Fibromyalgia

poohbear59

Unity wrote: »

Anyone else have TMJ - Temporomandibular Jaw Disorder? It's another quite common symptom in people with FMS and can present as either pain and/or constant clicking or popping sounds when talking or eating. It's just another of those annoying things that really irritate after a while - made worse of course by other people wondering what the noise is - I used to think only I could hear it :rotfl:.

I have TMJ disorder. Have always had it as far as I can remember. DH sometimes has to ask what the noise is when we are watching TV too as I am 'clicking' it to try to make it more comfortable.

Careful_with_that_Axe

Blimey Unity, you have a strong constitution. Even coffee makes me throw up these days. And, no, I'm not pregnant. although talking of cobwebs :rolleyes:

My Dad spent some time working in the Far East and swears by acupuncture for his arthritis, but I don't like the idea of anything even slightly invasive when my immune system is compromised.

I used to take all sorts of supplements for years (Evening primrose etc), but lay off them when this all started as I didn't want to add any extra chemicals into the mix.

My head is really bad this morning (LOL! afternoon!), so I will have another cup of tea before deciding what to do.

It came to me last night that when I saw cardiologist last week, he asked me when was the last time I felt really well. I had to think for a while and then said about 10 years ago.
I can already feel my mood spiraling down again, so I need to do the best I can over the next few days to keep upbeat if I can.

Off to theatre on Thursday to see Cabaret, so will try to focus on looking forward to that.

Hope you are all having the best day you can.
p.s. I don't have TMJ, but don't eat stir fries any more as my jaw gets tired of chewing before I'm full!

suep

Unity - that drink sounds vile, your braver than me, although Id be more worried if it worked if I was you, then you'd be forced to keep drinking the stuff :eek:

Yelowrock - I am going to do some distance healing when Ive finished this post and will add you to my list. Do you go to college to do your courses or are the home lutor courses ? Id love to learn some more but dont think Id manage going to college and the home ones are too expensive.

Raeh - I hope you didnt hurt yourself when you fainted and that your doctor can find out the cause without too many tests.
Cwta - I had a 6 week accuncpture course with a physio at my local hospital. It didnt help at all.

Im just coming off Lyrica as it hasnt helped either excpet to make me more foggy than ever, Im seeing my Rheumi on Wednesday and going to ask if theres anything else out there that I havnt tried yet.
sue

raeh

Unity wrote: »

Hi Raeh,

How's your BP? It often happens with low BP which I used to have but then although I often used to feel faint - everything turning black etc. I have only actually fainted a few times - each time it indicated I was pregnant, so is there anything you'd like to tell us? ;);)

Love,
Unity

:eek: :eek: :eek: noooooooo!!! :rotfl: my boys are just far too old for me to even consider that,

i do have very low blood pressure but i just usually feel a bit dizzy. The gp said it was just because iv been over doing it and it was my body telling me slow down. She changed my tablets to pregabalin but i felt a bit 'fobbed' off with everything today i think she was in a hurry as it was lunch time and she just said to all my complaints ' that will be a symptom of the fibro' :rolleyes: she did offer me time off work but then im afraid of vegetating if i stay at home for a few weeks and il never get myself back out again if my body gets used to resting all the time?

somebody_else wrote:

Ooh, nasty. I hope you didn't damage anything when you hit the floor. Deffo something your GP needs to know about. Erm... do you drive? A word of warning if you do - you might need to report it to DVLC, they're not keen on drivers passing out for 'no reason'.

are you meaning like the tiling or the sink? i think it was a one off thank goodness and i have just been over doing things as both boys have had birthdays within a few days and then its christmas coming up and i fret about having the time and energy to shop and wrap

unity wrote:

Now, has anyone been watching the Horizon series (BBC2 Tuesdays 9 p.m.) that started last week? It's a group of ten people at Hever Castle - five of whom have had mental illness of some sort, including OCD, Anorexia and Depression and the experts have to work out who is who. I was discussing this with DH and pondering that with so many peculiarities in this world is anyone (least of all me) actually sane?

i havent seen that, i dont watch a great deal of tv - i dont have the concentration lol for anything other than the soaps and casualty and holby but i might look out for that tomorrow, but im sure no one is actually sane and who can define 'normal' !!
oh and you are braver than me drinking that :eek: but good luck that it makes you feel better

hello to everyone else.. i have looked back so many times now to see what else i want to reply to that im confusing myself so its time to put the kettle on i think see you later xx

Careful_with_that_Axe

raeh, at least you've "registered" these new symptoms with the GP and can go back and stress the problems if you don't get any relief.
Do be careful about fainting. I'm seeing the cardiologist as I have been having TIA type thingies and about 2 months ago, I did actually pass out and broke my elbow when I fell. Maybe give new tabs a week or so and then go back to GP if you don't get any relief.
I had a mad 10 mins here where I got so fed up with the state of things that I threw thiings in cupboards in bin etc. I can at least now see kitchen floor! But am feeling a little shaky now, so will have something to eat before i do owt else.

