The (not so old) Crocks Cafe -Part 2

Jojo_the_Tightfisted

SingleSue wrote: »

Thanks Jojo, you sounded just like my eldest son there!

I am more and more coming round to that way of thinking but something still holds me back...

[shrugs] What can I say? He knows you and says the same, so if random interweb people and your own son agree, there is a good chance we may be on to something.

If you manage without the money, then how much better will your life be with the money to allow for the problems? And unless you advertise your medical and financial details to all and sundry, nobody needs know whether you claim benefit or not. Even if they do, most reports are dismissed as they are found to be inaccurate. On the forms, you tell the truth and say that x happens every day, y happens 2-3 times a week, you are in pain all the time but the intensity varies, etc, etc, so they make the decision based upon what it is really like, not how you try and convince yourself it is like. You try stuff, if it works, all well and good, if it doesn't, then don't do it again. Don't let fear hold you back from trying.


HMS/EDS is crap. So are RA, Bipolar, MS, Fibro and a zillion other things. If someone has one, some or all of the above, then, just as they have conker brown hair and freckles like on a bird's egg or a dimple on their chin, they have something that gives them particular needs. Pretending you're size 10 when your bum is roughly the size of Belgium is about as effective as claiming those needs don't exist when they do.


I don't give a monkeys whether other people think I'm a scrounger. I will not apologise for being born with medical issues. I will not apologise for being imperfect. I certainly won't apologise for being entitled to claim additional money to assist in dealing with my difficulties.

If they take away the DLA on this renewal (unlikely, but all bets are off with this government treating disability as a moral failing), then I shall have to get a job. Not convinced how I'll do it - probably with the assistance of copious amounts of drugs - and I'll most likely be fired fairly regularly - but I'll have to cope. It won't stop me appealing against the decision though as the original conditions won't go away just because I or a twit from ATOS/DWP stick two fingers in ears and sing 'la-la-la I can't hear you'.


My biggest 'issue' with myself is

Ok

Gonna tell you guys

I have bipolar. Been 5 years now.

I'm actually in my first ever Major Depressive Episode at the moment. Had to be escorted into the doctors with the boyfriend holding my hand and talking to the doctor for me.

However, feeling weird about announcing it to anyone publicly doesn't mean I had any problems with putting it on my DLA form, especially as the income received as a result goes towards my music. The music puts me in contact with people who are far more likely to have bipolar or not find me strange/offputting. The music gives me a few minutes where I feel totally at peace with myself and everything else and basically gives me a reason to keep well. So it is worth every penny and worth all the meh feelings at seeing it written down on my forms how I had no idea I was ill until he was telling the GP I had been for about 3 months.


I have crappy conditions which someone has recognised create additional needs. These needs attract financial assistance. So I won't apologise for having the conditions, the needs or the financial assistance.


Balls to them who criticise.

mcculloch29

Sue, I am going to add my random voice. I read your post on your struggles on getting out of bed and thought 'TG I'm not as bad as that' ... and I get higher rate mobility.

I am lucky, I work from home mostly, but my bus pass makes my work in the community economically viable.

With the extra money I've bought an adjustable chair, adjustable bed (and the new bedding required for it) and all sorts of little gizmos to make my life easier.
People in the community around me have seen my mobility decrease as arthritis and the complications of my hemiplegia took hold and disabled me. I didn't claim until walking was very painful and difficult, which was quite right, in my case. I get HRM because I am virtually unable to walk.

Get that claim in. Life is difficult enough, without turning down that which would make it easier.

Erme

LameWolf wrote: »

Hello everyone; I hope all are having as good a day as possible today.

McCulloch thanks for being so interested.... I could spout for ages about dogs, I love 'em to bits! I'm sure I'd have adored Holly.:o

Beadle aww, sounds like a very stressful visit, (((gentle hug)))

LadyM Ooh, folding walking aid... good move. I have a couple of folding sticks I use when I'm on the scooter, as they fold up neatly into the basket on the front. I need them for when I have to get off and "scoop the poop":D

Needing_help you go ahead and post, sweetie. That's what the thread is for. We may not be able to offer practical help, but we're good at listening and empathising.


Welcome! Don't read all 65 pages - we'll have posted another 65 by the time you finish:rotfl: - just hop in!

We have all sorts here - I'm Pagan myself - so everyone who is happy to "live and let live" is more than welcome.

I understand where you're coming from - I got hounded off a lupus support site myself a few years back.:cool:

Anyways - I'm running late as usual, so must go and do some work in RL now.....

