PPI forum - non PPI discussion thread

dialysis

Marshallka thinkin of you hun all my love to you and your family xxxxx:smileyhea:smileyhea:smileyhea:smileyhea

busbyh

Di, poem I spoke about-

“KATIE”

The writer of this poem was unable to speak, but was occasionally seen to write. After her death , her hospital locker was emptied and this poem was found.
What do you see nurses, what do you see, are you thinking when you are looking at me
A crabbit old woman, not very wise, Uncertain of habit, with far away eyes.
Who dribbles her food and makes no reply,
When you say in a loud voice, “I do wish you’d try”
Who seems not to notice the things that you do
And forever is losing a stocking or shoe.
Who unresisting or not lets you do as you will
With bathing and feeding, the long day to fill
Is that what you’re thinking, is that what you see,
Then open your eyes nurse, you’re not looking at me
I’ll tell you who I am as I sit here so still, as I use at your bidding, as I sleep at your will.
I’m a small child of ten with a father and mother, brothers and sisters who love one another.
A young girl of sixteen, with wings on her feet
Dreaming of soon a lover she’ll meet
A bride coming twenty, my heart gives a leap, remembering the vows that I promised to keep
At twenty five now, I have young of my own
Who need me to build a secure happy home
A young woman of thirty, my young have grown fast
Bound to each other with ties that should last
At forty my young ones, now grown, will soon be gone
But my man stands beside me to see I don’t mourn
At fifty once more, babies play around my knee
Again we know children, my loved one and me
I look at the future and I shudder with dread
For my young are all busy rearing young of their own.
And I think of the years and the love I have known.
I’m an old woman now and nature is cruel
Tis her jest to make old age look a fool
The body it crumbles, grace and vigour depart There is now a stone where I once had a heart
But inside this old carcass a young girl still dwells, and now and again my battered heart swells
I remember the joys, I remember the pain, and I’m loving and living life over again
I think of the years, all too few, gone too fast.
And accept the stark fact, that nothing can last.
SO OPEN YOUR EYES NURSES, OPEN AND SEE, NOT A CRABBIT OLD WOMAN, LOOK CLOSER. SEE ME.


xxx


As marshallka said, He is still in there somewhere.

busbyh

di3004 wrote: »

Hiya hun
Thanks for this hunni:A.

My dad is 68 now and was diagnosed with dementia just after he turned 60, before that though he suffered with encephalitis which as you know affects the brain, so at first his consultants put it down to this and not dementia.
Yet he has been suffering with illnesses all his life really, with a number of health problems, a huge list so I won't go through them all.......:o, but they seem to think this have been an impact on the dementia.

Dad talks a lot about when he was small and often asks for him mum, she died a few years back now, but he still asks, so a lot of it is about his childhood.

Dad carries his coin tin around with him, not a lot in it, just bits of change, and he says its his wage from the coal pits, as this was his job from the age of 15, before that he was sent to work on farms from the age of 9, after coming in from school, but his dad although his dad was an Army Clerk taken every penny from dad, it was always my dad, and not his brothers, so now dad clings on to his pennies.


He did have a sad upbringing really, it was torture for him, and now he cries when he talks about it, thinking he's that age again.

It can be difficult can it, when they say things out of the question, back last year they had a visitor who was quite obese, dad yelled "Blimey love your so big, are you sure you will fit your A**E on that sofa".......:eek::o, and things like that, then next minute back to himself.

Sorry you have had to go through seeing your mum in law going through this as well hun.

The most difficult part with dad at the moment is with him not sleeping at nights and wandering, where he will just go off, if anyone tried to stop him he would go off on one.
A difficult one again, because he was always a very hardworking outdoor man over the years, so he does not understand what is going on....

Been recently informed as well that a mate of our family age 43 been diagnosed with Picks disease, yet another disease of the brain, she is already in a bad way and in the opposite unit to dad.
She once went out with my brother, many years ago.

Yeah please post up that poem hun, I really don't mind at all, cheers so much.:A XXXX

We also had the worry of the wandering. She disappears from my house one day, this was at the start of the dementia, though with hindsight, the signs were for quite some time, it's actually admitting it that is the hard part:o

At the same time her daughter was suffering from Motor Neurone disease, We were in the N.west and she was down South. There was only me and OH. We were going down South every other week and trying to cope at home with her also. She never did know that her daughter has passed away. It's was Ironic really Mum in law memory had gone but she could get about, my God we couldn't keep her still at one time:eek:and yet her daughter had all her factulties and yet no speech at all and totally immobile. Think the MND has got to be the worse to be honest, to be 100% lucid, it's being trapped in your own body.

