Milk Allergy help needed

abbecer

Carmina_Piranha wrote:

we haven't seen a dietician yet but are on the list, but when she spoke to us she mentioned a milk made from potatoes - have you tried that one? i don't know the name of it sorry, and mine is intolerant to lactose and not to the milk protein, so our case is completely different.

but he doesn't have much dairy now, i was told after 12 months they only need 9 oz per day to get all the calcium they need. could yours get enough calcium from other sources? broccoli contains more calcium than milk and it's better absorbed. sardines, tofu etc. also contain calcium.

Think the milk she means is Omneo Comfort. My eldest had to have that and he was fine on it.

Rebecca x

Carmina_Piranha_3

hi, it was one she had to prescribe and was made from potato, not cows milk with added starch. she said it was vile and we should avoid it if possible :rotfl:

we used omneo comfort and it was great :T colief drops can be added to it to clear up most of the lactose (but it's only got half the amount of lactose of other formulas anyway). it was fab for reflux.

now he's over 1 i buy lactofree milk cartons from the supermarket but i had to speak to the dietician because it's semi-skimmed milk so i shouldn't use it before he's 2 really.

my ten year old is still lactose intolerant but is able to tolerate some as he gets older. my brother can tolerate a bit too but he had a terrible time as a baby. these are all lactose intolerances though, not protein allergy. but hopefully the op's babies might grow out of their allergy a bit as they get older.

Mrs_B_12

I regularly see a dietician with my son, allergic to cows milk and about to do a trial to see if he's grown out of eggs. He is 3 and a half and although his reactions are less severe, he only needs to eat something with a tiny amount of milk in still to have his eczema flare up. A while back I picked up the wrong bread by mistake and after 4 days he was having terrible tummy ache and stopped eating.

If you are a member of a parenting forum or site they often have forums for allergies, I've had lots of really useful advice from other parents on the Babyworld site at https://www.babyworld.co.uk .

Carmina_Piranha_3

oh mrsb your poor boy :-( my toddler doesn't seem to have a problem with milk protein and he's fine with eggs. lactose intolerance seems much easier to cope with than protein allergies and with baby formula all we had to do was eliminate the lactose and he was a different baby altogether.

i just filled in a food diary for the dietician and he seems to be eating more than his own weight in fruit each day, i hadn't realised must get more broccoli!

grahamliza4

No testing done on my two, just had to feed them things one by one and find out for myself! They are reluctant to test unless the reaction is serious.

grahamliza4

Most books contain a lot of long winded time consuming recipies, I've taken a few from about 40 books and got a folder full of notes now! If you want a specific thing PM me and i'll dig it out for you. Hope thats okay?!

oldMcDonald

This is a helpful site which also has a friendly forum to ask specific questions.

http://www.milkfree.org.uk/

angelfire

deronda wrote:

This is a bit of a long shot but my twins are allergic to cows milk, goats milk and soya milk! I have been given a replcement by the Doctor called nutramigen which gets sicked up immediately. I know that there are some other similar replacements available and I was hoping that some of you out there may have tried others and can tell me which seem to be the best or if they are all just as foul as each other!

Any help would be greatly appreciated.

hi there, my daughter, now almost two has a milk protein intolerance, doctors ignored my requests for help at first and put her crying down to 'colic'. so I researched on the net and finally got our gp to prescribe nutramigen. This has really helped with our baby. It's a milk where the proteins are heavily broken down so that the body does not recognise them, this is ok for some, but as you have experienced, not for others.

The only other milk on the market is Neocate but be warned, it tastes vile - that said, babies do get used to it and it's tolerable.

I have quite a lot of knowledge on this subject, but to be fair, most of it was learned from the baby centre website. they have forums there that are very heavily populated by some really knowledgable mums and dads. There is a forum for allergies and I really do suggest you look here and ask their advice as they really are fantastic. https://www.babycentre.co.uk then navigate to forums...

as for testing for intolerance/ allergies. My daughter has a lactose intolerence test and blood tests, but ultimately her consultant explained that these are not always accurate anyway. Our baby comes out on a massive rash and has runny green poo after eating yoghurt or pure milk, so there is obviously some sort of allergy there, but her blood tests came back negative.

So ultimately, get tests done if you can but use your own intuition. Omit foods one by one from your baby's diet, keep a diary etc. It takes a while but eventually you'll learn for yourself what he/she is/isn't allergic to.


our daughter seems to be growing out of her intolerance but many children have an actual allergy, which will always stay with them - for this you need to drive your child's research. A lot of doctor's won't / can't help, but even the ones who do can only do so much...

if you need any more advice/want to ask any more questions thehn feel free to PM me and I'll give you as much knowledge as I've got and pass on my research if you like.

The best of luck with this, it's difficult but you'll get there in the end!

angel x

Mrs_B_12

I have to disagree with you there Angel, you can have an actual allergy that lessens or you grow out of. My DS was severely allergic to cows milk and eggs, both of them brought him out in hives and in the case of milk it actually made his skin blister. He can now have very small amounts of milk in food but it still gives his eczema. He is ok with small amounts of cooked eggs but not more than a little at a time. Allergies can occur in anyone at anytime, so can intolerances and although they can have similar symptoms they are actually very different things.

I was told by our dietician that the reason they tend not to do much allergy testing, unless someone is at risk of a life threatening allergic reaction, is that it is common to get false positives. That means foods end up getting cut out of kids diets, often kids that are already on restricted diets anyway, and makes it hard to get the nutritian they need.

angelfire

Mrs_B wrote:

I have to disagree with you there Angel, you can have an actual allergy that lessens or you grow out of. My DS was severely allergic to cows milk and eggs, both of them brought him out in hives and in the case of milk it actually made his skin blister. He can now have very small amounts of milk in food but it still gives his eczema. He is ok with small amounts of cooked eggs but not more than a little at a time. Allergies can occur in anyone at anytime, so can intolerances and although they can have similar symptoms they are actually very different things.

I was told by our dietician that the reason they tend not to do much allergy testing, unless someone is at risk of a life threatening allergic reaction, is that it is common to get false positives. That means foods end up getting cut out of kids diets, often kids that are already on restricted diets anyway, and makes it hard to get the nutritian they need.

The fact that your DS has gron out of the worst symptoms suggests it is an intolerance rather than an allergy - think of the people who are allergic to nuts for example - they don't grow out of it, or those that are allergic to wasp stings. an allergy is something that you'll always have.

You also need to remember that different practicioners will give different info/advice based on their own beliefs as well as their knowledge. My advice stands - if you feed your baby eggs (to use an example) and she reacts badly, then you omit eggs from her diet and she's fine, then common sense tells you there's something in eggs that doesn't agree with her - whether it's allergy or otherwise....