Its tough, it will get better and guess what its freezing brrrrr!

mardatha

Oh nooly be careful ! and yes, the physio can say what she likes but you dont have to do it all to the letter. Only people who have ME can know what it feels like - the physio cant possibly. I am only now learning how to pace meself and not to overdo it.
Had horrible day - funeral - so am taking life easy tonight and all tomorrow.

NualaBuala

mardatha wrote: »

Oh nooly be careful ! and yes, the physio can say what she likes but you dont have to do it all to the letter. Only people who have ME can know what it feels like - the physio cant possibly. I am only now learning how to pace meself and not to overdo it.
Had horrible day - funeral - so am taking life easy tonight and all tomorrow.

Oh no, so sorry to hear about funeral. Was it someone close?

The physio was well-intentioned I think but what sounds good in theory (starting with 15 mins moderate paced walk, 4 days a week) is going to muck things up for me. You're right Fred, I will do it my own way.

Put your feet up and hope the RV will bring you a cuppa! :coffee:

Rosanna79

Nuala,

You're right to listen to you body whatever the physio says. I've found them great after I ended up needing them a year ago. ...but..

Long story short ended up with an horrendous arthritic flare up following my first seasonal flu jab in 40 years. I ended up having to walk with 2 sticks for 16 weeks, did all the exercises they told me but still have a knee which cannot be relied upon NOT to give way, twist or lock,caterpulting me headlong onto the ground.

Young eager physio told me as I could walk OK on the perfectly even floor of their gym did not need any walking aids.. Quite a different matter out on the street. Still use one stick though not cool but have saved myself from falling & further injury a lot of times because I listened to my body and the commonsense suggestions of a good friend.

I also have to see a dietitian - lost 3 stone so far in 18 months but the really young enthusiatic one gave me a plan which ended up with my having a really bad back spasm from going at her pace!!

Do you ever find that whenever there's a small percentage of cases where there are problems you always tend to be in that minority?

It's so annoying! I went to see a chiropractor to help with the back, a gorgeous young man who was absolutely charming. Apparently they see you for a lot of visits. First treatment he thumped my upper back so hard I couldn't breathe, cough or sneeze for the next 2 weeks without hanging onto my left boob to reduce the pain...! End of that unfortunately!!

It seems that the bottom line is whatever professionals tell us only we know our own bodies... I'm sure we all struggle to learn the art of pacing ourselves in this mad world we live in.

My OH , like a lot of men always wants to know what t'm doing today or what I've achieved.

On the days I can't DO so much, I tell himself that today I'm just BEING- a perfectly valid state from which to recharge my batteries.

As Scarlett O'Hara said in 'Gone with the Wind', Tomorrow is anoither day....

Hopem you feel stronger soon.

NualaBuala

Thank you Rosanna, that's a really thoughtful post. I'm so sorry for what you have gone through but I admire how well you seem to be coping.

My physio is also young and enthusiastic! I've become less and less trusting of medical professionals because following their guidance has harmed me so much in the past - and that's not even getting into problems my late Mum and other people I know have had. I figure the responsibility lies with me to take care of myself so I can't place blind trust in what they advise.

Another thing you said really resonated with me - I've noticed that when I talk to people, they always ask "what are you doing?". Since the answer to that these days is "Not very much!" I've come to resent it. Also, since I've started meditating I've realised that most "doing" is just a distraction from "being". So I am doing very well at the being but nobody asks about that lol!

Edit: I meant to say congrats on your weight loss, you are doing brilliantly!

Rosanna79

Nuala,
You're so right about the harm some professionals can do with their directions. I often find they're not really listening to what a paetient is saying. There's an almost dismissive way of hearing what you're telling them.

I've lost count of the times my poor old mother who like me was horrendously atopic i.e got allergies and had increasingly worsening asthmawasn't listened to.

She was forever getting reactions to whatever was prescribed and would get so angry and fed up with the suffering these medications caused she'd be forever flushing them down the loo!