BTW I totally agree with pain and tiredness being intrinsically linked. Also GP expresses alarm at my rapid pulse, but I've always put it down to the fact that I'm in pain. Somehow in my head that makes sense :rolleyes:
I've got a question to ask later that's a but embarrassing, but I need sustenance first.
Love to all.
Jo
x

bigzippy

suep wrote: »

Unity - that drink sounds vile, your braver than me, although Id be more worried if it worked if I was you, then you'd be forced to keep drinking the stuff :eek:

Im just coming off Lyrica as it hasnt helped either excpet to make me more foggy than ever, Im seeing my Rheumi on Wednesday and going to ask if theres anything else out there that I havnt tried yet.
sue

RE Unity - I had the same thought!! Bleurgh. I will try a lot of things, once. But if it's going to make me heave then I'm sorry but forget it. I certainly wouldn't be going back for round two, either, that's for sure! But good luck with it Unity, and yes - we are interested

I'm really hoping that the Lyrica/pregabalin does work on me (without making me foggier than ever) - otherwise I'm going through this horrendous weaning process for no beneficial reason - and that really would pee me off!

I didn't have the vice-like pain grip on my head, but my spine and ribs and, well, pretty much everywhere was aching if I thought about it for too long :rolleyes: (funny how you realise how many pains you're suppressing when someone asks you where it hurts and you think about each limb etc in turn!). It was getting to that really aggrivating point - you know where you can deal with the pain if you need to, but the nervey/spasmy/itchy-twitchy symptoms are just too much to keep sane through? So, I took some Tramadol again last night (if you knew me well you'd know that's pretty much a last resort for me) close to me falling asleep - hoping that it would kill the pain and numb all the crappy nerve symptoms so I could get to sleep, and then once I was asleep it would be ok - but it didn't work cos I woke up once the tramadol wore off, to that horrible itching all over sensation. Didn't sleep well all night and OH only woke me (properly) about 4ish. (I wish that was unusual. :rolleyes:)
So now I feel bad that I've missed most of his precious day off (I'm a pub widow) and I know that any self-respecting person would not venture out of the house looking like I do right now, so I'm trying to work up the courage to get in the shower and start the tedious grooming routine I might not bother normally (and feel bad then about not making a sufficient effort for lovely OH) but I know we have to go out tonight...

I'm sure there's loads I've not responded to, so I'm just gonna placate everyone else by telling you I've thanked you if you made me chuckle/think/contemplate responding... :rolleyes: and give you a little wave :hello:

bigzippy

Careful_with_that_Axe wrote: »

BTW I totally agree with pain and tiredness being intrinsically linked. Also GP expresses alarm at my rapid pulse, but I've always put it down to the fact that I'm in pain. Somehow in my head that makes sense :rolleyes:
I've got a question to ask later that's a but embarrassing, but I need sustenance first.
Love to all.
Jo
x

I think they are linked, but I hadn't thought about the pain causing the tiredness before CBT woman suggested it. I think it works both ways. She explained it as being exhausting to carry round so much pain and not complain or always trying to find ways round things without hurting even more etc...something like that anyway. She has a habit of explaining things as if I'm a bit daft...so I start zoning out a bit. Trouble is I'm also partially deaf and although I've told her this, she still insists on letting in the traffic and roadworks noise through the window and talking very "calmy" (for calmly see quietly!) :rolleyes:

As for the question Jo, I'm now suitably intrigued.

