Fibromyalgia (part 2)

somebody_else

Careful_with_that_Axe wrote: »

I've calmed down now. I phoned Dad and, yes, he had had a drink but in no way was he plastered - he can't hide it when he is. She was using that as the guilt trip as I wasn't doing what she thought I should be doing.

Thanks s/e. I'm quite resolute and it looks like the battle with me choosing to behave in this way is going to be with Sis and his wife rather than with Dad. Bloomin ironic, eh.
So I'm sticking to my decision and will go over there tomorrow as planned.

Just refuse to have the battle. Say no, and mean no. It takes folk by surprise when you first start doing it, but that tiny little word has made my life a lot easier with my family.

[Ooh, get her dishing out advice like she knows what she's talking about.]

Careful_with_that_Axe

I can do that.
Should I listen to what s/e says?

No.No.No.No.No.No *grin*

kassandra

somebody_else wrote: »

Have you ever sat down and written a full list of all your symptoms? If they were all down in one place (no matter how occasional they are), it might say more to your doc than having them spread out all over your medical notes.

I'd certainly be getting the breathlessness checked out. Do it by any chance coincide with a raise temperature? That's when I tend to experience it.

Only when I first got diagnosed. I think it helped him with the dx. I had written them down over the course of a month even the things that I thought weren't mentioning like I said before. Maybe I should do it again. Things have changed a lot since then and I do have a doc that's actually interested now! :T

I'm not sure about the temperature, not that I've noticed.

I don't know how to do those quotes where you don't quote the full thing. Can somebody tell me. And by that I don't mean somebody in particular, just anybody

suep

Careful_with_that_Axe wrote: »

Suep, did the Uro some up with anything positive?
Horrid when you have to wait that long isn't it.
I no longer drive at night- whatever I try, it feels like the lights of oncoming cars are boring right into my brain and it's far too painful. I just avoid it at all costs now.

Hi cwta she just wanted to know how I got on with the cystistat instill treatment that Ive had, I told her it worked really well and she said I could carry on having a maintenence dose every 6 weeks, and come back in 6 months, I could have told her that over the phone :rotfl:

I m the same and avoid nightdriving as much as possible, it just couldnt be helped last night, by the time I went to bed my head was really bad and its still been a bit sensitive today. Have you tried those tinted glasses that are supposed to cut out the glare ? I was going to try some but its a lot of money for the amount of use they'd get and especially if they dont work.
I think Unity got some, but I cant remember if she'd used them yet or not.

kassandra

Careful_with_that_Axe wrote: »

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

What the others said!!!

At the end of the day, he is a grown man not a child and therefore shouldn't need supervision. I'm sorry, I know I'm not as close as all the rest of you on here so I hope you don't think I'm being too personal.

Think of it like those people who you see on telly that are so overweight that they are bedridden. The people that facilitate that get me so mad! They are enabling that person to continue in their lives of misery by bringing the food to them. If they didn't bring them all that food and put them on a diet then they would lose the weight. Ok I know you don't bring the booze to your dad and he can get it himself but what I'm trying to get at is that by supervising him your giving him the tools to get in whatever state he wants and not be responsible. In fact, I'm sorry, you already know all this. I'm not very good at explaining myself. Just don't let your sister get to you. She is understandably concerned about your dad but like the others have said, he is not your responsibility. Ok, I'm shutting up now, in the hope that you can wade through the mountain of crap that I spout and find the.....the thing I was trying to say.....see I can't even find the right words for that!!!!

Oh, I'm off to lock mesen in a cupboard

kassandra

suep wrote: »

Hi cwta she just wanted to know how I got on with the cystistat instill treatment that Ive had, I told her it worked really well and she said I could carry on having a maintenence dose every 6 weeks, and come back in 6 months, I could have told her that over the phone :rotfl:

I m the same and avoid nightdriving as much as possible, it just couldnt be helped last night, by the time I went to bed my head was really bad and its still been a bit sensitive today. Have you tried those tinted glasses that are supposed to cut out the glare ? I was going to try some but its a lot of money for the amount of use they'd get and especially if they dont work.
I think Unity got some, but I cant remember if she'd used them yet or not.