Take care Di, and I hope all works out with your dad and they get his meds sorted. If they get the balance right, I feel this will amke a huge difference
xx

di3004

busbyh wrote: »

Di, poem I spoke about-

“KATIE”

The writer of this poem was unable to speak, but was occasionally seen to write. After her death , her hospital locker was emptied and this poem was found.
What do you see nurses, what do you see, are you thinking when you are looking at me
A crabbit old woman, not very wise, Uncertain of habit, with far away eyes.
Who dribbles her food and makes no reply,
When you say in a loud voice, “I do wish you’d try”
Who seems not to notice the things that you do
And forever is losing a stocking or shoe.
Who unresisting or not lets you do as you will
With bathing and feeding, the long day to fill
Is that what you’re thinking, is that what you see,
Then open your eyes nurse, you’re not looking at me
I’ll tell you who I am as I sit here so still, as I use at your bidding, as I sleep at your will.
I’m a small child of ten with a father and mother, brothers and sisters who love one another.
A young girl of sixteen, with wings on her feet
Dreaming of soon a lover she’ll meet
A bride coming twenty, my heart gives a leap, remembering the vows that I promised to keep
At twenty five now, I have young of my own
Who need me to build a secure happy home
A young woman of thirty, my young have grown fast
Bound to each other with ties that should last
At forty my young ones, now grown, will soon be gone
But my man stands beside me to see I don’t mourn
At fifty once more, babies play around my knee
Again we know children, my loved one and me
I look at the future and I shudder with dread
For my young are all busy rearing young of their own.
And I think of the years and the love I have known.
I’m an old woman now and nature is cruel
Tis her jest to make old age look a fool
The body it crumbles, grace and vigour depart There is now a stone where I once had a heart
But inside this old carcass a young girl still dwells, and now and again my battered heart swells
I remember the joys, I remember the pain, and I’m loving and living life over again
I think of the years, all too few, gone too fast.
And accept the stark fact, that nothing can last.
SO OPEN YOUR EYES NURSES, OPEN AND SEE, NOT A CRABBIT OLD WOMAN, LOOK CLOSER. SEE ME.


xxx


As marshallka said, He is still in there somewhere.

Awe hunni, this is so lovely.:A:Athanks so much for posting this, I appreciate this very much.
I did have a lump in my throat reading this but it certainly helps to understand that they do still have their wits about them, and of course still inside there somewhere.

This poem should be published, as I feel it would help many that are going through this with their beloved families also suffering this condition.


Thank you so much, this have actually made my night.:A

Di
XXXXXX

di3004

busbyh wrote: »

We also had the worry of the wandering. She disappears from my house one day, this was at the start of the dementia, though with hindsight, the signs were for quite some time, it's actually admitting it that is the hard part:o

At the same time her daughter was suffering from Motor Neurone disease, We were in the N.west and she was down South. There was only me and OH. We were going down South every other week and trying to cope at home with her also. She never did know that her daughter has passed away. It's was Ironic really Mum in law memory had gone but she could get about, my God we couldn't keep her still at one time:eek:and yet her daughter had all her factulties and yet no speech at all and totally immobile. Think the MND has got to be the worse to be honest, to be 100% lucid, it's being trapped in your own body.

Take care Di, and I hope all works out with your dad and they get his meds sorted. If they get the balance right, I feel this will amke a huge difference
xx

Hi hun
Thanks for this as well, and can understand now this is all part of dementia.
It must have been difficult for your hubby and yourself seeing your mum in law go through this too.
I can fully understand what your saying though, and it also helps as well to know others that have gone through this.
Dementia is so cruel isn't it?

But like you and Marshallka said, that person is still inside somewhere.:A;) Thank you for sharing this, and hopefully they will get dad right with his meds soon, it would be lovely, as we are all missing him like crazy.
See..........I was always the daddies girl.:A;)XXXXX

showergirl

Marshallka,

Hope everything goes well for you and your daughter today at the Doctors.
I will be thinking of you

marshallka

showergirl wrote: »

Marshallka,

Hope everything goes well for you and your daughter today at the Doctors.
I will be thinking of you

Thanks showergirl. You have enough to deal with and this is minor compared. Its just me I guess being over anxious. It was just that she is anemic, I know that but not iron deficiency anemia so must be something else. I was just annoyed to read that overloading iron when someone is not needing it can be so damaging. I have calmed now...:o:o

maxdp

s wondering about pernicious anaemia when I was reading through your post about the B12. I do not know much about it but my Aunty had pernicious anaemia and I know that she had to have vitamin B12 injections. It woul be good if somebody could get to the bottom of this problem that both your sister and daughter has it would appear to be genetic Does your mum have same problems?

maxdp

marshallka wrote: »

Don't know maxdp (don't get on a lot) but my sis started with large red cells about 4 years ago and went to hematology same time as me. They left her as they do:rolleyes: and now she has lost over 2 stone rapid and her red cells are bigger and she is b12 deficient so they say. She is going back again. Going to ask about pernicious anemia today. I bet the doc will be funny cause its their job to do this but sod it, its my daughter..

Tough to him I say as you say it is your daughter. You have every right to ask questions and query they are not gods, although some of them think they are.

Good luck with your daughter today

di3004

Marshallka, good luck for today, thinking of you and your daughter.
:A;)XXX