Fibromyalgia (part 2)

LameWolf

:hello:'Ello all.

Welcome Kitty and welcome back Shirl.

BZ I did find a couple of fingers in my dustpan, but when I checked, they were actually mine.:D

CwtA bad girl, letting your meds run out. But well done for tackling the ironing mountain. I let Mr LW do our ironing, on the basis that a) he's better at it than I am and b) our iron is too heavy for me.

Sue Diamond sounds gorgeous - what sort of dog is she? I'd love to have a dog again but I'm not sure how practical the idea is.

Anyway, we did manage to wash my hair last night - Mr LW is always very good about helping, as I can't do it on my own any more. It makes me so cross that something as basic as that has to be carefully scheduled.:mad: Bloomin' lupus has a lot to answer for.

I'm trying not to think about this IB/ESA malarkey. Much as I'd like to, there's no way I can work again and that's that. Mr LW has said that if push comes to shove, he'll support me financially, and we'll get by somehow.

We're supposed to be going to the pub tonight - there's a motor cycle club meets there on a Wednesday, and one of the chaps has said he'll bring his sword for us to see. Mind you, he's been promising that for months, so if he actually remembers, I'll be amazed.

I need to find some spoons before we go though. Someone (sorry, I forget who) said they're using disposable plastic ones; I think I am, too. I also need to get my head round socialising. I'm getting too good at bottling out of things because of nerves. So if anyone feels like giving me a virtual kick up the bum, please feel free.

Kitty*in*Boots

Thanks, SE. x I kept having time off short term sick at work, due to either catching everything going or hurting myself at work (as much as I tried to 'battle through') and it became clear that my boss was starting to think I was 'trying it on' (e.g. I hurt my back/shoulder when lifting and moving stuff and had 3 days of sheer agony) but because the other 2 staff members helping me were fine, there were jibes. This happened a lot.

When my m-i-l was diagnosed as having terminal end stage cancer and I was trying to help with her, work, look after my girls and home and was literally off my head with tiredness and pain (crawling up to bed, crying way more-at home, not work-than was healthy) and I spoke to her, my boss made it clear that mother in laws were not classed as 'close family' and that I was to just 'leave it all that home and do my job', I handed in my notice to save my sanity.

Daft, yes. I know.:o (It obviously didn't work *gibber*) :rotfl:

But it gave me the last few weeks with my m-i-l in a head space that meant I was actually there with her, if that makes sense? It no doubt stopped me from a full scale melt down emotionally, if I am honest, too.

And so here I am. Finally I have been told I am 'ok' just ill. Not mad, not a malingerer, not 'trying it on'-unwell. There is a reason.

And I keep reading stuff out to my hubby (sensitivity to noises, smells etc) and him grinning at me, like a Cheshire cat, going "Mmmmhmmm! That's you to a tee."

It's not just me. :T

Hopeless123

Hello folks, I'm not really sure what I'm doing here, I came to see if there was any advice on getting grants for someone whose recovered from a long-term illness and I ended up reading lots not quite related to the original task!

I won't bore you too much, I very nearly got labelled with the term fibromyalgia (after the specialists confirmed I didn't have MS) and I'm glad I didn't because it's not what I have, so presumably I wouldn't have been treated correctly. Actually do you get treated for fibromyalgia or is it like ME/CFS where you just manage it?

I'm not better, but I nearly am and I wondered what would have happened to me if I'd gone back to the specialist for the diagnosis.

bigzippy

Hi guys. Welcome Kitty*in*boots and Hopeless :wave:

Hopeless I may just still be a little bleary-eyed, but I'm not quite sure what the question was now, lol. I don't get any treatment for my ME/CFS (apart from REALLY lame CBT therapy from a woman who should never have qualified as one) but I get some meds that make the Fibro (and therefore the ME/CFS) easier to deal with. Both are still essentially about managing the illness though, as even with all the meds in the world, if you over do it, you'll suffer :rolleyes:

Kitty I think S/e and maybe even Cwta have answered your questions. I remember that feeling of relief that I had a diagnosis and wasn't just a hypochondriac well. Savour it and keep going back to it. No matter how supportive your nearest and dearest are there will always be some swine who just doesn't get it, and probably never will.
This is recommended reading for ya, The Spoon Theory I don't know about you but it certainly helped me and a few of the guys on here either come to terms with it or explain it to someone else. I forwarded it as an email to friends and relatives as a way of explaining to them how I was and how difficult it can be. Hope you find it helpful.