Laters, all.:hello:

Okay

Trialia wrote: »

*raises hand* The gay one here is also a Unitarian, so it goes with my faith with no trouble, so I don't mind how it goes with anyone else's so long as they don't harass me about it. On most forums the signature line would be to keep me from being bugged by guys hitting on me, which happens a lot until they find out I'm not interested in men that way, so I'm sort of... pre-empting any of that? :P Not that it would happen on this thread, mostly women here.

Oh, stiff. Gotta love first thing in the morning after a rainstorm, eh? My carer is late again, since she had a hospital appointment yesterday it makes me worry about her... I want a thunderstorm to come, sod the rain, a change in the air pressure would get rid of this thundering headache. Anyone else stuck on the weather right now?

Och so long as that's cleared up Trialia... I got hounded for complaining about someone on the frugal board taking the Lord's name in vain. It's a very serious thing in my book. Absolutely hounded!!! I also got hounded by the board mentor (whose now left - not because of me but manipulating it so it looks like me) for stating to her that my frugality pays for my illness...

This board looks lovely and refreshing and with regards the other 65 pages...would only take me a few hours :rotfl:...Nothing else would get done but hey ho

I was so tired yesterday. I reduced the haloperidol on Sabbath (Sunday) and didn't sleep for a few nights so this am I'm up about normal time (5am - normally it's 6am) and crashed again @ 7.30am. Didn't even get my quiet time done :eek:

Therapy went well. I told him I was a stickler for morning routine (takes about 2 hours but there's a lot to fit in) but less so for evening. Morning routine has to be done every morning...evening routine is far more flexible and less so...Like last night I didn't get my reading done but hey ho..

I've given up on the small things thread for today. I still have chores to do from Monday :eek:.....

So yeah does anyone mind if I take up perch as MSE's resident zombie today :A....Also I need to get down to Hobbycraft for cheap double sided for card making today but it's COLD......:eek:...

Blessings...


E

Trialia

Jojo, are you going to join us in the Bipolar support thread now? *squishes*

LadyMorticia

Got a letter from DWP this morning and was dreading the fact that it might be the letter about the transition to ESA.:eek:

It wasn't though. It was a letter to DWP to tell me about the DLA rate changes. I should have known.:o DLA always address me as my full name. IS just use my initial and last name.:o

The_Dragon

juno wrote: »

Does anyone else ttake 75mcg levotyroxine? If so, can you take it as 1 tablet or do you have to take 2? I've recently moved up to this dose and my doctor prescribed me 25mcg to take with my current 50mcg that I was mid-packet, but I forgot to ask if this is forever or if I can request just one next time.

Levothyroxine comes in 25mg, 50mg and 100mg I believe (I'm currently on 125mg and it looks as though it will be increased again) so you may be on one or more tablets at any point in time

juno

The_Dragon wrote: »

Levothyroxine comes in 25mg, 50mg and 100mg I believe (I'm currently on 125mg and it looks as though it will be increased again) so you may be on one or more tablets at any point in time

That sucks I take so many tablets that one less wouldn't actually make a difference but I'd still prefer it.

Jojo_the_Tightfisted

Trialia wrote: »

Jojo, are you going to join us in the Bipolar support thread now? *squishes*

I think I might just do that, thanks Trialia. [gentle squishy hugs back]

LameWolf

Erme wrote: »

So yeah does anyone mind if I take up perch as MSE's resident zombie today :A....

*Budges up to make room for Erme on the zombie perch*:D

Needing-help ooh, that sounds nasty for your DD; not something I really know anything about, but Trialia's post sounds sensible to me.

SingleSue wot Jojo said, with bells on! Get that paperwork in! You know how much difference a Blue Badge would make - for your boys' sake, please apply for that, at the very least.

Juno I used to have 1 x 300mg moclobemide tablet, twice daily; they've stopped making that strength, so now it's 2 x 150mg twice daily. Darned nuisance, but nowt I can do about it.

*Has forgotten what else she was going to say.....* *rolleyes*

Oh yeah, Jojo I understand where you're coming from with your music - much the same as my canine friends do for me, methinks.:beer:

OK, I give up, my brain's gone on strike, so I'll love you and leave you for now, and see if another cup of coffee jump-starts the stoopid thing.:D

juno

LameWolf wrote: »

Juno I used to have 1 x 300mg moclobemide tablet, twice daily; they've stopped making that strength, so now it's 2 x 150mg twice daily. Darned nuisance, but nowt I can do about it.

Is that its real name?! It sounds like an amazing name for a drug.