MOOLOO'S continuing saga Part 4

Savvy_sewing

Sorry been away from the laptop since Thursday. Dont know where the time went. I do know that I had a busy time at the end of the week, and then had a really bad onslaught of the sciatica over the weekend.
Was out for a walk around the area to the park with DGD on Saturday and the shooting pains started, and so I struggled since.
Sunday meant that I was not straying far from my armchair. Where I did some hand stitching of my patchwork, which was all I could do. I wasnt up to getting the laptop out even!.
Yesterday I managed to walk DGD to school, but just, and one of the Mums gave me a lift back. So we had a cuppa and a chat. Helping her with a few of her problems. I seem to have amassed quite a varied knowledge of life, being a single Mum/Gran, over the years and the ways to economise from on here, and where to look for benefits etc etc. So it was good to be able to help.
I drove down to the Charity Shop, and had a chat with a couple of the volunteers, and some of the Link users, (the disabled customers that go to the Link daycentre that is within the offices come to the shop to help out when they can). With their help, we moved the maniquins around, redressed them, and cleaned the windows. Along with putting out the stock that I had left to the side last week.
WE chatted about the ideas that I had and whether they thought them a good idea etc, and we managed to sell quite a bit of stock. In the two hours I was there we did £40 worth of sales. The lady taking over said that they had never taken that much on her shift and she would struggle to match it!. I think they just need to learn to engage with the customers coming through the door.!
Anyway, its making a difference. Thats all that counts.
I had a call from DS about Twin2 and some problems with her. So I decided to go to see him, and to get the electric and some basic foods for them. (My choice). Twin2 has gone off out to London!!!! with the daughter from the family from hell. So now there was no money for the electric etc. It was her turn to do the shopping. etc.
So I will be so pleased when her carer actually starts.
She says that she had a job starting at a popular Pizza place, but it looks like she missed the shift if she went to London. So that job wont last long.
DS has now conviscated her bankcard!.
I got back intime to collect DGD- in the car.
When I got home then I didnt do much else but sit in my chair and stitch. Trying to carry on is not easy with the sciatica pains.
Today I have the doctor. Double appointment, to get to the bottom of why my treatment etc has been misdiagnosed, etc and see what we can find out, if the hospital have written back to him etc.
Time to get DGD sorted for school. Luckily I have help this morning, Molly's daughter has arrived to help thank goodness.

Savvy_sewing

Right, back from the doctors. Hundreds of emails checked, deleted, and Googled "Chronic Pain Syndrome".
So there it is. My body has tricked itself into pain. Probably manifested from all of the stress that I have been through from the past 5 or 6 years!.

Well I suppose that is not surprising really.
I am greatful that I dont have Cervical Spondylosis, but trying to get my head around this new diagnosis, and trying to work out what to do next is the problem.
The doctor has said that there is no doubt that I am in the pain, but that the reasons are more complicated. The treatment even more complicated. Change of life style, would help!.
Errr Great. But even then the prognosis is not brilliant, as the brain/body would need to be retrained to respond to the pain signals etc.... which is not known how we can do that.
So I have to continue to have my massages. Go for slightly longer walks each day, if i can, and to continue to push myself through the pain so to speak.
To find other things to do, and to Carry on regardless!. etc.
First is to try and ween myself off of some of the tablets that I am on, although the gabapentin will probably still be on the cards for quite some time. If we can change the body signals it would be a minor miracle for me, but never say never!.
Confussed to be truthfull. Trying to get my head around this situation, is difficult. I dont want to be ill. Never have wanted to be ill. And have always yearned to be back at work. This is why I have thought of my sewing as a way forward, but it doenst earn enough to be a complete living, and why I thought that volunteering would be a way back to work.

Got to go now. Have been on here for about 2 hours, and need to have some lunch and carry on, and pop to the charity to see what is required today.
Dispite the sciatica. I have to keep on, keeping on.

Savvy_sewing

Well I have been down to the sort room, and then to the shop. Changed a few things around, and it was a good side track for me.
DS and Twin2 are arguing over the state of the kitchen and bedroom etc and both rang me to moan about the other, Argh.
Then this afternoon poor old Biggest of Mooloo has been on the phone, she has problems with the Ex being a bit of a morron if you ask me. So she was in tears too.
alas the Mummy hugs are not easy to give to all of them and I am not getting into the car and dashing over at this late stage in the day.
I have got home, made my cuppa and intend to keep warm, dry and have an early night.
Hope to go and see Molly tomorrow. We havent caught up in an age. It will be great to see her.

minimoneysaver

It's lovely to see you back on here Mooloo!