Meanwhile, my IBS is doing my head in. I'm bloated all the time, with or without the nausea, and constantly feel like a need a wee (or 7 to rid me of this cold ) but don't really. :rolleyes: I'd almost forgotten how ridiculous this IBS malarky is as with the pregabbawotsits it usually only rears it's head (mildy in comparison) for a few days every month...around that time. :rolleyes:

I'm still fuming at my parents behaviour on friday and wishing that they'd not bothered to pay the deposit on the dress as I really feel like returning their £300 and telling them where to shove it. I can't even mention it to OH sometimes cos it aggrivates him so much :mad:

I might attempt to do chilli for tea tonight... then again I might not

Kitty*in*Boots

Everybody will be different, with differing health/treatment needs and levels of care needed-also dependent on whether they have a secondary health issue as well (or if, indeed the FM is a secondary health issue) but it is mostly management, with an element of treatment to improve things for you (particuarly sleep).

For me it is physio, pain killers that I 'rotate' so as to get maximum benefits (and to not get 'hooked' on any one kind), meds to help with sleep and the neurotransmittorrs that 'misfire' (such as Pregabalin, which I am looking into-or Amitriptyline, which I am now taking again), anti histamines because of the inotolerances, occasionally meds to help with the IBS/stomach pains and bloating, meds for reflux (caused by nsaids) and I also use a tens machine and heat packs daily and am about to invest in a cross trainer or 'stepper' for gentle excercise on days when it's too cold/wet to get walking (she said, hopefully, lol).

Here's a good link for an overview of FM that I have just been reading: http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

And another about treatment options: http://chronicfatigue.about.com/od/whatisfibromyalgia/a/understandfibro.htm

Hth x

bigzippy

somebody_else wrote: »

As for 'it is Wednesday, Right?' - I spent a good hour after I got up this morning convinced it was Thursday.

As soon as I read Auntie Axe's post I thought "she's havin a larf! It's only Tuesday"...then thought that she'd led poor Kitty up the garden path by believing her, then you said you thought it was Thursday and I thought...."hmmm.....nobody's picked her up on it only being Tuesday...maybe it actually isn't!" And I still had to check the computer's calendar thing! :rotfl:

Kitty*in*Boots

Oh gawd-excuse mytypos. I am all fingers and thumbs.

TY Bigzippy-that "Spoon Theory" says it all, really. xxx I recently had my nearly waist length hair cut off to above my ears, 'cos I just couldn't wash or brush (or dye) it any more. Certainly not easily, or most days, anyhoo. I still find it painful but I have less bad hair days and I need my arms raised for less time, which will give me another spoon back, lol. :T

I totally sympathise with the IBS thing, bless you. x I am not leaving the house for too long , too often just now. You'll know why. :rolleyes:

I've just seen your wedding countdown-veeery exciting stuff. :j x

Kitty*in*Boots

Is it Tuesday? I know it's the 11th , if that helps? :rotfl:

Aaargh-what day is it, you bunch of rotters, lol

*confused.com*

LameWolf

Kitty*in*Boots wrote: »

Is it Tuesday? I know it's the 11th , if that helps? :rotfl:

Aaargh-what day is it, you bunch of rotters, lol

*confused.com*

No, it's deffo Wednesday. I just checked in my PDA. It's also Full Moon tonight.:D

bigzippy

Hahaha, it's Wednesday. I checked

I know what you mean about the long hair (which I have) but mine's so ridiculously stubborn and curly/frizzy that the shorter it is the worse it behaves :rolleyes: And yes, I know exactly what you mean about not leaving the house for too long/often. I'm exactly the same atm. My OH asked me to pick him up from work yesterday and I was visualising the route to see how many potential toilet opportunities there would be en route if necessary!

P.s. Kitty, if you're all fingers and thumbs, maybe you could pass a few to LW, she seems to be missing a few!