The (not so old) Crocks Cafe -Part 2

formaldehyde_perfume

I have my wheelchair assessment on wednesday. I'm really nervous, not only about the whole assessment but about being a wheelchair user. I have a mobility scooter which is great but is quite limiting for the things I want to be able to do, like for instance I want to get to the bus stop under my own steam, get on the bus, go to another town, go round town, and come home again. It seems like such a simple thing but to be able to do it on my own would be such an amazing feeling (in this area mobility scooters are accepted on a discressionary basis by the driver and they're one every 2 hours during the day!) and especially as I'm due to be moving in to my own home soon, I need to know I'm able to do these things for myself.

I am hoping to get an electric wheelchair and a manual one but I don't know what is available. I would need an electric one for myself as there's no way I can push myself any distance, although I am lucky in that I think I'd probably be able to move myself round to face the right direction etc if it was a good flat surface. The reason I want a manual one as well is that I want the option of being able to go somewhere for the day, even when I can't manage it on crutches/sticks.. My family (excluding my mum, she's fab) make me feel like I'm such an inconveniece because it takes a while and someone has to be quite fit to take my scooter apart, put it in the boot, and take it out and assemble it again and my dad has even damaged it because he was so stressed out and resentful about having to do it that he wasn't careful; whereas a manual wheelchair is simple in comparison. I imagine an electric wheelchair is just as complicated as a scooter. I love to go to the beach in the summer, especially now I have my dog, but just the thought of anyone accept my mum taking me fills me with dread because she is the only one I know won't make me feel bad about it. Sad but true.

Anyway, that's my rant over.

mcculloch29

FP, sorry about the job, clearly the vibes are for your self employment. The interview itself will have been great experience.

I am just about to have a blitz at the ironing - was so tempted to go and buy clothes today - clothes I don't need. I have a wardrobe full except half of them are in the ironing.
But I've also got a steam - generator iron. Gotta get moving - wishing you luck with your tidying, FP.

Sue, woo-hoo, great to hear of a 'win', hope things ease for your parents now.

I always use a backpack when out and about LW -my wheelchair using mate does too - love the fact that my hands are free.

Right... where's that ironing....???

LameWolf

((((((FP)))))) It is hard at first to accept being a "wheelchair user", I know. I prevaricated for ages before I got mine, but trust me, it's the best thing I could've done.

We can now go out to places; even a stroll down by the canal was impossible before. I'm lucky, Mr LW has never had a problem with helping me, so I'm sorry that your dad was resentful.:(

I can't help with the assessment nerves I'm afraid - I bypassed SS, and bought my own, privately, from the mobility shop in Newport Pagnell. ;)I refuse to be treated as a number, and told I can't have what I know I need - and at my age, (er..... old.... ) and with no dependents, I can please myself how I spend my DLA. *gets off soapbox*:D Also, I have severe social phobia, and the notion of a stranger assessing me was rather more than I could handle - I hope this isn't the case for you, and that you'll have an easier time of it.:o

As you'll have seen from my previous post, I refer to it as the Wolfmobile, or my chariot. I also joke about putting knives on the wheels, as per Boudicca (anyone who's been in Central Milton Keynes on a busy Saturday will understand....):D Oh, and I have butterfly stickers all over the place on it, too!

Try not to worry; yes, I know that's easy for me to say.:o All you can do is state your case, and see what they can offer you. Hopefully someone who's had dealings with SS will be along presently.:o

Let us know how it goes, though; and just think of it as being your method of getting around, because walking doesn't quite cut it for you.;)

Hey, I'm not the best at the putting-the-words-together-and-making-sense thing, but I hope you can take a bit of courage from what I've said.:)

Ooh, just a final thought - we went for one that you can take the wheels off of. Normally, they stay on, as it fits behind the front seats in our Honda Jazz, if we tip the back seats up. If we need the back seat though, (f'r instance if we're taking Mr LW's pal to the pub *rolleyes*) we have to put it in the boot, and removeable wheels make this a whole heap easier.:)

formaldehyde_perfume

LameWolf wrote: »

((((((FP)))))) It is hard at first to accept being a "wheelchair user", I know. I prevaricated for ages before I got mine, but trust me, it's the best thing I could've done.

We can now go out to places; even a stroll down by the canal was impossible before. I'm lucky, Mr LW has never had a problem with helping me, so I'm sorry that your dad was resentful.:(

I can't help with the assessment nerves I'm afraid - I bypassed SS, and bought my own, privately, from the mobility shop in Newport Pagnell. ;)I refuse to be treated as a number, and told I can't have what I know I need - and at my age, (er..... old.... ) and with no dependents, I can please myself how I spend my DLA. *gets off soapbox*:D Also, I have severe social phobia, and the notion of a stranger assessing me was rather more than I could handle - I hope this isn't the case for you, and that you'll have an easier time of it.:o

As you'll have seen from my previous post, I refer to it as the Wolfmobile, or my chariot. I also joke about putting knives on the wheels, as per Boudicca (anyone who's been in Central Milton Keynes on a busy Saturday will understand....):D Oh, and I have butterfly stickers all over the place on it, too!

