my emotions.

I have had 5 miscarriages after having DS. After suffering my fourth mmc at 16 weeks I really did think that I couldn't continue. We had so many tests including checking of chromosomes and post -mortems but nothing showed up as abnormal.

However a fantastic consultant at the Leicester General suggested taking low dose aspirin and heparin (I refused the latter as I couldn't face injecting). DS2 was the result.

Shortly afterwards I was diagnosed with an underactive thyroid and my doctor very kindly told me that was the reason for my previous miscarriages.

I had another DS a couple of years after but then had my fifth miscarriage.

I am so grateful to have three lovely boys but I am always reminded of my losses due to the age gap with my eldest being 12 and my middle being 7.

I hope you all get the child you so long for and I hope your path is not long

xx

skintchick

Thanks for sharing your story Floxxie. xx

abis21 wrote: »

Hi Skintchick / cleofish,

Just wondered how you were both getting on?

xxxxxxx

I'm sorry I've been so absent. I've been takng a break from online life, plus I've been very depressed and struggling with life. A lot has happened recently but I'll try and summarise.

I had my fibroid op, but they didn;t actually remove the fibroid. When I woke up they said that there was 'the impression of a fibroid' but nothing they could remove without cutting a hole in my uterus. She did say 'it looks a very good womb for fertility' bvut that is cold comfort as obviously it isn''t! So I had a general anaesthetic for nothing. And then I got an infected vein and deep tissue damage after the nurse on the ward messed up giving me some drugs after my op. Plus I crashed on the ward, which I always do after generals but had forgotten about so I nearly ended up staying in but I forced myself to look better so they'd let me go home!

This week I started my counselling which is mc-specific. It's very structured which I'm not sure I like but at least it is something and the lady is very nice. It's also Christian which I like as we pray together at the end.

This Tuesday I go back to St Marys to get my blood results and to discuss what happened with my op. I'm really desperately hoping I have a blood clotting disorder as that is all they tested me for nd if it's not that we are back at square one. At least if it is that it is easily solved with daily injections during the first trimester, and I could try and get PG asap.

Although...I am having both my bunions done on December 3 so being PG while recovering from that (which will take months, up to a year or more to fully recover) could be difficult. But I can;t think about that, I refuse to wait any longer than I have to to have another baby.

So. That's me in a nutshell. I'll update after Tuesday.

skintchick

Right. I spent a loooong time at St Mary's today. Eventually saw the doctor Mr Aziz two HOURS after my appointment time.

Long story short, I have a blood clotting disorder called Factor V Leiden. It's genetic. I also might have anti phospholipid syndrome which is another clotting problem.

Basically my blood clots too much so I'm at increased risk of DVT and the clots basically kill my babies. The chances of a live birth with FVL are 11 to 37 per cent so that explains DD.

Next time I get PG I have to inject heparin daily all PG and take baby aspirin. If I also have the other one I have to up the aspirin to 150mg from 34 weeks.

So I have an answer and it's easily treatable. I can get PG as soon as I've had the bunion surgery I've been waiting for so in about three months. I'm actually feeling positive and excited and my counselling is also going well. I feel so much better now I have an answer and a plan.

How is everyone else?

abis21

Yayyy, am so happy that you have some answers and a plan Skint. Really glad the counselling is helping too.

Hope the bunion operation goes well and recovery is quick and smooth. Fingers crossed you will be hobbling round this time next year with a huge bump instead of poorly feet :cool:

Courgette

That's great news, skintchick. So pleased xx

SusanC_2

skintchick, I'm so glad to hear that you have got an answer and that it is something easily treatable. I'm so pleased for you!

Sa-ra-ra-ra

I'm so pleased that they found something Skintchick - and it's something treatable too!

Although I am currently pregnant, before we caught this one we went through the rounds of testing etc too, so I thought I'd update with my story too so that any other ladies looking for info had more information.

