child protection arrived at our house, angry with nursery for reporting us.

mountainofdebt

I can understand you not wanting to confine your daughter to a wheelchair but surely there must be situations when it would make situations more easier and more comfortable for both you and your wife as well as your daughter, and she doesn't have to have use it all the time.

jenjade

i think you have to try and be possitive about the referral. What can you get out of it? Not sure if your area have them but a family support worker that pops round weekly to check everything is okay, listens to you and looks for solutions to any problems?

Do you have a children centre near by? they can be amazing at offering help and support.

angelicmary85

Hi,

I couldn't read and run...but I'm not sure what to say.

Have you asked Keira if they were making her walk or were getting annoyed with her?

stolt

thankyou for all the responses, i want to thankyou everyone and respond to everyone but between reading them out to my wife and then responding i'm getting lost where i am

stolt

mountainofdebt wrote: »

I can understand you not wanting to confine your daughter to a wheelchair but surely there must be situations when it would make situations more easier and more comfortable for both you and your wife as well as your daughter, and she doesn't have to have use it all the time.

In these situations if we go down town we just use a pushchair, as i say shes only 3 in december. If/when great ormand street say that they have tried all avenues and that they think a wheelchair would be best, then we would follow there advice without a second thought. We are under dr shen and prof pat woo at great ormand street and form my understanding prof pat woo is the leading consultant in the UK on childhood arthritis.

stolt

jenjade wrote: »

i think you have to try and be possitive about the referral. What can you get out of it? Not sure if your area have them but a family support worker that pops round weekly to check everything is okay, listens to you and looks for solutions to any problems?

Do you have a children centre near by? they can be amazing at offering help and support.

thanks, once we get the DNA results back i think everything will be a bit clearer abut where we go from here, everything is on hold until they come back, apparently there are only 2 dna clinics in the whole of the UK.

McKneff

thanks for your responding to my post.
I am so upset for you, actually i am not upset for you i am upset about your baby having to go through this.
I started with RH when i was about 39, for the first 6 months it just got worse and worse to the point i just didnt want to be in this world, if i hadnt had a very supportive OH and 2 children i would have taken the pills the NHS gave me, the first so called specialist gave me some pill and told me that they would take 3 months to work - idiot. I slept downstairs, on the settee for 10 minutes, woke up in pain, on the floor for 15 minutes. God i wanted to die. i went into hospital for a couple of weeks and had cortisone injections and it was like a miracle, i just couldnt believe that they sorted out the big pain. then of course reality kicks in, they lasted some time, i overdid things because the pain was gone.
but i learned to live with it. Had slow release pills wich i got to admit worked to a major point, gold injections which worked for a number of years painwise but my wrist are deformed, luckily my fingers arent, my knees and ankles are swollen permantly, i can live with that, cover em up with trousers. every drug i took worked for a good while then i think my body just got used to it, but i never got to go back to the initial despair.
Four years agao, my specialist put me on something 4 times a day, then three times a day, then once a day, i cant even remember what they were now.
Once i got down to once a day i kept forgetting to take them because i felt so well, i made a concious effort to see how long it was befor i needed to take a tablet. I havent had an arthritis table since. I do have to take the odd Ibruprofen when i do something silly like paste wall paper and my wrist ends up with a flare up. I suppose what i am trying to say is that there will be a time when this arthritis will settle down and your little girl will live a normal life.

I have just hit sixty, (dont tell anyone else) i have worked full time since i was 15 years old till now and have just started part time since i got my state pension and probably being in work has helped keep joints a bit supple, i suppose i am fitter than lots of people my age (funnily enough) I can still stand, bend over and put the flat of my hands on the floor, (thats without bending my knees, i'll have you know lol) bet even you cant do that, mind i am thin as a rake and 7 .5 stone wet through. My very best wishes to you and yours.
I am trying very hard not to be upset, its not working very much and i have shed a few tears for you but onward and upward eh. attitude is everything.
ni' night.

LondonDiva

Having been involved in child protection cases, I can say that the nursery probably had concerns about the situation and the referral seems to have been a lack of clear communication on both sides.

