Incontinence Service for Children

bufferbetty

JC9297 wrote: »

Bufferbetty, why are you only getting 3 nappies a day if she is in nappies full time,

That is the most that they supply, great eh. When she first started getting them, she was allocated 1 nappy per day, what a joke. I had to really fight to get her the full allocation of three. The nappies she has are really good, not bulky and as absorbant as pampers.

Think it all comes down to budgeting.

kingfisherblue

sh1305, thanks for the link. I haven't heard of Changing Places before. Unsurprisingly, no loo is listed for my town

I'm fortunate that my son prefers to be changed whilst standing up, but I know of other people who have incontinent children that still prefer to lie down to be changed. So I can go into a disabled toilet with my son and change him with relative ease, but it is still very awkward for other parents. Just because it doesn't directly affect me and my son doesn't mean to say it isn't important - I believe that parents of disabled children (and disabled people themselves) need to support each other for accessible facilities and many other things. That's the only way we will change things for everyone, as it is rare for a lone voice to be heard.

Indie_Kid

kingfisherblue wrote: »

sh13Just because it doesn't directly affect me and my son doesn't mean to say it isn't important - I believe that parents of disabled children (and disabled people themselves) need to support each other for accessible facilities and many other things. That's the only way we will change things for everyone, as it is rare for a lone voice to be heard.

I agree. It doesn't affect me either; (even though it has been recommended that I wear pads / nappies - although this would make everything much harder for me) but will support this.

jacq1

Hi I have stumbled on this, after searching fthe internet for help. I live in scotland (so not sure if anyone else on this topic here can give me scottish info). My 12 yr girls has has something happen to a nerve in her spine (no answers at yet as to what even after 1 week in hospital and 5 mir/cat scans) that has casued her to become completely urinary incontinent. She has no feeling at all even when she goes. We are just getting things together after this happening out of the blue, and are now looking for help and advice, noone has even suggested to us that any help for care and for the pads could be available (we have to get her up every night at least twice to change/wash her and the beding- no night time pad so far has worked- suggestions to any good ones - she is very tall 5ft 7 1/2" so would need to be adult size ). Can anyone let us know if any pads are available on the NHS as they are expensive and she changes them every hour (at least) because she has no control they are always damp by them and she is very worried that they will smell some of her friends may realise what is going on. Are we entitiled to claim any other help or is she too old for the help the others on here have mentioned. The only possitive thing to come out of all of this has been how well my girl has coped with this happening to her (although we are only 5 weeks into to this and the doctors think its is permanent, so things may change, and also how good/helpful the school has been about it all. Any help appreciated- thanks

woohoo

I can confirm that different PCTs have different allowance of nappies/pads. I am a nurse who carries out assessments for adults that need them. There is normally a maximum allowance per day (ours is 4) and additional pads/nappies needed can be purchased at cost ( if we provide a form to allow them to be bought from various health centres around the city). We reassess yearly to ensure the prescription is still correct. For the above poster, certainly in our area you would not get enough pads to change hourly! Each pad can absorb a certain volume of urine and changing it when it is not 'full' so to speak, is a patients choice. Not that I necessarily agree with this - if I needed pads I would want to change them more freqeuently I'm sure! However it all comes down to cost. There is only a certain budget and continence supplies are costly. As already mentioned, your health visitor should be able to advise, or probably district nursing/ learning disability nurses for adults.

jacq1

woohoo, does the NHS only provide the big thick kind that the hospitals use? I know that there is no way that she would get enough to change as often as she does, but some would be better than none- also hoping that with time and more confidence she will increase the gap between changes. Also hoping to find out about a pad that will work better for night time at the moment we are using tenna lady (biggest kind) but they are not working for us in the night. We are awaiting a follow up appointmet (she was discharged 3 weeks ago) may be all this will be discussed with us then.

woohoo

Hi,

different PCTs contract with different manufacturers, so it all depends which range your area are using. Well - thats how it works in our area anyway! There are the full range of sizes, thicknesses etc - from very small pads for light urinary incontinence, bigger thinner pads for faeces and up to the large 'nappy' style ones. There are some very absorbant ones for at night. Also worth bearing in mind are the washable bed pads which can save a whole bed wash in the small hours!! HTH

Rachel021967

I've got some useful advice from ERIC. They're an incontinence charity offering advice and products for children and young adults. https://www.eric.org.uk

justlikethat_2

Just to reply to jacq1. My daughter is 9 and has been getting incontinence pads for years now. In Highland the assessment is arranged by a health visitor for pre school or school nurse for older children. These services seem to be 'merging' up here now probably to save money! Contact your school nurse and they will get things organised for you.

mammamia2004

my daughter is nearly 6 and has incontience problems day and night and we see people about this and they discourage them wearing nappies as this can make them lazy( obviously it will prob be different if she had a disability like autism) i just deal with the extra washing. i this is a lot 3-4 lots of bedding a day and 3-4 school uniforms. has her mother i think it is my duty to at least try it this away as i wouldnt like to be wearing nappies all the time. the doctors are still unsure if it late development, and with her drinking more and putting her on a toilting program her bladder my increase in time. surely this is what any monther of a child would like to try 1st.