Fibromyalgia

somebody_else

purplecatlover wrote: »

...(but i dont have fibromayalgia, i just butted in on the thread because im reading anything in an attempt to not think)

I don't have it either, plc, but I've been here for a while and no-one's told me to push off yet so come on in. The more the merrier.

somebody_else

Oh, poohbear, what you did with that quote was knock of the [/ before the final quote] in the html tag.

Careful_with_that_Axe

Purplecat, do you want to have a vent? We're a very understanding and caring bunch here.
I don't have Fibro either but have such similar pains with the med problems I have that it's uncanny.
Dishwasher took 3 tries to get going. It wasn't dissolving the tablets and dishes were still dirty after cycle, but I discovered that I had been careless when loading it and the arm wasn't swinging freely.
I absolutely agree with keeping energy for the things that enhance your quality of life. A very sensible young South african physio drummed this into me. She told me to buy in all the helo I could (cleaners etc.) and use what ebergy I have to keep my mental health positive. I think, like a lot of chronic pain sufferers, I have been on anti-depressants for many years.

BTW - I went to a haberdashers today and got some elastic, some suspender doer uppers and some fabric glue. I'm going to have a cackhanded go at making something to make the sheets stay put. If they are successful, I'll be more than happy to make them for anyone who wants them. No charge I promise!
I find the only thing now that gives me validation is by doing something selfless to help other people. However, as I am so open in offering to do things for others that I can come over as a bit overwelming. But it's the only thing that makes me feel good about myself and that I can at least still contribute something to society.
I am trying to stave off a down mood at the moment so am hoping to go out tonight to see a local thing called "The City of Lights".
Kids make huge chinese style lanterns in paper, put lights inside them and parade through the town.
We're all a bit weird with things like this in Cornwall! Every town has a special parade, like the Bolster, the obby oss etc.
I'll see if I can find a link for it if anyone is interested in seeing what it's about.
It's quite spectacular of the Cornish rain holds off!
Jo
x

www.truro.gov.uk/Core/Truro/Pages/City_of_Lights_5.aspx
OOps! It's tomorrow night!!!

purplecatlover

thanks careful, my lj is for venting and im rubbish at talking about myself, but i really appreciate the offer and i will stick around since you all seem so nice

somebody_else

purplecatlover wrote: »

... and i will stick around since you all seem so nice

Mwahhahahahahahahah!

Cor, we've sucked another one in!

How long can we keep up the pretence before she discovers the truth?:D

LameWolf

somebody_else wrote: »

I don't have it either, plc, but I've been here for a while and no-one's told me to push off yet so come on in. The more the merrier.

Anyone mind if I join in? I don't have fibro as such, but I do have lupus, which can be extremely painful and debilitating at times. (In fact I think I'm going to go and get a dose of Oramorph in a mo, cos it's bad today).

Careful_with_that_Axe

Hmm, not long if you and BZ start up again!

Careful_with_that_Axe

LameWolf wrote: »

Anyone mind if I join in? I don't have fibro as such, but I do have lupus, which can be extremely painful and debilitating at times. (In fact I think I'm going to go and get a dose of Oramorph in a mo, cos it's bad today).

Hi and welcome. I have Lupus amongst other things.
The more the merrier I say!

somebody_else

Careful_with_that_Axe wrote: »

Hi and welcome. I have Lupus amongst other things.
The more the merrier I say!

That's interesting, 'cos my Rheumatologist has suggested that I've also got lupus.

I do wonder, actually, how many people who've been 'diagnosed' with ME/CFS/Fibro have had lupus ruled out as a diagnosis. From what I've read, it's more common than Rheumatoid Arthritis, but rarely diagnosed accurately.

somebody_else

Careful_with_that_Axe wrote: »

Hmm, not long if you and BZ start up again!

Dunno what you mean. :whistle: