Fibromyalgia

bigzippy

Ok so it's pretty much 7.30. We're supposed to be 14miles away at 8pm. I still have wet hair and we haven't eaten the hopefully ready tea that I asked OH to get on with at 6pm (it's only sausage and mash, how long can it possibly take??)

I'd love to stay and chat - especially as things are just getting interesting... but I really must go. No doubt I'll fight OH to get on the laptop first when we get back, just so I can catch up on how things progressed while I was out

Cwta - I have wet wipes in a nice plastic box from Tesco that were fairly cheap and don't dry out. Failing that, I'll lose my temper, have a strop, get uncomfortable and then have a shower...

Unity

Careful_with_that_Axe wrote: »

I can't really take in all the previous posts, so I'll read them properly tomorrow.

Ok - embarrassing question. and if you all say it's just me I may have to get the forum Uzi out and turn it on you all!

Ya know how sometimes your back hurts and your dominant arm, shoulder and hand ache? Well it causes me trouble turning round when I'm sitting. Can you see where this is going??
I also have IBS, so have a tendency to "go" far more frequently than normal and have trouble turning round to "tidy up" properly coz it hurts!
My GP has just laughed when I've mentioned this.
Am I really alone in this? I know I'm abnormal in lots of ways :rolleyes: . Is this just me?
Should I leave now
Jo
x

I can't turn properly either, so have similar problems - i.e. can't reach behind so have to go between. I'm used to it now though and have more or less perfected my own little routine of not causing myself cystitis into the bargain .

somebody_else

Unity wrote: »

To be honest I haven't had a good night's sleep since before the brick attack at age 12...

If you don't mind me asking, did the brick attack involve a blow/injury to the head? You don't have to answer that, but I have come up with a wee theory over the years.

I know several people (myself included) who have either sustained a head/brain injury of some kind or who have (or had at some point) epilepsy - all of whom have complained of really vivid/scary dreams. Those with the head injury (apart from me, for the aneurysm was there for years before it ruptured) noticed the dreams became really memorable after the event, and those with the epilepsy found that the dreams started to settle down once their seizures were under control.

Not being a medic, this is just speculation - and now I can't remember where I was going with this, so I'll just post. It might ring bells for others.

suep

Cwta - when I stayed on the Rheumi ward for an intensive physio course they had this toilet with buttons on the side, you press button 1 and get a warm wash , button 2 and a blow dry the old dears used to queue up to use it :rotfl:

Yellowrock - weeelllll it was a bit earlier, but had to travel all the way from Sussex
sue x

yellowrock

Careful_with_that_Axe wrote: »

I can't really take in all the previous posts, so I'll read them properly tomorrow.

Ok - embarrassing question. and if you all say it's just me I may have to get the forum Uzi out and turn it on you all!

Ya know how sometimes your back hurts and your dominant arm, shoulder and hand ache? Well it causes me trouble turning round when I'm sitting. Can you see where this is going??
I also have IBS, so have a tendency to "go" far more frequently than normal and have trouble turning round to "tidy up" properly coz it hurts!
My GP has just laughed when I've mentioned this.
Am I really alone in this? I know I'm abnormal in lots of ways :rolleyes: . Is this just me?
Should I leave now
Jo
x

Hi

I too have this problems, ibs, bad back etc, I have devised a nice little routine involving leaning against the wall next to the toilet trying not to twist and it works really well:rotfl: , sounds awful but when we go away and I have no wall to prop myself up against i get really anxious! Have a go at the wall propping technique if you have a wall!! Hope that wasnt too much detail for everyone:rolleyes:

Careful_with_that_Axe

Thanks all.
I look at the advertisements on tv for that device that holds paper to clean the toilet that you can then just flush away and think "now that'll do the job!"
I do manage OK, but it hurts me more often than not.
And I think it's probably my fault that the GP didn't take it seriously. I tend to make a joke out of most things if I can.
You may have noticed. :rolleyes:

notlongnow_2

Hi, my mum has FM and is 64 years old...65 in Feb. She doesnt claim any benefits but Im telling her she needs to look into it. She works 17hrs a week and has to drug herself up on MST before she goes.

Some days are ok for her but majority are rubbish. She struggles to get from the living room to kitchen.

Because she is 65 soon is it worth her waiting until she is 65 and apply for attendence allowance?

She doesnt have much money but 'gets by' but she says she isnt interested in the money she could claim but she would find a blue parking permit extremely useful as she has a lot of hospital appointments for other problems.

She has never ever claimed a penny in her life and always worked one or two jobs so ivwe told her it s her time.