I've had skin allergies from the age of 5 and the complications that can cause are amazing. No matter what adhesive is put my way hypoallergenic or not I react to it. The look of disbelief on doctors' faces and their insistence I try something that ends up with literally weeks of unpleasant discomfort. I no longer allow them not to listen.

When I had major surgery some years ago at a London teaching hospital I told them which dressing they were to use with the rider I'd take responsibility for it. Owt else and I'd sue. You better believe they did as asked!

Yes it does help that I'm a health professional, albeit retired now. I've also spent a lot of my H/V career fighting young mum's corners where a dismissive GP wouldn't listen to them. H/Vs are trained to be gobby bits of work and when you listen to what your mums are telling you it's possible to make a difference. That's the one thing I miss from having to retire.

I've nothing against Doctors as such. Mine is excellent. I've also told him before now that people don't just get health knowledge from doctors and niurses. There's also the collective family health knowledge we all tap into.

Take flu jabs . My family has never 'done' them- we find problems with them .. On the only two occasions I've had one 40 years apart I've been awfully ill. Doc says coincidence. Anecdotal or otherwise I won't go there again. Letters from the surgery re that go through my shredder. Friends on the other hand swear by them.

We're all so individual. the emphasis needs to be working with each individual from where they're at... at least I think so.

As for the weight loss didn't really have a choice. For every lb I was overweight my poor knees were having the effect of 10lb pressure. When you're facing the possibility of life in a wheelchair it's really a no brainer. So instead of heading over to W££W--chers this time I asked to be referred to a dietitian.

It was a change of mindset from dieting to a healthy lifestyle from now on. For me it works, but I find it necessary to keep a permanent food /exercise diary when iI can note down any other significant symptoms. Helps me to stay in the driving seat I guess.

Another annoying thing can be when folk ask how you are and in England at least one is expected to say 'Fine Thanks'. After a particularly bad bout of 'flu in the eighties I took took saying, 'Lousy thanks How are you?'!! It's a funny way of dealing with feeling
like cr*p but if they're really interested they'll ask...

On that philosophical note I'll wish you great craic for the day and better head off to turn yet another 1kg of green tomatoes from my garden into yet more chutney for Christmas.....

parsonswife8

Good morning everyone

Had an email from Lidl. They will have winter clothing for kids aged 1 to 6 from Next Monday, 8th.

http://www.lidl.co.uk/cps/rde/xchg/lidl_uk/hs.xsl/index_15178.htm

Among them, thermal tights, for £1.49.

mama67

lauren_1 wrote: »

I have found digger and tractor tights on ebay!

Ds was in tights until he was about 3 then migrated on to some thermal leggings i found in the asda sale last year but not going to be paying the prices they want this year, ex OH used to throw a fit even when ds was a baby about tights and 'making him gay' blah blah blah luckily current OH couldn't give a toss and quite often moonlights as a cross dressing PJ bottom thief!!!!! :rotfl: seriously he would even nab my fluffy pink dressing gown if i leave it unattended.

Baby has some stripey tights already

My DH wears my "old" (as in can't wear them to be seen in) leggings under his work trousers in the winter.

gailey_2

greent wrote: »

DS2 is barely a D and has always had to have the little boots rather than shoes. DS1, on the other hand is the opposite and is an 'H' fitting


gailey - if YOU write the cheque guarantee details on the reverse of a cheque it doesn't guarantee it - the payee should write them on. When I worked at Barclays I'd often return 'guaranteed' cheques to places like catalogues, councils etc - you knew that they hadn't been guaranteed in accordance with the 'rules' We'd also cheque handwriting/ pen used etc

Do you mean the council is the payee? as baffled as cheque last week went through fine.

got letter saying council one had been returned

then got letter saying they paid 24pounds swimming so wondered why barclays being so selctive as within reserve limit.
I paid 880 cheque into barclays last week but that dont clear until thur.
Whats bugging me about council is they taking ages to cash cheque even. guess it goes from school to lea.
Will have to pay them cash from now ion even though school prefer cheques as more secure as each time it bounces they charging me.

Lindyloo thanks for tip no nettos here.

