Incontinence Service for Children

kazzah60

moldy_plates wrote: »

They only give nappies out for children with severe/profound learning disabilities...

what rubbish
my ds had free nappies for night time use due to his toilet training being delayed as a result of his autism
we had the nappies delivered 3 monthly -thye are not as good as pampers but will save you money
your local social services, health authority or health visitor should be able to help you with this
i hope you are also claiming DLA for your son
good luck

longhotbath

Hi Joicybird,
different pct's operate different allowances for childrens pads - the recommendation is from age 3, but in this pct it is age 4, and sheffield is age 5!, and the amounts given differ too.
Talk to the school nurse, who will arrange for the continence service to assess your daughter. they have different types of pads/pullups etc.
If you have any difficulties, make an appointment with your daughters paediatrician who will also support you, but there shouldnt be a problem if it is written into her school plan.
Best wishes, LHB

kingfisherblue

moldy_plates wrote: »

She never mentioned anything did she? I would of thought that would of been vital information to disclose.... Its a matter of fact that some mothers keep their disabled children in nappies for the extra welfare benefits. And no, I'll bet anything She will not get any NHS nappies of the health service fo a four years old child, unless she/he was severly disabled.

Would you like to provide a link?

As for your comment about nappies only being provided for children with severe or profound learning difficulties - what a load of rot! There are children with bowel conditions and no learning difficulty who are entitled to and receive nappies. There was actually a discussion on www.tes.co.uk recently about a child who is bright, but wears nappies due to a bowel condition.

My son, who has Down's syndrome, was born with a rare condition and is doubly incontinent. He has received free nappies and pull ups from the NHS since he was four. We receive a monthly delivery and his continence nurse reviews him periodically.

Incidentally, I would think that most parents of disabled children would prefer their child to be toilet trained if at all possible, as this would make life so much easier for us.

* It can be a real battle to get the nappies and pull ups in the first place
* it can be a further battle to get the right size as the child grows
* constant washing (yes, continence products can and do leak at times!) is just another chore to be added to our daily list
* it can be difficult to find somewhere suitable to change a larger child when you are out
* some NHS trusts do not have a children's continence service and adult services are not really suitable as the staff do not always have the knowledge of child sized products
* other children can be cruel to children who are incontinent - it is a potential cause of bullying
* there can be problems at school - somewhere suitable to change a child, and someone who can change the child. Not all children will be fortunate enough to have 1:1 support
* there are extra appointments to attend - as if we don't attend enough as it is!
* parents also have to put up with ignorance from people such as yourself

I really don't think that many parents would deliberately keep their child in nappies in case they can claim a few pounds extra for the child!

devizes18193

i have a 14 year old in nappies he has autisim . it was organised 1st through the health visitor and now the school nurse

minibits

I know different areas may have different ways of doing things, but we need this service for our son.

Our Health Visitor was the person to instigate the supply in the first place, and we still deal with her when we need to change the size of nappies.

The nappies were delivered by our Area Health Authority, every three months, but this has now been transferred to a private company and we have to place an order when we require more, which is no hardship, but does cut down waste.

skipsmum

my son has nappies delivered. The practice nurse set it up originally. He is 9 and has crohns.

bufferbetty

Hi there, my 4 year old DD has autism and is still in full time nappies, and no i dont keep her in them for benefits etc. She has no bladder control at all, and if not in nappies she wets every where and anywhere. My heath visitor sorted her nappies for her, this was due to the fact, she is a big 4 year old and the size 6 nappies just didnt fit any more. The health visitor submitted the relelvent forms to the incontience team, which she was alocated 3 nappies per day, delivered 2 monthly in size 7. I do have to ring to request the nappies, but this is no problem, its usually an answering machine and i just leave a message to request them.

Although when i approached the health visitor about this, she hadn't a clue how to sort it, but we got there in the end. My DD starts school in september, whether she will still be in nappies or not, then we will have to see.

She very rarely sleeps at night, but she now has a prescription of melatonin which does help, but i can only get her prescription from her consultant.

HTH
XXX

HTH

JC9297

Bufferbetty, why are you only getting 3 nappies a day if she is in nappies full time, do you have to buy the rest? My autistic son got nappies through the Continence Service from age 3-10 and I can't remember now exactly how many we got (he's 17 now) but I guess it worked out at 5-6 a day (more when he had upset stomach from eating soil etc lol) , however many we needed really I just phoned up to order when we were getting low. If you are having to buy them perhaps you can go back to the Health Visitor and ask for an increased allocation. Also don't know about other people but we found when he outgrew Pampers (which we got at first) the quality, fit and absorbancy of some of the nappies were awful and we had to ask to try different brands to find the best fit to minimise leakage. Also some of them were so bulky compared to premium brands like Pampers/Huggies so not very discreet and clothes for kids over 3 are not made for wearing nappies under.

longhotbath

JC9297 wrote: »

Bufferbetty, why are you only getting 3 nappies a day if she is in nappies full time, do you have to buy the rest? My autistic son got nappies through the Continence Service from age 3-10 and I can't remember now exactly how many we got (he's 17 now) but I guess it worked out at 5-6 a day (more when he had upset stomach from eating soil etc lol) , however many we needed really I just phoned up to order when we were getting low. If you are having to buy them perhaps you can go back to the Health Visitor and ask for an increased allocation. Also don't know about other people but we found when he outgrew Pampers (which we got at first) the quality, fit and absorbancy of some of the nappies were awful and we had to ask to try different brands to find the best fit to minimise leakage. Also some of them were so bulky compared to premium brands like Pampers/Huggies so not very discreet and clothes for kids over 3 are not made for wearing nappies under.

Unfortunately, its a service that went down hill about 7 years ago after a big review. Some pcts do only give 3 per day, and some only start at age 5 !! Even to go up a size here takes a 6 page review and takes an hour for a hv to complete. We get 5 a day, and use at least 8!

Indie_Kid

kingfisherblue wrote: »

* it can be difficult to find somewhere suitable to change a larger child when you are out

Have you heard of changing places? http://www.changing-places.org/ They are currently campagning to help with the issue you've mentioned about changing a larger child when out.