Winter fuel payment petition

krisskross

summerof0763 wrote: »

my point exactly kriss kross obviously has no idea how disabling some illnesses can be and is certainly not a"sympathetic" person really do not know why she insists on winding people up find it very distubing that she feels the need to even comment on this board. at end of day this is disability and dosh!!

I have more knowledge of disabling illnesses than you will probably ever have. Both personal and professional.

summerof0763

krisskross wrote: »

My husband also is profoundly deaf. He suffers really badly with uncontrolled rheumatoid arthritis. He has lung damage from working with dust and chemicals. He also has diabetes controlled with insulin. Cataracts on both eyes.

He doesn't consider himself 'disabled' though. Apparently that is for people worse than him. Yes we modify our life to take his problems into account but the only thing we have not been able to do is take a holiday to America and that is only because the insurance cost is prohibitive.

And I will post where I like. You can always put me on 'ignore' if my comments upset you that much.

i did not say they upset me,and needless to say i most certainly never said anything about knowing more than you,quite frankly you dont know how much knowledge i have!!
holiday,what is that? your obviously living "above" your means
just think you need to step back and not be so critical of others

mellc

qwertyuiop12345 wrote: »

Isn't wheat intolerance most commonly as a result of Coeliac Disease? This is an autoimmune disease that can be very serious and can lead to much the same disabilities as various other autoimmune diseases such as Crohns or Lupus.

coeliac disease was brought up in the previous post above, i didn't say that ALL wheat or gluten intolerance was due to coeliac disease, but it is a significant factor in CD, its not nonsense at all as i am sure anyone who has the mis fortune to suffer from it will tell you, but you dismissed it as a bit of IBS which i was pointing out it certainly is not, as you are obviously a very bored housewife perhaps you should spend a little more time researching the subject.
i won't go into the post in which you added you were unable to go to America!! you are on a forum where we all congratulate each other if we go to Tesco's without landing up in bed for three days! get real and get back on subject!

krisskross

summerof0763 wrote: »

i did not say they upset me,and needless to say i most certainly never said anything about knowing more than you,quite frankly you dont know how much knowledge i have!!
holiday,what is that? your obviously living "above" your means
just think you need to step back and not be so critical of others

I am not really critical but I do understand illness and disablement. Heaven knows I have lived with it for years. Still if you guys want to see yourself as 'so disabled you can't live a normal life when you perhaps could if you modified your expectations then that is up to you.

And yes we went on a cruise for Christmas and New year for 3 weeks. I had to get a wheelchair for my husband as his mobility is non existent at the moment and obviously we have to organise his insulin, needles etc. Also organise transport to Southampton from the Midlands but it can be done. Help him with washing and dressing, cut up his food etc. He is my husband, I am happy that we can enjoy our trips away together. Don't think we live above our means, we have no debts.

Before you say anything no DLA here but we do get the winter fuel payment as we are of pensionable age.

krisskross

qwertyuiop12345 wrote: »

Isn't wheat intolerance most commonly as a result of Coeliac Disease? This is an autoimmune disease that can be very serious and can lead to much the same disabilities as various other autoimmune diseases such as Crohns or Lupus.

This is the post that mentioned coeliac disease. Instead of reassuring sufferers of wheat intolerance that the 2 are not necessarily linked the post was made about how coeliac disease can lead to cancer. Irresponsible.

pipkin71

krisskross wrote: »

I am not really critical but I do understand illness and disablement. Heaven knows I have lived with it for years. Still if you guys want to see yourself as 'so disabled you can't live a normal life when you perhaps could if you modified your expectations then that is up to you.

And yes we went on a cruise for Christmas and New year for 3 weeks. I had to get a wheelchair for my husband as his mobility is non existent at the moment and obviously we have to organise his insulin, needles etc. Also organise transport to Southampton from the Midlands but it can be done. Help him with washing and dressing, cut up his food etc. He is my husband, I am happy that we can enjoy our trips away together. Don't think we live above our means, we have no debts.

Before you say anything no DLA here but we do get the winter fuel payment as we are of pensionable age.

Would your husband consider applying for AA again krisskross? I know it's a stressful task, but he may well get it this time, due to everything you do for him.

Hope you had a lovely time, when you went away.

summerof0763

krisskross wrote: »

I am not really critical but I do understand illness and disablement. Heaven knows I have lived with it for years. Still if you guys want to see yourself as 'so disabled you can't live a normal life when you perhaps could if you modified your expectations then that is up to you.

And yes we went on a cruise for Christmas and New year for 3 weeks. I had to get a wheelchair for my husband as his mobility is non existent at the moment and obviously we have to organise his insulin, needles etc. Also organise transport to Southampton from the Midlands but it can be done. Help him with washing and dressing, cut up his food etc. He is my husband, I am happy that we can enjoy our trips away together. Don't think we live above our means, we have no debts.

Before you say anything no DLA here but we do get the winter fuel payment as we are of pensionable age.

ah ha got it you think i am a "sponger" whinging on about poor wee me.
did i say i was "disabled"
did i say i was claiming dla
honestly the way you belittle others is shocking,i take it you most certainly "did not" sign the petiton that this thread is all about???
forgot your not interested in people less fortunate than yourself,because your not disabled,and you cannot claim dla seeing as your a pensioner

krisskross

pipkin71 wrote: »

Would your husband consider applying for AA again krisskross? I know it's a stressful task, but he may well get it this time, due to everything you do for him.

Hope you had a lovely time, when you went away.

No we won't try again. He found the whole thing so depressing. We always try to make light of his problems and work round them so he found it just too much to be writing it all down. And that's no doubt why he didn't get it because we have so many coping mechanisms to deal with his illnesses. If I, a trained nurse, was not around to help him then no doubt things would be different.

Plus I will be honest and say we really don't need the money, it wouldn't make any difference to what we do. I would have been happy about something for mobility issues as that is what costs quite a lot. A cab to our nearest town is £26 return, but AA is only for care needs and I certainly do not expect to be paid to look after my husband of nearly 50 years.

It is nice of you to suggest it though:T

mellc

krisskross wrote: »

This is the post that mentioned coeliac disease. Instead of reassuring sufferers of wheat intolerance that the 2 are not necessarily linked the post was made about how coeliac disease can lead to cancer. Irresponsible.

i will pass on your vast knowledge to the writer in the BMJ journal i am sure they will be very impressed."one recent study found that having coeliac disease increases your risk of getting diffuse large B-cell lymphoma to approximately 3 times that of the average person".
so it is hardly irresponsible pointing out something that anyone with a miniscule of knowledge about the condition would know.

krisskross

mellc wrote: »

i will pass on your vast knowledge to the writer in the BMJ journal i am sure they will be very impressed."one recent study found that having coeliac disease increases your risk of getting diffuse large B-cell lymphoma to approximately 3 times that of the average person".
so it is hardly irresponsible pointing out something that anyone with a miniscule of knowledge about the condition would know.

This was not the issue. The issue was you allowed the non existent link between wheat intolerance and coeliac disease. I am not disputing anything about coeliac disease but it needed emphasizing that wheat intolerance was NOT due to coeliac disease.