Still not sure what to do with milk dated 1st nov got 1 in fridge think it be ok for today and put other one in freezer.
Thats only thing about milk from farmfoods limited dates and try stock up as its quite far from us plus think we getting through less milk recently as im not drinking coffee or eating cereal.

I only iron hubbys clothes because hes hopeless at it.:eek:
But got annoyed as I had ironed the wrong trousers so made him iron his own at 6.30this morning as had kids to deal with.

The pta meeting last night not as bad as I thourght.
Quite afew events coming up so can volunteer for a few but not all.
started writing everybodys schedule in my dodo diary again as got memory like a sieve.

On house tidying mission this morning as hubbys grumpy never mind fact im sick every day, not sleeping and generally feeling rough with 2kids.

Hubbys got interveiw today in wales for job hes not sure he wants.
Plus good news got call from one he wanted for long awaited interveiw next friday im nervous for him as know its right job for him.

making sausage caserole from scratch later as run out of packet mix thinking just stock leeks, suasages, pepper, salt, herbs and worster sauce in casserole dish for an hour or so.

Also making quiches as eggs have to be used up and have lots of quorn bol leftover lastnight will give to kids for easy dinner.

My mate babysat last night and brought over some potatos think she thourght I was mad as seemed so happy but they come in useful.
Starting to really appreciate donated produce and have tried to spread the love my giving some of our garden treats away too.

need to hoover but babys fallen asleep in buggy on school run dont want to wake her she was up at 6am this morning but blame hubby hes like a small elephant and shes a light sleeper.

Cut eldests sandwiches into stars this morning in hope she might eat them!really need to make her lunch more exiting as shes not eating much.

Might try experimenting with mini pizzas later.

right off to clean dreaded bathroom, got nappies in wash, dishes soaking in sink, taken reclying out seems neverending thats what hubby dont understand as fast as I tidy kids destroy.

Hope everyones having good day, wrap up warm as quite nippy, windy here and bit cloudy.

grandma247

Rosanna your comments about many of those things are so familiar. We had a doctor who was very good but he retired recently. He used to say a patient with a long term illness was their own expert because they are the ones suffering and they tend to do lots of research so often know more than the doctor about that particular illness.

You may have had the same flu I had in the eighties. A lot of people died. I was ill for 7 weeks and my skin turned grey from lack of oxygen. I could not stand the fire on even though it was cold so if the rest of the family had to have it on I sat outside in a blanket. I felt as though the fire was removing the oxygen from the air.

I have asthma but do not have the jab after feeling ill when I did try it. Instead I try to keep as healthy as possible and my constant mantra to the whole family is "Wash your hands!" I am sure this helps the most. I do not use chemical sprays and cleaners in the house and the lower floors are laminate. The bedrooms have carpet which I clean often. I only use a reliever rarely, usually if I go somewhere and they have used chemical sprays etc.

My youngest daughter had excema and reacted badly to plasters even micropore and I also react to that. Nurses are often amazed when I tell them. What do they think is on them? You can be allergic to almost anything.

I am avoiding going to the doctors with my arthritis and am doing things to relieve the pain myself including taking more cod liver oil etc. I stopped taking it a while back because I thought it was causing the breakouts on my face but after a few months I realised it was hormonal. It will take a while for it to become effective, Up to three months. It is beginning to work as the inflamed feeling has almost gone. I cannot take the meds for arthritis because they are mostly based on aspirin or ibuprofen and I can only take those for a maximum of two weeks before my stomach and my sinuses rebel. Ibuprofen has other unwanted side effects too. It is not cheap to do it my way but the benefits are long term

mardatha

I listen politely to the doc and then go home and decide whether to do/take what she says, or not. Nuala - I take a 15 min walk IF I'm not feeling knackered. Schedules look great on paper but ME doesnt seem to be able to read. I need to lose a stone, but I already eat less than a budgie and its just not coming off. I dont move enough to burn it off I think, although I potter around the house its not strenuous enough to burn calories. Lost appetite anyway, I dont get hungry now.
I wont have the flu jab either, I had one years ago when I was nursing and it made all of us ill LOL