Like it or not, there are parents who will deny their child simple aids that can address frustrations or issues and it can be almost as bad for the child / staff to deal with as the parent who believes their child is displaying symptoms of every illness in the book.

Understandably you're worried and anxious, but I would remember that at the heart of the referral would have been a lot of discussion and consideration by nursery staff , and they would be motivated only by your daughter's welfare.

Good luck.

stolt

McKneff wrote: »

thanks for your responding to my post.
I am so upset for you, actually i am not upset for you i am upset about your baby having to go through this.
I started with RH when i was about 39, for the first 6 months it just got worse and worse to the point i just didnt want to be in this world, if i hadnt had a very supportive OH and 2 children i would have taken the pills the NHS gave me, the first so called specialist gave me some pill and told me that they would take 3 months to work - idiot. I slept downstairs, on the settee for 10 minutes, woke up in pain, on the floor for 15 minutes. God i wanted to die. i went into hospital for a couple of weeks and had cortisone injections and it was like a miracle, i just couldnt believe that they sorted out the big pain. then of course reality kicks in, they lasted some time, i overdid things because the pain was gone.
but i learned to live with it. Had slow release pills wich i got to admit worked to a major point, gold injections which worked for a number of years painwise but my wrist are deformed, luckily my fingers arent, my knees and ankles are swollen permantly, i can live with that, cover em up with trousers. every drug i took worked for a good while then i think my body just got used to it, but i never got to go back to the initial despair.
Four years agao, my specialist put me on something 4 times a day, then three times a day, then once a day, i cant even remember what they were now.
Once i got down to once a day i kept forgetting to take them because i felt so well, i made a concious effort to see how long it was befor i needed to take a tablet. I havent had an arthritis table since. I do have to take the odd Ibruprofen when i do something silly like paste wall paper and my wrist ends up with a flare up. I suppose what i am trying to say is that there will be a time when this arthritis will settle down and your little girl will live a normal life.

I have just hit sixty, (dont tell anyone else) i have worked full time since i was 15 years old till now and have just started part time since i got my state pension and probably being in work has helped keep joints a bit supple, i suppose i am fitter than lots of people my age (funnily enough) I can still stand, bend over and put the flat of my hands on the floor, (thats without bending my knees, i'll have you know lol) bet even you cant do that, mind i am thin as a rake and 7 .5 stone wet through. My very best wishes to you and yours.
I am trying very hard not to be upset, its not working very much and i have shed a few tears for you but onward and upward eh. attitude is everything.
ni' night.

i'm a 16stone 6ft bloke and i'm welling up. thanks for your kind words, like you say attitude is everything with things like this, very hard to stay positiive and not let affect the whole family. Havent had a family holiday since keira has been born but its something we will do next year without a doubt (i didnt want to learn to inject her) but i guess if we go away then i will have to. I joined artritis angels like a MSN forum and it was a good insight to hear how other people get on with there lives etc (goos inspiration aswell) theres always someone worse off. I was only watching a program the other day where this teenage girl had sulphric acid thrown in her face by a jealous boyfriend and to watch her try to get on with her life was amazing. I don't want this to become the center point of keiras life. I know as she gets older she will understand that she is alittle different and perhaps will stop her from doing certain things (school sports etc, she might be thankful not to be running around a wet windy and cold field in december).

going to bed now, had a week off for diy and i'm not sure if i'm looking forward to going back, quite enjoyed being home with the kids last week. (dont tell them that though):rotfl:

shellsuit

Awww bless your little girl! She might not be able to run and play like other children and she might be in pain sometimes, but 2 things she has that not every other child has, is a fantastic Mummy and Daddy!

I feel so much for your wife, I would be crushed and upset too if I were her, but luckily she has you by her side.

You come across as a wonderful family and I wish you all the best with Keira and the other children.

With regards to the complaint, like someone else has said, good on CP for following up the report, as if they didn't and it was something sinister, they would be in the wrong, but I do think it's appaulling that the nursery have gone behind your back and lied about some things.

I wonder why it took them until Keira stopped going, to make a report?!

Once you feel you can, I would go in and ask why they have lied about medical records as that is not on.

Hope your wife is feeling a bit better soon xx