Budget - tougher for DLA claimants

summerof0763

sunnyone wrote: »

Have you been to a pain managment specialist?

There is no need today for people to be in intolerable all the time, I will always be in pain but most of the time its tolerable, my specialist says that pain managment is like diabetes and heart disease in that you can treat the conditions but they cant be cured.



With the right medical help most women can have kids today, my spine is damaged from top to bottom, I have congenital spinal conditions and crush injuries including fractures to my whole lumber region (with the assocated nerve damage along side the boney injuries) but I managed to have a child, it certainly wasnt easy but it was worth it.

My pelvis was broken in 5 places in my accident, that and the spinal damage made getting pregnant, carrying a baby (I have a history of misses) and a c sec birth very difficult, I havnt got any discs between my vertibrae which I was told made a epidural impossible but on the eve of my c sec thay found a gap up between my shoulders (ironically it was there because of my scoliosis:rotfl:) so that I saw my special baby born.

The 8 months that I was pregnant was hell and I spent most of it flat on my back to ease the muscual skeletal pain in my spine and the pain caused by my growing baby on my damaged pelvis, I couldnt take most of the pain killers that I needed to move comfortably but I had learned some relaxation tecniques pre pregnacy and they helped.

Every week you read of miracle babies being born, the smallest woman in the world gave birth (2ft 4" if my memory serves me correctly), the woman who has appeared on TV as half a woman has had two children and women with conditions like heart problems, cystic fibrosis and women with missing limbs like Alison lapper have all had kids with the right medical help and to write off being a mother because of disability is sad to me, many women dont want kids and thats there right but disability preventing motherhood should be a thing of the past in 2010.

thanks sunnyone,i attend pain clinic was at doc today and he has upped some of my painkillers,go for more blood tests tomorrow,so i am praying that something comes from this,been in constant daily pain for months and tbh i could scream from the pain because its constant and wearing me down.

Doom_and_Gloom

sunnyone not every kind of pain can be helped to a level that will mean it is 'treated'. Medication isn't always worth it as it can only take away some of the pain and add on lots of other problems like in my position.

There really are conditions out there that can not be helped pain wise like you think.

Doom_and_Gloom

Oldernotwiser wrote: »

It's a shame more people in your situation don't make the sort of rational decision that you have - for the sake of their children as well as themselves.

Who are you to tell people that are disabled not to have children :mad:?!

If they feel they are up to it and their doctor/specialist believe it is safe/okay to do so it is none of you business. Disabled people can be just as good parents as those that are not disabled. I can't believe how predujice you can across sometimes although I should be used to it by now.

Indie_Kid

Doom_and_Gloom wrote: »

sunnyone not every kind of pain can be helped to a level that will mean it is 'treated'. Medication isn't always worth it as it can only take away some of the pain and add on lots of other problems like in my position.

There really are conditions out there that can not be helped pain wise like you think.

I agree. I had physiotherapy 2 years ago and was always in more after doing the exercises. (I couldn't walk because of the pain) I have now been told that my only option is injections. I do believe there's also an operation; but have no idea how much (if any) this will help.

Doom_and_Gloom

sh1305 wrote: »

I agree. I had physiotherapy 2 years ago and was always in more after doing the exercises. (I couldn't walk because of the pain) I have now been told that my only option is injections. I do believe there's also an operation; but have no idea how much (if any) this will help.

There is an operation they can try to help me - it could end up keeping the pain and my mobility problems the same as it is now but they don't want to do it. The reason they don't want to do it (at least not yet) --> it might not help or it could paralyse me. It's just great having spinal issues...not.

Trialia

Doom_and_Gloom wrote: »

Who are you to tell people that are disabled not to have children :mad:?!

If they feel they are up to it and their doctor/specialist believe it is safe/okay to do so it is none of you business. Disabled people can be just as good parents as those that are not disabled. I can't believe how predujice you can across sometimes although I should be used to it by now.

Don't take this the wrong way, but I can't see why someone whose physical health could be endangered by pregnancy would be insistent on having a biological child. I don't understand why more people don't adopt - there are so many kids who need loving homes, and it's not that different - just ask any happy adoptive parents whether they feel their children are their own or not!

Doom_and_Gloom

Trialia wrote: »

Don't take this the wrong way, but I can't see why someone whose physical health could be endangered by pregnancy would be insistent on having a biological child. I don't understand why more people don't adopt - there are so many kids who need loving homes, and it's not that different - just ask any happy adoptive parents whether they feel their children are their own or not!

Personally I'm not insistant on a biological child. We are going to adopt if we can and we've talked about fostering in the future if that's possible. However I don't think it is up to anyone but the people involved if they feel up to it and the doctory/specialist if they tink it's okay for them to have their own child. Disability can make adoption harder so it can be that a couple have looked into it and been turned down. The rules are very strict for adoption after all. If people get turned down and get told by their doctors/specialist that having children is possible I can see why they would.

By the way we would like to have children of our own before we adopt but if that's not possible that's okay. We just don't know if adoption will be possible. I would be very peeved if I couldn't have my own child(ren) or adopt or even foster!

[Deleted User]

Doom_and_Gloom wrote: »

Who are you to tell people that are disabled not to have children :mad:?!

If they feel they are up to it and their doctor/specialist believe it is safe/okay to do so it is none of you business. Disabled people can be just as good parents as those that are not disabled. I can't believe how predujice you can across sometimes although I should be used to it by now.

I didnt actually read the post that way. Trialia said she barely has the health to take care of herself so has made a rational decision.

That applies equally to non disabled people who are unable to take care of themselves due to other circumstances such as poverty or drugs. They can not feed themselves properly nor pay their bills yet choose to spawn several offspring that sadly so many will end up in care. This group of people also needs to take time and consideration to make a similar decison as Trialia but so many do not

Oh and no I'm not also predjudiced, I am disabled and am due to give birth in the next 11 days! But I did make the decison not to do this until my condition was more manageable so I could take care of a baby and so I was also more financially able to.

cyclonebri1

welshsue wrote: »

Chancellor has just announced that from 2013 all DLA claimants, new and existing, will have to have medicals.
What happens to all the people with mental health issues who have to go through these.... the docs don't recognise it and once again we will have to fight to keep DLA.

I thought he was going to clamp down on incapacity claimants - not a mention of them.

Hitler had to invade Poland to start world war II, :T, congrats, you've started a 3rd with just one post :rotfl::rotfl::rotfl:

pipkin71

sunnyone wrote: »

Have you been to a pain managment specialist?

There is no need today for people to be in intolerable all the time, I will always be in pain but most of the time its tolerable, my specialist says that pain managment is like diabetes and heart disease in that you can treat the conditions but they cant be cured.

Agree, sunnyone.

Conditions can't always be cured, but with the right medication, pain can be controlled.

I have just gone through a bout of intolerable pain again, but changing / increasing meds is bringing it back to a tolerable level.

Pain is a difficult thing to live with, and for anyone who isn't able to control the pain they are in, I would recommend asking for a referral to a pain clinic.

Long term, there is help available so that the pain doesn't rule your life