Budget - tougher for DLA claimants

DX2

ash4becks wrote: »

Prinzessilein's and BCS post aswell got me thinking the being able to hear things is something i have always have, i have the light sensitivity for sure , doc said pain threshold was low , sensitive to touch rights though somethings i just cant stand i live in hoddys and joggers unless iam felling ok then i will put jeans on i put this down to disbriacia OCD and dyslexia does that sound like ASD to you guys

Self diagnosis is a dangerous thing, you really don't want to go down that route.

krisskross

DX2 wrote: »

Self diagnosis is a dangerous thing, you really don't want to go down that route.

This place is a hypochondriacs dream. Even tells you how to fill in DLA forms to hopefully get the required result.

jimbms

elaina79 wrote: »

I am astonished by the attitude of some people on here. I remember what it was like to be healthy and working full time taking everything for granted.
Now I have rheumatoid arthritis and I know that my life will never be that way again. If someone had told me 2 years ago that I would be like this now, I would have laughed in their face.
I don't wish illness or disability on anyone but I would just love for people to experience it for a short while before they judge others.

I wouldn't worry too much I was diagnosed with severe RA several years ago, if you get a decent rheumatologist you may be ok, I started on methotrexate, and don't worry it doesn't have to be injection as someone implied, that worked great only problem had an alergic reaction after 8 months so I went on leflonomide, that worked fine for 6 years but started to ease of last year, now on Azathioprine which so far is fine, althogh in total I take 10 different meds a day I do manage to live quite normal and without much pain, my job can be physical but is no real problem, I cut out all additives in food which helped a great deal, my rheumatoid factor without meds is very high to the extent there is zero joint movement, with it is fine, so don't give up you can live normal, now what really annoyed me was on a recent visit to a consultant I overheard someone say they didnt want to go onto leflonomide because it would mean they would have greater mobility and not be able to claim DLA any more, in that situation they should lose it anyway if they refuse treatment.

Prinzessilein

ash4becks: My hyprersensitivity is just one of a large number of symptoms of a very complex condition that I have. If you think you may have ASD then I would suggest that you go to see your GP. If they agree that ASD is a possibility then ask for a referal to a psychiatrist who specialises in diagnosing ASD in adults. This can take some time. It took months for me to get to see a specialist and then a few more months of seeing him before I got my diagnosis. And I had to have a number of tests (including various blood tests) to rule out other disorders. ASD is not something that can be effectively self-diagnosed on-line!

krisskross: If this site tells people how to fill in forms, then how come so many of us need to go to appeal to get the award we deserve?

ash4becks

Prinzessilein wrote: »

ash4becks: My hyprersensitivity is just one of a large number of symptoms of a very complex condition that I have. If you think you may have ASD then I would suggest that you go to see your GP. If they agree that ASD is a possibility then ask for a referal to a psychiatrist who specialises in diagnosing ASD in adults. This can take some time. It took months for me to get to see a specialist and then a few more months of seeing him before I got my diagnosis. And I had to have a number of tests (including various blood tests) to rule out other disorders. ASD is not something that can be effectively self-diagnosed on-line!

krisskross: If this site tells people how to fill in forms, then how come so many of us need to go to appeal to get the award we deserve?

i would always go down the gp route never self dignose was more asking if that was something you were familiar with yourself, with what i said about was in relation to your condition also

Indie_Kid

I have severe light sensitivity too. I have so far been told there's no cause for it and that it's a result of one of two (not sure which) of my visual impairments.

jennihen

jimbms wrote: »

I wouldn't worry too much I was diagnosed with severe RA several years ago, if you get a decent rheumatologist you may be ok, I started on methotrexate, and don't worry it doesn't have to be injection as someone implied, that worked great only problem had an alergic reaction after 8 months so I went on leflonomide, that worked fine for 6 years but started to ease of last year, now on Azathioprine which so far is fine, althogh in total I take 10 different meds a day I do manage to live quite normal and without much pain, my job can be physical but is no real problem, I cut out all additives in food which helped a great deal, my rheumatoid factor without meds is very high to the extent there is zero joint movement, with it is fine, so don't give up you can live normal, now what really annoyed me was on a recent visit to a consultant I overheard someone say they didnt want to go onto leflonomide because it would mean they would have greater mobility and not be able to claim DLA any more, in that situation they should lose it anyway if they refuse treatment.

Sadly we come across people like this. When I recently told someone that she could lose her money if she refused reasonable treatments, she told me she would tell her GP that the meds had too many side effects for her to take it . . . . Some people have all the answers and a hell of a lot of cheek.
I see fraudalent attempts at claims and DLA being misused on a weekly basis and it is these bottom feeders who make it so much harder for genuine claimants.

Indie_Kid

That's disgusting. There is currently no treatment for either of my sight problems; but I would rather live a normal life and do things that people my own age do, than have extra money due to disability.

krisskross

jimbms wrote: »

I wouldn't worry too much I was diagnosed with severe RA several years ago, if you get a decent rheumatologist you may be ok, I started on methotrexate, and don't worry it doesn't have to be injection as someone implied, .

My husband was on oral methotrexate for 4 years before being converted to injections. It does have many side effects and requires monthly blood tests.

jimbms

sh1305 wrote: »

That's disgusting. There is currently no treatment for either of my sight problems; but I would rather live a normal life and do things that people my own age do, than have extra money due to disability.

That is exactly my point, I get a small amount of DLA due to another very slight problem, but would gladly forego that if it could be treated as my RA is, in a way medical exams may stop people claiming if they refuse treatment but may also be deterimental to genuine ones, what needs to be seriously considered is that genuine claiments may have to fight to keep things for a year or two but if this system does manage to weed out the charaltans then maybe you will find the system means the genuine claiment gets treated better, who knows.