Try not to worry; yes, I know that's easy for me to say.:o All you can do is state your case, and see what they can offer you. Hopefully someone who's had dealings with SS will be along presently.:o

Let us know how it goes, though; and just think of it as being your method of getting around, because walking doesn't quite cut it for you.;)

Hey, I'm not the best at the putting-the-words-together-and-making-sense thing, but I hope you can take a bit of courage from what I've said.:)

Ooh, just a final thought - we went for one that you can take the wheels off of. Normally, they stay on, as it fits behind the front seats in our Honda Jazz, if we tip the back seats up. If we need the back seat though, (f'r instance if we're taking Mr LW's pal to the pub *rolleyes*) we have to put it in the boot, and removeable wheels make this a whole heap easier.:)

I don't think my assessment will be done by social services as it is at the 'rehabilitation clinic' at the nearest big hospital 15 miles away. I do have a level of social phobia (doesn't seem to be as prevelant as yours) but I have also learnt to deal with it especially when it comes to appointments and my health, still haven't dealt so much with actual socialising but I interact with people better.

I am, eventually, having a social services assessment for my bathroom/toilet needs but I'm begining to think that I'll be moved in to a suitable property quicker than they get round to assessing me.. But then I'll still need assessing as I'll have different needs when I live on my own.

The wedding event is on today so I'll ring the shop either later today or tomorrow and see how much interest there was in my jewellery.

I haven't made a start on the tidying yet :rotfl: I've got 4 hours til mum comes home, I'm going to take my time so that I'm not knackered for tomorrow. I've got the TV switch over people coming between 8 and 12 and my dad says he is going to be round at 8 to put new batteries in my scooter so I need to be up early. My scooter has been dying for a while now but yesterday I took it to town and back and it basically limped home, town is only a mile!

Right, the other load of washing has finished so it's time to drag that outside and put it on the airer.

LadyMorticia

Hello everyone.:wave:

I haven't stepped in this thread in so long. My M.E is really getting me down at the moment.

Trialia

*flops*

A friend who happens to be a community mental health support worker helped me re-do DLA forms yesterday. I'd done 90% of the filling-in in PDF format over a few months, just had to finish the rest and fix the changes, but I can't write that much so she wrote the form up for me. Five hours it took, just for that. *faceplant* That just says how much I have to tell them - and that's without including any extra information about EDS, which I am going to do, and consultant letters...

beadle2

admitted to hospital from A&E on 2nd march after severe blood loss (re period ).
had a ultra sound and was told if scan okay would be allowed home.was allowed home and told i would be followed up by hysteroscopy in next few weeks.
.3 weeks later i saw GP re b lood in wee and gp phoned up radiology and was told scan had shown i had a mass 8x9cm on my ovary and I was called by hospital for blood tests

a week later .later i saw diff gp regarding period pain who said
could she complain on my behalf as things didnt look good and I should have been dealt with by now and should not have been discharged,and not good enough that I have to wait until 11th April..
that is tomorrow Im petrified as i have felt better if Im honest

SingleSue

Will be thinking of you Beadle...good luck tomorrow (today now!)

Not much to report here, been a quiet few days with not much going on but with the boys on school holidays, I could get rather stressed rather quickly very soon.

Just hope they understand that their dear old mum can't do the what seems like compulsory visit to the town centre.

Isolus

Hello lovely young crocks!

Just sending love and squishy hugs to all xx

LameWolf

*waves* to everyone.

Beadle thinking of you today.

FP how ironic - Mr LW just phoned the mobility shop and ordered new batteries for my scooter also; we went for a "walk" yesterday afternoon, and limped home under "Mr LW pushing the darn thing" power iyswim.:rotfl: Still, it'll be a good thing to get sorted before I have my next canine guests. We can pick them up Friday, apparently; Mr LW will be working from home and finishing at 14:30, so we can go then, after which we have to do battle in the dreaded Tesco.:eek:

Thankfully, we have a digital thingummy for the TV so don't need to have anything done - otherwise, if we had to have workmen here, it'd have to be on a day Mr LW was home, as I can't cope with having folks in the house when I'm here alone.

SingleSue urrrgghh, I refuse to think of trips to town as compulsory! lol Best of luck.

LadyM hey, long time no see!

Trialia I think those blasted forms should be filed under "cruel and unusual punishment".

Isolus squishy hugs right back atcha!:o