I had my first MC in 2003, when I was at university with an ex partner. It was sad, but not the right time for a baby so not as devastating as it can be - it saved us from having to make a very difficult decision. It occurred spontaneously at about 7 weeks. Fast forward 7 years and my now DH and I decided to start TTC. We caught quickly - on the third month of trying - but sadly it ended in a natural MC after 9 weeks. We didn't want to waste time so started trying again soon after, again conceived within 3 months, everything went fine (had an early scan at 7 weeks due to spotting, saw a HB), but unfortunately at the 12 week scan the embryo had stopped developing at about 8 weeks, and it was a MMC which I had an ERPC to remove.

Due to my age (I was 26) and history, I was given a referral to PRUH in Farnborough for further testing. They took bloods before I had my ERPC so they'd have the results by the time I got my referral through, and I was seen within 6 weeks. To be honest, although my expectations were low, they managed not even to meet those (it was a very perfunctory appointment, they didn't explain what they'd tested for, I was essentially dismissed, I was seen by a standard gynae rather than a specialist) and I went back to my GP and asked for a different referral, who then referred me to Croydon University Hospital. In the meantime she also tested my thyroid levels, as that can cause problems.

At Croydon, we were seen by Mr Booker, who is a FS and has a RMC. He gave us the RCOG guidelines to look through, explained that he would be following their standards of testing, and took bloods from both me and DH - to test for clotting disorders and to do the karyotyping (because the placenta is half you and half your partner so it does make a difference). I was also scanned to check if there was anything untoward internally. Our results came back without any indications of any problems, but by the time we got them back I was pregnant again so we were into 'hand holding'.

I was scanned at 4, 7, 9, 12, 13, 20 and 33 weeks during this pregnancy. I have been seen by Mr Booker at least monthly, and I cannot fault the care we've had from Croydon (Mayday, as was). This one seems to be working out for us, and although they didn't find anything of relevance there is some evidence that extra care can increase the chances of having a viable pregnancy.

jillie1974

so glad you got some answers at last Skinty

Metranil_Vavin

Hi all.

I am coming to this thread as I am currently going through my 2nd early (chemical, hate that term) pregnancy in a row. I also suffered a mc in January 2010 at 9 weeks, baby had died at about 7 or 8 weeks, and I had seen a hearbeat on 2 internal scans at EPU. The third and final time I went, the baby had gone.

I went on to have my son after that mc, who is now 21 months old, glorious and my world. However at the age of 39 and nearly 40 respectively, my OH and I long to have a second (we'd love 3 in total but I doubt that will ever happen) child to complete our family.

However my last 2 attempts have been blighted by 2 early losses (4 weeks roughly). The first CP happened in September, and I was upset but thought it was just an unlucky blip and carried on. Got pregnant again the next cycle, tested positive on a number of tests, but had an uneasy feeling on Thursday just gone, tested again on Friday and BFN on 2 tests.

Bleeding started yesterday morning which is heavy and clotty again (tmi..sorry), and very uncomfortable.

I feel bereft. I also feel scared that I will never carry another baby to term again. I seem unable to get past the first few days after a BFP, and have vowed never to test early again. This time round however my AF was 2 days late, so even if I'd held off testing a few days I still would have got a BFP only to lose it again.

I have spoken to a GP on the phone who basically attributed it to my age, and said I should 'try again' and if the same happens go in, although testing is for 'rare' conditions, and as I had, had a baby previously shouldn't be an issue. I don't feel particularly comforted by that, so have also contacted a private clinic specialising in recurrent mc to see if I can get an appointment and talk to someone who actually seems to give a flying !!!!.

It's one day at a time for me at the moment though. I'm trying to focus 1000% on my DS, and count my blessings.

OH and I have decided that once my bleeding stops we will try again this month, but no ov sticks/charting/pressure as he finds that whole side of it very difficult.

Sigh...I just want someone to tell me that I WILL go on to have another baby. I could even cope with the losses if I knew it was just a waiting game, but my age is bothering me.

Sorry for the ramble. My thoughts are all over the place. Skintchick suggested I post here too x