Budget - tougher for DLA claimants

[Deleted User]

sh1305 wrote: »

That's disgusting. There is currently no treatment for either of my sight problems; but I would rather live a normal life and do things that people my own age do, than have extra money due to disability.

I agree. It really is vile if people are refusing treatment so they can get money!

I've undergone brain surgery to try and be rid of epilepsy. Didnt fully work, just changed it. But I'd be happy to lose DLA or any related benefits I might have been entitled to be able to not have seizures. Have no hassles working, be able to drive, not put my baby at risk I could go on but as you can see the benefits of being 'cured' far outweigh any entitlements, to me anyway and I assumed most would feel the same. Sad if some dont.

viktory

Prinzessilein wrote: »

If this site tells people how to fill in forms, then how come so many of us need to go to appeal to get the award we deserve?

Perhaps you don't deserve the award as much as you think you do? (meant in a general kind of way so please don't bombard me with a tedious list of your ailments)

sunnyone

summerof0763 wrote: »

i dont have parents and do not wish to go there with this.
yes am a parent,yes i would take my kids pain anytime if i could.
but this is not a sore tummy or a sprained wrist,this is daily agonising pain,that no medication so far has touched my pain,and to be honest i would not wish it upon anyone,but hey ho i get my dla so why am i complaining

Have you been to a pain managment specialist?

There is no need today for people to be in intolerable all the time, I will always be in pain but most of the time its tolerable, my specialist says that pain managment is like diabetes and heart disease in that you can treat the conditions but they cant be cured.

Trialia wrote: »

I can never get pregnant - would be endangering my life given my spinal damage - but I do wonder whether giving birth would be anything like the pain of having both hips and both shoulders grinding in and out of position for hours on end as they do during my hormone surges! I'm curious, honestly.

With the right medical help most women can have kids today, my spine is damaged from top to bottom, I have congenital spinal conditions and crush injuries including fractures to my whole lumber region (with the assocated nerve damage along side the boney injuries) but I managed to have a child, it certainly wasnt easy but it was worth it.

My pelvis was broken in 5 places in my accident, that and the spinal damage made getting pregnant, carrying a baby (I have a history of misses) and a c sec birth very difficult, I havnt got any discs between my vertibrae which I was told made a epidural impossible but on the eve of my c sec thay found a gap up between my shoulders (ironically it was there because of my scoliosis:rotfl:) so that I saw my special baby born.

The 8 months that I was pregnant was hell and I spent most of it flat on my back to ease the muscual skeletal pain in my spine and the pain caused by my growing baby on my damaged pelvis, I couldnt take most of the pain killers that I needed to move comfortably but I had learned some relaxation tecniques pre pregnacy and they helped.

Every week you read of miracle babies being born, the smallest woman in the world gave birth (2ft 4" if my memory serves me correctly), the woman who has appeared on TV as half a woman has had two children and women with conditions like heart problems, cystic fibrosis and women with missing limbs like Alison lapper have all had kids with the right medical help and to write off being a mother because of disability is sad to me, many women dont want kids and thats there right but disability preventing motherhood should be a thing of the past in 2010.

SingleSue

Oldernotwiser wrote: »

I think that most people have suffered severe pain at some point, even if they are fortunate enough not to be in pain all the time.

I have no children of my own but I'm sure that many parents would take the pain on themselves if that were possible, rather than seeing their child suffer. This would also apply to other close relationships - it's not really a question of sympathy at all.

It's not often I agree with you but on this one I do.

I suffer pain, sometimes severe pain, from my joints (osteo arthritis of lower spine, hips, knees, feet, toes, hands and wrist) but I would take that all the time over seeing one of my boys in pain and not really being able to do anything to take that away.

It is heart rending sometimes.

SingleSue

Prinzessilein wrote: »

I'm another hypersensitive person with ASD!

Last time I saw my specialist I couldn't concentrate until the radio playimng in an adjoining room was turned off - I could hear it (Mum and specialist were barely aware it was on!) and it was too loud for me to concentrate on my specialist!....And despite this I find speech difficult to process. I know the words are English (or one of the other languages I speak fluently). I could define each word accurately. But, I can't work out what they mean when put together!

I am also very sensitive to touch. I can't bear even clothing touching my skin on bad days (!) ....I have a couple of soft jersey items in an extra large size for the sake of 'decency' to wear around the house on these days, and don't go out.

I wear tinted glasses because I am sensitive to light.

My youngest son couldn't do his SATs as he could hear the pencils from other children being used and it was driving him crazy..to him it wasn't just a background noise but a noise like a jackhammer right next to him.

And don't get me started on clothes....new clothes with different labels are an absolute nightmare!:D

Trialia

sunnyone wrote: »

...and to write off being a mother because of disability is sad to me, many women dont want kids and thats there right but disability preventing motherhood should be a thing of the past in 2010.

I appreciate the thought behind your post, but honestly, I'm also childfree by choice, so it doesn't make that much difference to me. Whether or not I could have a biological child of my own, I still would not want to. Not only do I barely have the health to take care of myself most of the time, I think there are too many children in the world who are without homes already. If I ever did want a child, I would try to adopt - though I probably couldn't do that either, given how stringent the process often is about mental and physical health issues.

On the subject of pain management, they can't always help that much. As you say, some conditions can be treated but not cured - but some still can't be treated very well. Particularly if you have a cascade of different ailments that all feed off each other.

For me it's a balancing act - I quickly become habituated to opioid painkillers, and can't take muscle relaxants because they send me into manic episodes, and there are a dozen other medications I have trouble with. Also, I have not met a pain management specialist yet who knows more than the basics about HEDS and can help with that. That's rheumatology's province, and there are only two clinics in the country that deal with HEDS right now - and one of the experts is retiring in September.

Oldernotwiser

Trialia wrote: »

I appreciate the thought behind your post, but honestly, I'm also childfree by choice, so it doesn't make that much difference to me. Whether or not I could have a biological child of my own, I still would not want to. Not only do I barely have the health to take care of myself most of the time, I think there are too many children in the world who are without homes already. If I ever did want a child, I would try to adopt - though I probably couldn't do that either, given how stringent the process often is about mental and physical health issues.
.

It's a shame more people in your situation don't make the sort of rational decision that you have - for the sake of their children as well as themselves.

Prinzessilein

viktory wrote: »

Perhaps you don't deserve the award as much as you think you do? (meant in a general kind of way so please don't bombard me with a tedious list of your ailments)

Don't worry I won't bombard you! (And believe me the list of my ailments irritates me more than it could ever bore you!)

I can't speak for others, but I was initially refused DLA , and on appeal I was given both components indefinitely as they accept my condition is unlikely to ever improve. So, yes, I am confident I deserve my award.

Indie_Kid

viktory wrote: »

Perhaps you don't deserve the award as much as you think you do? (meant in a general kind of way so please don't bombard me with a tedious list of your ailments)

I've personally found that they don't always read the forms properly and some of them I swear make things up as they go along.

krisskross

deleted the post as having calmed down it made me as bad as her