Winter fuel payment petition

Indie_Kid

krisskross wrote: »

I guess none of you on DLA buy Christmas gifts or extra food do you?

The "extra food" I buy is wheat free, which does come out of my DLA. (because I need it due to disability) Christmas presents come out of my other money.

krisskross

sh1305 wrote: »

The "extra food" I buy is wheat free, which does come out of my DLA. (because I need it due to disability) Christmas presents come out of my other money.

I assume you have a wheat intolerance. So what is the disability that this causes?

My husband has an inability to deal with glucose i.e he is an insulin dependent diabetic. Does not make him disabled.

qwertyuiop12345

krisskross wrote: »

I assume you have a wheat intolerance. So what is the disability that this causes?

My husband has an inability to deal with glucose i.e he is an insulin dependent diabetic. Does not make him disabled.

Isn't wheat intolerance most commonly as a result of Coeliac Disease? This is an autoimmune disease that can be very serious and can lead to much the same disabilities as various other autoimmune diseases such as Crohns or Lupus.

krisskross

qwertyuiop12345 wrote: »

Isn't wheat intolerance most commonly as a result of Coeliac Disease? This is an autoimmune disease that can be very serious and can lead to much the same disabilities as various other autoimmune diseases such as Crohns or Lupus.

I don't believe wheat intolerance is due to Coeliac disease. It has an unknown cause and it is estimated to affect about 15% of the population. So a huge number, over 10 million

Indie_Kid

krisskross wrote: »

I assume you have a wheat intolerance. So what is the disability that this causes?

My husband has an inability to deal with glucose i.e he is an insulin dependent diabetic. Does not make him disabled.

It has caused my bowel problems, which can be very disabling.

krisskross

sh1305 wrote: »

It has caused my bowel problems, which can be very disabling.

I always get the impression from your posts that being 'disabled' is how you define yourself. That you wouldn't know who you are if your symptoms went away.

Indie_Kid

krisskross wrote: »

I always get the impression from your posts that being 'disabled' is how you define yourself. That you wouldn't know who you are if your symptoms went away.

Care to elaborate?

mellc

krisskross wrote: »

I don't believe wheat intolerance is due to Coeliac disease. It has an unknown cause and it is estimated to affect about 15% of the population. So a huge number, over 10 million

When i was nursing i looked after many people with coeliac disease and it is an extremly dibilitating disease. and you are totally wrong!
In coeliac disease, gluten causes the immune system to produce antibodies that attack the delicate lining of the bowel, which is responsible for absorbing nutrients and vitamins from food.
If left untreated, coeliac disease can lead to anaemia bone disease and, rarely, some forms of cancer.
Avoiding all food that contains gluten usually results in the improvement, or even disappearance, of damage to the bowel lining. However, the damage will start again if gluten is re-introduced into the diet.
so please get your facts straight!
although what the hell this has to do with WFP i haven't the slightest idea people come on here for a listening ear and hopefully some helpful advice not justify their disability to a stranger. this thread is getting far to personal now and in my view has totally gone off topic.

summerof0763

krisskross wrote: »

I always get the impression from your posts that being 'disabled' is how you define yourself. That you wouldn't know who you are if your symptoms went away.

how would you "define" disability??? be very interested to know as you obviously look down on all of us "disabled" for a variety of reasons best known to yourself

SingleSue

sh1305 wrote: »

The "extra food" I buy is wheat free, which does come out of my DLA. (because I need it due to disability) Christmas presents come out of my other money.

And which is ultra expensive! We used to get some items on prescription (biscuits, bread, pizza bases) for two of my boys but the rest we had to purchase seperately and boy do you notice the difference in price.

Then we could only get bread on prescription but as they hate it so much rarely get it filled. So now, I purchase the gluten free flour etc to make our own, use alternatives for cakes etc (they also have intolerances to milk and soya) and will buy the special biscuits (my attempts were pretty errr....eek ) and spaghetti/pasta.

My middle son doesn't get DLA anymore (I should have fought it but it was a bad time in my life and just didn't have the fight) but his difficulties are pretty much the same (Aspergers, bowel disorder, mild brain damage causing hopeless short term memory and a deficit in emotional control, eek nerves to his bladder and bowel so no warning until it is almost too late and sometimes is, gross food intolerances) so youngests DLA has to stretch to cover both boys and their dietary needs (plus of course all the other stuff).

Christmas certainly does not come out of the DLA.....it's too busy covering everything else connected to the disabilities. In fact, there is a shortfall that has to be made up from the normal money.