Savvy_sewing

Sorry, I have been trying to keep off the laptop a bit more, and sew.
I am making a black and white patchwork quilt, by hand, and its taking an age to do!.But I am enjoying it.
I will try and keep intouch better!

minimoneysaver

Very brave of you, as I know how long they take to make. I had a friend who used to make quilts by hand and also beautiful wall hangings with embroidery.

Eager_Elephant

Mooloo wrote: »

Right, back from the doctors. Hundreds of emails checked, deleted, and Googled "Chronic Pain Syndrome".
So there it is. My body has tricked itself into pain. Probably manifested from all of the stress that I have been through from the past 5 or 6 years!.

Well I suppose that is not surprising really.
I am greatful that I dont have Cervical Spondylosis, but trying to get my head around this new diagnosis, and trying to work out what to do next is the problem.
The doctor has said that there is no doubt that I am in the pain, but that the reasons are more complicated. The treatment even more complicated. Change of life style, would help!.
Errr Great. But even then the prognosis is not brilliant, as the brain/body would need to be retrained to respond to the pain signals etc.... which is not known how we can do that.
So I have to continue to have my massages. Go for slightly longer walks each day, if i can, and to continue to push myself through the pain so to speak.

I am sorry to hear about the new diagnosis - they might make up their minds one day :rotfl:

I think that CPS is where they don't know what is wrong with you so this covers everything for people who have been in pain longer than 6 months and people who have a psychological illness.

Is your doctor saying that yours is definitely psychological or is is that they just don't know?

The problem is that if all blood tests and xrays come back normal they assume it is psychological without investigating everything.

What if you change your lifestyle and have no stress/anxiety etc and you still have pain?

Errata

The doctor has said that there is no doubt that I am in the pain, but that the reasons are more complicated. The treatment even more complicated.

Did the doctor suggest referring you to the Pain Management clinic?

Savvy_sewing

I went on a pain management course about two years ago. But he has not suggested anything except to - get a job as soon as I can!
Easier said then done of course.
I have been trying to get the volunteering going, to try and build up for work, its not as if I havent wanted to go to work. I have.
I wanted to make the sewing a business, but it would not cover the bills etc that I have. It would be more a pinmoney business. But who is going to employ me, and besides I am STILL in PAIN!.
Anyway, all I can do, is carry on.
I am trying to change my lifestyle, I have been trying to change the stress, I ahve been to councilling. So its not as if I dont do everything I can to keep on going.
Right its time to go and see what I can do with the shop today. See if we can get some good stock sorted out and down to the shop from the offices.

Savvy_sewing

Went to the offices and had a chat with one of the staff about the things we needed for the shop, and what I had wanted to do, etc. We discussed a few things about the prices etc of the rag, and I went on a mission to the AgeUK shop and asked the manager there if she could advise me on the cost of Rag. She was brilliant and I came away armed with the name of the company she uses, and the prices that they give to AgeUk. So I went to our shop and left a message in the book for them. Had a little chat with the volunteer that was there, and gleamed that the sales were up again today as well. Looking at around £40+ again. Which to you and me is probably peanuts, but to them is double the takings if not trebled some days takeings. They seem to have taken around that every day since I started last week. So I am thrilled. But I will not be happy until its a lot more than that. I said I want at least £80 a day before Christmas.
Did discuss that the future of the shop, they wanted to be able to get it organised and dealt with by one person. I said that if it becomes a Paid job, then I would be glad to take it on, as I would be able to pay for after school childcare for DGD and be able to work longer hours etc for them. So I planted the seed.
Anyway. Its looking like I shall have quite a bit to do, to help them, but that my enthusiasm is rubbing off on the volunteers and carers at the moment, and I hope that I will continue to get things going for them. It will do me good to have something to focus on other then the bickering children of mine, and the money troubles and mess that they are always in.
I am really tired now, but pleased that I went in. This evening I managed to finish knitting my first pair of fingerless mittens, in locally hand spun, veg died wool. The ball cost me £9. So not the cheapest of mittens but when they are sewn together up the sides I will have achieved something in a different skill to my normal.
Tomorrow I am in the sort room for a couple of hours, and then I promised to go and see DS, with the laptop as he has stuff stored on here, and passwords etc to someof his sites.
In the middle of the afternoon, after school, I have DGD's parents evening. Then later in the day her Mum is actually coming over for the evening. She will take DGD to school Friday morning for me, and I will go and babysit for my other Granddaughter. Friday afternoon DGD has a halloween party organised by one of the Mums from the class.
So we have a busy little few days ahead of us.