I got a glaze on my glasses that are meant to cut out glare/dazzle. They don't work but saying that they aren't those ones that change to sunglasses if thats what you are talking about.

suep

Careful_with_that_Axe wrote: »

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

Oh cwta Im a bit behind today, but I hope you've calmed down now. I am really tired and my brains not working very well but I agree with everything the others have said. As I said before, my eldest son has a drink problem, you could watch him all day and he'd still get drunk somehow without you noticing, they are very crafty. I hope you have either put your sister right by now or decided not to let it get to you. Theres nothing I can tell you that you dont already know, but we are all here for you.

suep

kassandra wrote: »

I got a glaze on my glasses that are meant to cut out glare/dazzle. They don't work but saying that they aren't those ones that change to sunglasses if thats what you are talking about.

No I think these ones are yellow, when Unity comes back I'll ask her about them. I dont think Id get them, as well as all the symptoms we all seem to get driving in the dark, Im always too tired by teatime to do much anyway, let alone drive. My next app should be in the summer so I should be home before it gets dark :rolleyes:

Sorry I forgot to mention, I had an email from Unity on Monday (I think) saying that she has a bug and is feeling a bit yukky at the moment, she'll be back when shes feeling better.

bigzippy

Sorry guys, I don't have time to check back through everyone's posts as I'm only sneaking online while OH walks the dogs. :shhh:

I've missed you guys and I'm more than a little peeved that b/b isn't winging it's way to me yet! Having issues with transferring my number or some such tripe... sigh. I'll get there in the end. Try not to forget about me in the meantime

I'll try and catch up soon!

I'm struggling on half dose of pregabalin at the moment but start the Sibutramine (or something like that?) tomorrow. I'd forgotten how much of a difference the pregabalin makes and I'm now struggling not only with the pain and the spasms, but also with rubbish temperature regulation and my sleep is up the swanny. I can't get to sleep and when I am alseep I don't stay in the right cycles of sleep so I'm dozing and dreaming loads. It's doing my head in! I'll weigh up (no pun intended ) whether it's worth it when I see how I take to the Sibutramine.

Sorry I can't comment on what you guys have been chatting about, but hope you're all reasonably well and haven't forgotten about me just yet!

raeh

so many posts i dont know where to start!!

ok auntie axe you are NOT *G* for not being at your dads!! he will get drunk whether you are with him or not and all that will happen if you are there is that he will atagonise and upset you ... all spoken from experience btw At the end of the day this is a situation that you WILL NEVER EVER be able to have any control over from your dads side but you CAN control how you handle it and feel about it. Part of your sisters anger may be *G* that she isnt there and doesnt want to be? YOU have to be the main person you are concerned about.

sharon how was today? i hope you managed to relax a little more - as much as you can relax anyway with things on your mind

LW that sounded scary i can add any more advice as the professionals got in there first i often get a really tight feeling as if my ribs are too small for my lungs to expand and i cant take full breaths but i have never experienced anything as bad. I hope mr LW can have a word for you and you get yourself sorted out

sue i got some special sunglasses for driving that are supposed to cut out all glares as i suffer when its sunny too but ..... dont laugh here *looks over towards auntie axe and s/e* i cant hear when im wearing them

unity i hope you are feeling much better soon thanks for letting us know sue

saffie im sorry you are feeling so rough at the moment i hope things improve soon

kass wrote:

I don't know how to do those quotes where you don't quote the full thing. Can somebody tell me. And by that I don't mean somebody in particular, just anybody

either quote and delete what you dont want to include but make sure you leave the

bits or copy and paste the part you want and highlight then use the wrap quote button above or write

etc wrote:

and

yourself just without spaces probably makes no sense what so ever as i wrote it :rotfl:

s/e wrote:

'slong as we're amusing someone.

I'd hate to think that we're annoying the hell out of other people though.

oh i dunno, it can be quite fun at times

i just remembered what else i wanted to say ... thanks for the web link s/e it was quite confusing but interesting also, one thing i noticed was recurrent miscarriages, iv had quite a few trying to have my boys and no one has ever said it could be linked to anything else!

right after a long day my brain feels totally like marshmallow so i think its time to relax and try to win a few prizes

i hope every one has a good night xx