The (not so old) Crocks Cafe -Part 2

SingleSue

Well, we dodged the hospital admission again. Youngest's peak flows are more in the normal range now and only slightly below his normal and he seems to be over the worst and on the road to recovery.

Phew!

Indie_Kid

That's brilliant, Sue!

formaldehyde_perfume

I now have a big toe the size of a golf ball thanks to one rather large, old style computer monitor and am feeling quite sorry for myself

LameWolf

formaldehyde_perfume wrote: »

I now have a big toe the size of a golf ball thanks to one rather large, old style computer monitor and am feeling quite sorry for myself

Oh no, FP what've you been doing? You weren't trying to move the monitor by yourself, were you? Do you need to get it x-rayed do you think? (The toe, not the monitor).

Indie_Kid

Hope you feel better soon, FP.

I have another appointment with the neurologist next week. I am not looking forward to being pulled around again.

SingleSue

I have my first appointment with Rheumatology tomorrow, can anyone give any insight on what happens?

I've never seen them before...and it is making me rather anxious (being anxious over silly things is not abnormal for me by the way)

needing-help

Hi everyone and hope you are all not to bad.
FP Hope your toe feels better soon.

I know I dont post here often but I'm being cheeky and asking for advice:o

SingleSue I noticed in your sig that your son has elhers-Danlos, My GP suspects my 7yr old daughter may have it. I know nothing about it (I had to get him to write it down cos I thought he said Ella Davros:rotfl:)
I don't like gooling medical things as they always seem to make things out to be worse than they are.

Would you mind if I asked you some things either on here or by pm? Don't worry if not. Thank you

Oh and good luck tomorrow x

LameWolf

SingleSue best of luck; I can't really tell you what to expect, not knowing who you'll be seeing. If it gives you any insight at all, the lady I usually see is great, does minimal prodding, and is very considerate of the fact that I'm needle phobic (I have to have blood tests far too often for my liking) but the bloke I saw the time before last was horrid, positively gloated over making me have blood drawn, and I've asked that I don't ever get assigned to him again.

You'll be fine - I usually make a wee listy of things to mention, which I hand to the rheumy; also take a list of any meds you're currently taking.

formaldehyde_perfume

LameWolf wrote: »

Oh no, FP what've you been doing? You weren't trying to move the monitor by yourself, were you? Do you need to get it x-rayed do you think? (The toe, not the monitor).

Yes, I was trying to move it on my own, stupidly. Sometimes I get fed up of not being able to do normal things, the things I used to do, and try and do them anyway. Bad move. I don't think it's broken as I can walk on it pretty fine and it doesn't really hurt today, it's just huge.

Thank you to everyone for your well wishes

I did achieve something though, I am now able to get in to the spare room to sort through all my junk for moving out, plus i found all my old CDs which is good as my very expensive laptop broke before Xmas and is probably going to need a new hard drive (thus lose all my data) but luckily it's still in it's apple care warranty so it won't cost me a penny.

Trialia

needing-help wrote: »

SingleSue I noticed in your sig that your son has elhers-Danlos, My GP suspects my 7yr old daughter may have it. I know nothing about it (I had to get him to write it down cos I thought he said Ella Davros:rotfl:)
I don't like gooling medical things as they always seem to make things out to be worse than they are.

For what it's worth, I have Ehlers-Danlos as well; type 3. I've been being kicked by it (progressively more) since I was about the age your daughter is now.

Do you know what type your GP thinks she may have? Hypermobility type (type 3) is the most common (about 1 in 5,000 people).

If Sue's not around or doesn't have the spoons, I'm happy to answer questions about it by PM, I don't mind.