PPI forum - non PPI discussion thread

busbyh

di3004 wrote: »

Hiya hun
Thanks for this hunni:A.

My dad is 68 now and was diagnosed with dementia just after he turned 60, before that though he suffered with encephalitis which as you know affects the brain, so at first his consultants put it down to this and not dementia.
Yet he has been suffering with illnesses all his life really, with a number of health problems, a huge list so I won't go through them all.......:o, but they seem to think this have been an impact on the dementia.

Dad talks a lot about when he was small and often asks for him mum, she died a few years back now, but he still asks, so a lot of it is about his childhood.

Dad carries his coin tin around with him, not a lot in it, just bits of change, and he says its his wage from the coal pits, as this was his job from the age of 15, before that he was sent to work on farms from the age of 9, after coming in from school, but his dad although his dad was an Army Clerk taken every penny from dad, it was always my dad, and not his brothers, so now dad clings on to his pennies.


He did have a sad upbringing really, it was torture for him, and now he cries when he talks about it, thinking he's that age again.

It can be difficult can it, when they say things out of the question, back last year they had a visitor who was quite obese, dad yelled "Blimey love your so big, are you sure you will fit your A**E on that sofa".......:eek::o, and things like that, then next minute back to himself.

Sorry you have had to go through seeing your mum in law going through this as well hun.

The most difficult part with dad at the moment is with him not sleeping at nights and wandering, where he will just go off, if anyone tried to stop him he would go off on one.
A difficult one again, because he was always a very hardworking outdoor man over the years, so he does not understand what is going on....

Been recently informed as well that a mate of our family age 43 been diagnosed with Picks disease, yet another disease of the brain, she is already in a bad way and in the opposite unit to dad.
She once went out with my brother, many years ago.

Yeah please post up that poem hun, I really don't mind at all, cheers so much.:A XXXX

What a hard life;) How dare I moan:o

Will do di, I will need to type it up and copy it over. Get back to you soon

showergirl

Marshallka,

I am sorry to hear about your daughter and hope things get sorted for you soon.

Go with your instincts as a mother knows best.

Best wishes

kpwll

In your position Marshallka, I would explain that wanting to know what to expect (all the different courses that illnesses can go down etc) that while doing research of my own I have come across this........................ See what they say, but if you are not then happy with the answers you get, then ask for a 2nd opinion.
I wish your daughter well and hope you are worrying over nothing (and I don't mean to be horrid when I say that) xx

di3004

I agree with the 2nd opinion matter, definately worth it.

Good luck Marshallka.

My sister got back to me and said, her daughter (my niece), it was one of the common forms, due to a lot of blood loss.

My sister also said about herself as well, she is actually having further tests for this, but was put down to lack of Iron definciancy, and also due to constant heavy monthlies.

But yes defo get a 2nd opinion,I agree with everyone else on here.
Hope all goes well tomorrow Marshallka. XXXX

di3004

Dad calmer today and did not refuse his meds, although sleepy, this is probably why.

The sad thing about it is, when he went into the unit about 5 weeks back, something like that, the other patients about 4 others, were all in their 80's, and all very sleepy, when dad went in quite jolly but now getting to be like the other poor folks......

marshallka

di3004 wrote: »

Dad calmer today and did not refuse his meds, although sleepy, this is probably why.

The sad thing about it is, when he went into the unit about 5 weeks back, something like that, the other patients about 4 others, were all in their 80's, and all very sleepy, when dad went in quite jolly but now getting to be like the other poor folks......

Its horrible to have an illness that mainly affects older people isn't it. I feel so sorry for your dad Di. Do you think its actually doing him any good where he is? Is there somewhere similar that has more his age group or another type of respite care home that could deal with him? I know when I was at the home at nights there was one lady who wandered all night and ended up in everyone elses bed. She would then buzz for us to come along and take her back to hers. It was very child like but sometimes you could see in her eyes she was back with us. Not very often though. Dementia is awful. Thoughts. x

di3004

marshallka wrote: »

Its horrible to have an illness that mainly affects older people isn't it. I feel so sorry for your dad Di. Do you think its actually doing him any good where he is? Is there somewhere similar that has more his age group or another type of respite care home that could deal with him? I know when I was at the home at nights there was one lady who wandered all night and ended up in everyone elses bed. She would then buzz for us to come along and take her back to hers. It was very child like but sometimes you could see in her eyes she was back with us. Not very often though. Dementia is awful. Thoughts. x

Thanks Marshallka.:A;)

This is what we have been talking about, to be honest I think he would be better off in a place where they have more around his age group, my mother is waiting for dad's CPN to get back about this, as she have raised all our concerns to him about this.
It is hard to see, and remembering when he was so independent, which did not seem that long ago really - it does hurt so much.
Aww bless that lady.........its a very demanding but rewarding job though.;)
Good luck for you and your daughter for tomorrow Marshallka, will be thinking of you both and hope this gets sorted out, cheers so much. XXX

marshallka

kpwll wrote: »

In your position Marshallka, I would explain that wanting to know what to expect (all the different courses that illnesses can go down etc) that while doing research of my own I have come across this........................ See what they say, but if you are not then happy with the answers you get, then ask for a 2nd opinion.
I wish your daughter well and hope you are worrying over nothing (and I don't mean to be horrid when I say that) xx

THanks for this Karen.:A I have calmed a little now but I suffer anxiety anyway and when it is your child and things have been ongoing for so long it gets to you. In fact my daughter herself gets worried now about why these things happen. I think we can cope better with names to things but never get any. I have taken her off the tabs now as I feel its right - I know I am no doctor but it seems the right thing to do when its proved she is not iron deficient. I have however found a b12 deficiency that can run in families and going to ask about tomorrow. My sis has it now. In fact reading about it they have a lot of the diagnosis of it on computer as these were things that my daughter has been the docs with.

I think the doc will ask me to come in to see her....... but for a prescription for prozac and diazepam for me...:eek:

marshallka

di3004 wrote: »

Thanks Marshallka.:A;)

This is what we have been talking about, to be honest I think he would be better off in a place where they have more around his age group, my mother is waiting for dad's CPN to get back about this, as she have raised all our concerns to him about this.
It is hard to see, and remembering when he was so independent, which did not seem that long ago really - it does hurt so much.
Aww bless that lady.........its a very demanding but rewarding job though.;)
Good luck for you and your daughter for tomorrow Marshallka, will be thinking of you both and hope this gets sorted out, cheers so much. XXX

You have to remember he is still in there somewhere. Just needs to get sorted with meds and then will be back home hopefully. I can understand no "one" person being able to cope with someone with dementia. I hope things get better. I really do.

di3004

marshallka wrote: »

You have to remember he is still in there somewhere. Just needs to get sorted with meds and then will be back home hopefully. I can understand no "one" person being able to cope with someone with dementia. I hope things get better. I really do.

Thanks Marshallka.......:A;), and hope things get better for you and your daughter, and family as well XXX;)