Fibromyalgia (part 2)

saffiedale_2

somebody_else wrote: »

Have you ever sat down and written a full list of all your symptoms? If they were all down in one place (no matter how occasional they are), it might say more to your doc than having them spread out all over your medical notes.

I'd certainly be getting the breathlessness checked out. Do it by any chance coincide with a raise temperature? That's when I tend to experience it.

strange cuz i said on the ankylosing thread i feel like i carnt breath? wake up and carnt get my breath? they did say last month i only got 50 percent normal chest expansion? rib cage fuse? well thats what they said?

Careful_with_that_Axe

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

saffiedale_2

Careful_with_that_Axe wrote: »

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

what he chooses to do when you leave is not your problem.:mad: you carnt be there all the time. she had no right to do that.take a chill pill:beer: iv done that alot today. chill that is. and stood up to so many that have given me crp the last few week.:eek: and tell you sumat. i feel so much beter.:rolleyes:

somebody_else

Careful_with_that_Axe wrote: »

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

What saffie said - with knobs on!

It is not your responsibility to keep your father sober! If sis wants to do it that's up to her, but it's not her responsibility either. If he falls, well thems the consequences of getting rat@rsed and, again, not your responsibility. Please, Auntie Axe, don't let her guilt trip you into moving in with him. He's a grown up and if he wants to spend the week his wife is away hissed* as a newt, then he'll do that whether you're there or not.

Oh, and I'm sure you're well aware that it's perfectly possible to HaaN in 45 minutes if that's what you want to do (it might take more voddie with your father than with me, but it's still easy enough to do).
______________
s/e
*Other initials are available on request.

LameWolf

kassandra wrote: »

Perhaps at the least you could mention it tomorrow when you there with Mr Wolf

I won't be going along with him; he's fine with needles, and will be heading off to work immediately afterwards. But I'll ask him to have a word for me while he's there. It's a nightmare getting to see a doc at our surgery, but we can try.

Re the Oramorph: I'm on sustained release morphine tablets which I take twice daily (I have my phone set to squeak at me at 07:30 and 19:30 each day) and the Oramorph is for what the pain doc called "breakthrough pain". Luckily for me, I find it effective.

LameWolf

Careful_with_that_Axe wrote: »

I am so angry!! Just had a call from Sis to say that she had spoken to Dad and he was plastered. I've just left there about 45 minutes ago and he was fine when I left.
She started all the "why aren't you staying there", "what if he falls", "you need to be there", "you're not doing what you said you would and I was only coming down to give you a break as I thought you were staying there the whole time".
She ended up saying "I'm not at all happy" and put the phone down on me. She's trying to guilt trip me - why the Fck should I have to explain and defend my decisions to her?

Sorry - I'll come back and reply to previous posts later, I just needed to get that off my chest.

Oh no, CwtA just what you don't need. You jolly well stick to your guns; if he was fine when you left, you have nothing to reproach yourself for. I don't pretend to understand family dynamics, but you are not to jeopardise your own health further with this, OK?

somebody_else

LameWolf wrote: »

I won't be going along with him; he's fine with needles, and will be heading off to work immediately afterwards. But I'll ask him to have a word for me while he's there. It's a nightmare getting to see a doc at our surgery, but we can try.

I know you don't 'do' telephones, but could you get Mr Wolf to perhaps call the surgery on your behalf to speak to a doc about it? And if it happens again, perhaps Mr Wolf could contact NHS Direct to get their advice?

LameWolf wrote: »

Re the Oramorph: I'm on sustained release morphine tablets which I take twice daily (I have my phone set to squeak at me at 07:30 and 19:30 each day) and the Oramorph is for what the pain doc called "breakthrough pain". Luckily for me, I find it effective.

I was put on modified release tablets (morphgesic) and took those at 12 hourly intervals - I was told to take the parats and codeine for the 'breakthrough pain'. Sadly, it didn't do a lot for me. Apart from send me 3/4 of the way to loopy.

LameWolf

somebody_else wrote: »

I know you don't 'do' telephones, but could you get Mr Wolf to perhaps call the surgery on your behalf to speak to a doc about it? And if it happens again, perhaps Mr Wolf could contact NHS Direct to get their advice?

I will do - if he has time tomorrow morning while he's actually there, so much the better. He's used to doing my phone calls for me (I know, I'm a big wuss) so it won't be a problem.

I'm not feeling too bad now, considering. I've managed to make a quiche for tonight's dins, and some chocolate buns for Mr LW's lunch box.:o

Careful_with_that_Axe

Yes, you mustn't ignore that sort of pain LW. If you tackle it now, you may be able to nip whatever it is in the bud. Better to know what something is than sit suffering and worrying. You can buy Quiches now you know?! *grin*

I've calmed down now. I phoned Dad and, yes, he had had a drink but in no way was he plastered - he can't hide it when he is. She was using that as the guilt trip as I wasn't doing what she thought I should be doing.

Thanks s/e. I'm quite resolute and it looks like the battle with me choosing to behave in this way is going to be with Sis and his wife rather than with Dad. Bloomin ironic, eh.
So I'm sticking to my decision and will go over there tomorrow as planned.

sharon, hope you're doing OK today. Thinking of you.

somebody_else

LameWolf wrote: »

I'm not feeling too bad now, considering. I've managed to make a quiche for tonight's dins, and some chocolate buns for Mr LW's lunch box.:o

Given what you told us yesterday, I'm not sure we want to know about Mr LW's lunch box.

[It's okay, she's got her coat and she's leaving...in a mo.]