The (not so old) Crocks Cafe -Part 2

TrixieB

Mupette wrote: »

really hate feeling like this, i can't think straight, can't focus.....

plus trying to find a job, and i sit here and wonder how on earth will i cope

Am also halfheartedly job hunting but it's hard when you know you will struggle for whatever reason to cope and then start thinking nobody will take a chance on an ill/disabled/etc person anyway.

Brassed off, not on your particular meds but I know when mine have changed or dose upped/down it takes a good week or so to settle into it and it can really rough you about in particular when my sleepers were changed, for a good few days they maked me supercharged almost like have had 6 strong coffees and find it impossible to relax and drop off.

FP - I've not had a decent night's sleep since i was very naughty and got drunk and still took my tablets, totally not recommending that at all but I was desperate last few days have had appointments to go to and not been taking my sleepers to make sure am up and bright. And tomorrow have a 120mile round trip to see my consultant so can't take tonight either

Bright side of today - got taken out for lunch

Careful_with_that_Axe

:wave:
Hi old friends and new. Not been around for ages as life been a bit hectic.
To give hope to those with the struggle still ahead of them, I got my ESA Support Group without a medical :j. Major relief.

:beer:

mcculloch29

Good for you Axe!
Job hunters, do keep going, I've been there, done that and got T shirt. As I've said before, I work from home now and it's wonderful.

I can choose my hours more or less, though sometimes I have to make calls at pre-set times.
LW, hope you are enjoying /did enjoy your break. What a brilliant week to pick.
Those in pain - hugs. FP - if you are bored, no need to pay for TV if you have a decent wi-fi connection - use iPlayer.
Adjustable beds are fantastic. Mine is the best thing I bought this year. I do recommend satin sheets if you have problems rolling over and moving around in bed. They aren't expensive - Primark do full bed sets very reasonably
Back to work!

TrixieB

Satin sheets! you genius!!

SingleSue

Eldest son completely overdid things at a special event in our town on Wednesday (he was helping in the running of one of the things connected to it), so much so that yesterday morning I received a phone call from the school to come and pick him up.

He looked awful, could barely walk (the walk cross site from the other school had been the last straw for his body - the 6th form is based over two high schools and they walk between them) and could barely keep his eyes open for drowsiness/dizziness and that school took one look at him and told him he was going home before he did even more damage (they know his medical history inside out). When I got him home, he went to bed and didn't wake up for 10 hours...and even then was still completely exhausted.

He is a little better today but walking is still a problem as the constant dislocating of his knees on the walk over between the sites has obviously left some damage (more so than usual - dislocating is not unusual but it was all the time yesterday) and he is still quite washed out and exhausted.

One day he will learn that he cannot push his body to extremes like he did, EDS and POTS does not allow for that....but then, I haven't learnt either, so who am I to talk!

TrixieB

SingleSue wrote: »

but then, I haven't learnt either, so who am I to talk!

Don't think anyone ever "learns", it's called hope I think

Trialia

Sue, IKWYM. I did it to myself yesterday... convention in London and while I was in a wheelchair for the majority of the day I was still sore all over and falling asleep on my feet by the time I finally got home. And then I still had to take off the green make-up before I could go to bed.

TrixieB

green makeup??

Trialia

TrixieB wrote: »

green makeup??

I usually costume as Elphaba, from Wicked. (Otherwise known as the Wicked Witch of the West.) There's a picture somewhere back in the thread...

TrixieB

ohhhhhh! cool