I too am off for sustenance, as lovely OH has brought some back from town

raeh

bigzippy wrote:

you know where you can deal with the pain if you need to, but the nervey/spasmy/itchy-twitchy symptoms are just too much to keep sane through

this is what i spoke to the gp about as well as the pain as its driving me mad having tingly arms and she just said fibro symptoms.. well yes i know that :mad: i might make another appointment and see someone else after taking the new meds for a while just to get another viewpoint [but then again i know i wont as i just felt like i was being a whinge today ]

bigzippy dh and i do very little together as i just most of the time cant be bothered and i do worry i should make an effort! we did go to B&Q together this afternoon after my appointment :rotfl:

Careful_with_that_Axe wrote:

I had a mad 10 mins here where I got so fed up with the state of things that I threw thiings in cupboards in bin etc. I can at least now see kitchen floor!

every so often things get totally on the top of me and i yell at the kids for the state of their rooms and start hurling things into bin bags i seem to ignore and ignore things then its a little something that makes me flip! and then of course along with the guilt im so knackered i ignore it again for ages :rotfl:

il be back later for the embarassing question

somebody_else

raeh wrote: »

i do have very low blood pressure but i just usually feel a bit dizzy. The gp said it was just because iv been over doing it and it was my body telling me slow down. She changed my tablets to pregabalin but i felt a bit 'fobbed' off with everything today i think she was in a hurry as it was lunch time and she just said to all my complaints ' that will be a symptom of the fibro' :rolleyes: she did offer me time off work but then im afraid of vegetating if i stay at home for a few weeks and il never get myself back out again if my body gets used to resting all the time?

Two things here - 1 be careful that everything doesn't get put down to the fibro. Not to cause unneccessary worry, but for years I had a diagnosis of ME (with a GP (or 3)) who were convinced this was a synonym for depression and somatising symptoms. Several years after I became symptomatic I had a brain haemorrhage, and I'm fairly sure that several times during that period (when the headache or pain down my spine became unbearable) that aneurysm had leaked slightly. Strangely I have had more than one 1 nurse either agree with me or suggest it as a possibility. Not one doctor will admit this could happen.

Secondly - I started my current relaspe about 3 years ago. I was aware it was happening, but I was terrified of stopping in case I couldn't get started again, so I didn't stop. I effectively ran myself into the ground (with more than a little assistance from my employers, who couldn't or wouldn't reduce my workload. They kept saying that they'd take some of the excess work away, but every time they took 1 task from me, they added another to compensate). You might be better off taking a week or two now, rather than 2 or 3 years later on. I went sick in 2005 - I'm still not well enough to consider even part time work 3 years later.

raeh wrote: »

are you meaning like the tiling or the sink? i think it was a one off thank goodness and i have just been over doing things as both boys have had birthdays within a few days and then its christmas coming up and i fret about having the time and energy to shop and wrap.

Well of course I meant the tiling or the sink - bruises and broken bones are self-healing. Broken tiles or sinks need to be replaced.

Oh, see my point above, about running oneself into the ground.

raeh wrote: »

hello to everyone else.. i have looked back so many times now to see what else i want to reply to that im confusing myself so its time to put the kettle on i think see you later xx

If you're putting the kettle on, mines a cup of tea, ta.

bigzippy

raeh wrote: »

this is what i spoke to the gp about as well as the pain as its driving me mad having tingly arms and she just said fibro symptoms.. well yes i know that :mad: i might make another appointment and see someone else after taking the new meds for a while just to get another viewpoint [but then again i know i wont as i just felt like i was being a whinge today ]

GP basically said the same to me. He said that the pregabalin should work on it and I asked for something to deal with it in the meantime and he said no (cutting the story short) - I've found that tramadol does take it away as a short term remedy - but then when it starts wearing off it gives you all over itching which then drives you to distraction as well...so I'm not sure which is worse anymore!
I suppose sometimes a change is as good as a rest :rolleyes:

raeh wrote: »

bigzippy dh and i do very little together as i just most of the time cant be bothered and i do worry i should make an effort! we did go to B&Q together this afternoon after my appointment :rotfl:

I know the feeling. We do try to at least have a dvd night in, type thing, once a week at least - but I do feel really bad sometimes about not being in the least bit presentable... but then he always says I'm gorgeous (I think he must be blind, but whatever ) :blushing:

raeh wrote: »

every so often things get totally on the top of me and i yell at the kids for the state of their rooms and start hurling things into bin bags i seem to ignore and ignore things then its a little something that makes me flip! and then of course along with the guilt im so knackered i ignore it again for ages :rotfl:

il be back later for the embarassing question

I'm the same - I'll have a spell where I'll go berserk at OH for daring to leave things out of place in my house and doing things he'd never do in his own (cos his mother would rollock him there!)... he does point out that the mess isn't all his doing - but I blame it on his mess being the catalyst....

Still intrigued... and worried I'll be out by the time you get round to asking it, lol.