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The Trials and Tribulations of Trying to Conceive when its just not happening (12m+)

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  • lilymay1
    lilymay1 Posts: 1,597 Forumite
    My HSG was today. I'm a bit shell shocked to be honest as it showed I have two ovaries, but only one fallopian tube and half a uterus (a unicornuate uterus). Apparently it's very rare. It's never showed up in other tests/ scans. I'm gutted. Read up on it on the internet and the chance of miscarrying if pregnant is 60%, I'm 60% more likely to only have one kidney, 5-20% chance of total infertility and if pregnant not likely to carry to term and will 95% have to have a c-section as there is no room for baby to turn so would be breech. Don't see the consultant until May. Don't know if they'll consider me for Clomid as there's no guarantee that when I do ovulate it's from the connected ovary as usually the non-connected ovary is the dominant one and ovulates more frequently. Utterly devastated. I don't know what to do.

    Huge hugs TCD. It's not the same, but I have a bicornuate uterus which, although having 2 sides, has a very large indent in the middle creating a heart-shape. Having any uterine deformity is rare, but it doesn't automatically mean infertile. I too *shouldnt* be able to carry to term as my babies run out of room. This has never been the case for me. My children have always been breech though - for the same reason.

    I can't comment on the kidney, and obviously the lack of one fallopian tube can cause issues, but I had no idea about my uterus until after both my children had been born so its not always going to cause problems. You have one connectes tube and that is all you need.

    I don't know if that has reassured you in any way, but try to stay positive. I know how hard that must be right now. I know women with unicornuate uterus' that have carried children so it is possible.

    Take care and i will be thinking of you.
    14th October 2010
    20th October 2011
    3rd December 2013
  • Thank you everyone. I'm going to ring the hospital tomorrow and ask what the name of my consultant is (I can't remember it for the life of me) and see if he either has any cancellations or if I can see him privately (bye bye honeymoon...).

    I knew something was wrong and I had suspected a blocked tube but nothing like this. I know it's not the end of the world but to know that I will have a 'high risk' pregnancy and my dreams of natural and home births are totally shot.

    At the last appointment my consultant told me that I would be eligible for 2 cycles of IVF if clomid failed but I have no idea if they give clomid in unicornuate cases or if the side that is connected actually ovulates. I suppose I'll have to have more investigations. They didn't mention anything about my kidneys today but I think they were a little surprised themselves at what they saw and they didn't seem very reassuring about my chances of pregnancy.

    I have to go back in tomorrow and one of the women I work with has just had a little girl this weekend. There'll be pictures and everything flying around and I'm not sure how I'll deal with it. Until I know more I can't help but default to worst case scenario as my luck is terrible and I've already bucked the odds in having this so what's to stop all of the bad things happening.

    Thank you everyone though. :)
  • chickpea
    chickpea Posts: 713 Forumite
    Well, happy birthday Lilymay! Congratulations - it's always darkest before the dawn..!

    ++++++++

    Also congrats to Sarah! I've been secretly stalking you on Mumsnet anyway..

    +++++++++

    TCD - Sorry the results were so perplexing/worrying. I don't know anything about the condition you have described, I'm afraid. I hope it doesn't rule out potential IVF, if required.

    I was in similar sort of shock after getting my bad AMH results (3.1, that was back in April 2011), because it was the first time anyone had found anything 'wrong', and the unexplained infertility was no longer unexplained.

    +++++++

    AFM - still lurking. Hoping some serious weightloss might do something, who knows. At any rate, getting insulin levels in check might help (Dukan is low carb.) So 8 weeks in and 25 pounds and 5 BMI points down now, BMI is now 29 (which makes me 'overweight' - hoorah!)

    Good luck everyone..
  • becca0417
    becca0417 Posts: 3,114 Forumite
    I've been Money Tipped!
    TCD it's horrible isn't it. I'm the type that likes to run every possible scenario around my head so if I didn't know, like you, it would kill me.
    Try and sleep tonight and ask to speak to someone tomorrow. I can see no reason why they would make you wait unless they are stacked out with appointments.

    Love to you xxx


    Clomid ladies - anyone get awful headaches??
    First baby due 3/3/14 - Team Yellow! Our little girl born 25/2/14 :D
  • Runnerduck
    Runnerduck Posts: 3,146 Forumite
    I won, I won, I won! I've been Money Tipped!
    teaandcakeordeath, although different i have a bicornate uterus so it is almost split in 2, like lilly i think, i had my boys 17 & 19 years ago, the pregnancys were not that straightforward and 1 was 4 weeks, annd the other 6 weeks early, and both c sections as they were breech, but i only found out about my uterus last year, what i'm saying is you have overys and a small uterus so with plenty of monitoring it should be possible, i hope you get some answers soon x
  • Student_Mrs
    Student_Mrs Posts: 312 Forumite
    Just delurking to say congrats Lilymay! Looking forward to stalking you some more xx

    Hugs and dust xx

    DS born Aug 2012 :)
    POAMAYCDBXMAS 2019-
    #099 Student_Mrs £ 1.080,48 / £ 5.277,35
  • bigzippy
    bigzippy Posts: 4,034 Forumite
    Congratulations lilymay :)


    Sorry to hear about your test results tcd. :( I have nothing helpful to add but couldn't read and not post. Hope you manage to see someone sooner than later :cool:

    :wave: to everyone else
    "I am indelibly stained by hope and longing" - Nuts in May
  • Whattodonow
    Whattodonow Posts: 690 Forumite
    Aaaaaaaaaaa!!!!!!! Congrats lily!!! Soooooo pleased for you!!!!! You got your birthday present!!!!!!!!!! Xxxxxxxx
  • Whattodonow
    Whattodonow Posts: 690 Forumite
    Tcd sorry about your results. I hope you get an earlier appointment xxx

    Becca I had terrible hot flushes sun night/min morning in bed. Had headache all yesterday. Currently on day 9 and took clomid days 2-6.
  • tea_lover
    tea_lover Posts: 8,261 Forumite
    Big hugs TCD xx.
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