Should I wait until february until she is 65?
Thanks.

p.s. What are the known causes of FM?? if there are any. My mums problems seemed to start after she broke her foot and was mis-diagnosed in a+e and when it was discovered, her foot had healed awkwardly and they left it that way.

could head injury cause it?? Around the same time as her foot injury my mum also had an accident at work where she fell on the icy carpark. That time the hospital let her DRIVE home with a 3 inch gash at the back of her head oozing blood down her back and she was so spaced out with concussion she couldnt remember my name!!

somebody_else

notlongnow wrote: »

Because she is 65 soon is it worth her waiting until she is 65 and apply for attendence allowance?

She doesnt have much money but 'gets by' but she says she isnt interested in the money she could claim but she would find a blue parking permit extremely useful as she has a lot of hospital appointments for other problems.

She has never ever claimed a penny in her life and always worked one or two jobs so ivwe told her it s her time.

Should I wait until february until she is 65?

Don't wait, whatever you do. If she applies for (and is awarded) DLA before she is 65, then she will keep that award once she reaches official retirement age. If she waits 'til after she reaches 65 then she'll only be eligible for Attendance Allowance which is not the same and is not paid at the same rates.

Sorry, I'm afraid it's getting too late for me to address the rest of your post, but hopefully some of the night owls will be around soon.

bigzippy

somebody_else wrote: »

Sorry, I'm afraid it's getting too late for me to address the rest of your post, but hopefully some of the night owls will be around soon.

So that'll be me then, eh, s/e?

notlongnow wrote:

Hi, my mum has FM and is 64 years old...65 in Feb. She doesnt claim any benefits but Im telling her she needs to look into it. She works 17hrs a week and has to drug herself up on MST before she goes.

Some days are ok for her but majority are rubbish. She struggles to get from the living room to kitchen.

Because she is 65 soon is it worth her waiting until she is 65 and apply for attendence allowance?

She doesnt have much money but 'gets by' but she says she isnt interested in the money she could claim but she would find a blue parking permit extremely useful as she has a lot of hospital appointments for other problems.

She has never ever claimed a penny in her life and always worked one or two jobs so ivwe told her it s her time.

Should I wait until february until she is 65?
Thanks.

p.s. What are the known causes of FM?? if there are any. My mums problems seemed to start after she broke her foot and was mis-diagnosed in a+e and when it was discovered, her foot had healed awkwardly and they left it that way.

could head injury cause it?? Around the same time as her foot injury my mum also had an accident at work where she fell on the icy carpark. That time the hospital let her DRIVE home with a 3 inch gash at the back of her head oozing blood down her back and she was so spaced out with concussion she couldnt remember my name!!

I know very little about the pre/post 65 thing, but I would agree with s/e in saying don't wait! These things take a long time to come through, oftentimes, but they have to back date it to when you first applied and whether or not she is entitled to something else pre/post 65 is irrelevant (apart from what s/e said).
As for the blue badges don't let anyone fob you off by saying that that would be taken into account when you apply for Disability Living Allowance (which does incorporate the decision/questions re Mobility). Apply to the council directly for the blue badges. You basically (from memory) have to prove (usually via their direct contact with your GP so it's worth getting your GP onboard first and making sure he'll say the right things) that you can't/only with great difficulty can walk (soemthing like) 50m OR that it's detrimental to your health to walk too far... i.e. someone with a heart condition/sever asthma etc may well be able to walk 50m but it may be detrimental to their health to walk it/much further.

As for the causes of Fibro, to my knowledge they're almost as vague about this as they are about ME. From my understanding, in stortened layman speak, the main referred-to study was on Marines who were systematically sleep deprived then showed symptoms of fibro. They reckon that people with fibro have too much dream sleep and not enough restorative sleep (hence why we're often prescribed low doses of antidepressants and such - to attempt to rebalance the sleep cycles). Disturbed/disruptive sleep patterns/cycles is a known symptom of ME (very close to fibro) and that is what's thought to bring on the fibro symptoms in people with ME (i.e. me ).

I hope this helps, I've taken tramadol again and brain is not quite functioning on all cylinders - or whatever the saying is

bigzippy

Careful_with_that_Axe wrote: »

Thanks all.
I look at the advertisements on tv for that device that holds paper to clean the toilet that you can then just flush away and think "now that'll do the job!"
I do manage OK, but it hurts me more often than not.
And I think it's probably my fault that the GP didn't take it seriously. I tend to make a joke out of most things if I can.
You may have noticed. :rolleyes:

Nope, never noticed
I'm not syre what ads/products you're talking about tbh...
Tbh Cwta I don't think I'd sit for that bit if I was you... is that an option?