Fibromyalgia

bigzippy

LaweWolf...at the risk of repeating myself, (and because I can't be bothered to type out similar sort of stuff) have you seen this post (originally replying to RoxsiScotland) - could you do any of this to make things less lonely and boring?

bigzippy wrote: »

I would recommend looking at it as a holiday (I know it's hard) and working out what hobbies you would take up if you were retired or whatever. Find some hobbies - whether it be something crafty (cross-stitch, latch-rug making (very easy and enjoyable IMO), painting, whatever) or something more like researching your family tree (which gets you in contact with loads of random relatives and makes it more exciting to check your email/post and answer your phone ) or something else entirely. I think if you've got something to look forward to doing when you get up, or something to look forward to getting back to your couch so you can do, then it makes a huge difference to your day and then your week and so on.

I also have the magic of Facebook and have gotten back in touch with mates and made new mates (friends or relatives of friends) - including my hubby to be! - which can keep you occupied talking to them whether on Facebook or on messenger. I would be lost without it to be honest, or I would've been last year

If you get DLA or something then it might be worth using at least a bit of it to get someone round doing cleaning for you so that you can spend your time doing things that are enjoyable rather than lying in bed wondering how long you can put off doing something grim.

And my advice would be to try and have at least a day or two set a week where you see a particular friend or something, so you know that even though you have a lot of time on your own, you always know there's something coming up that will keep you social, iyswim?

I hope that helps? I was terribly lonely last year, I felt like all my friends had dropped off the face of the planet once they'd grasped the idea that I was chronicly (sp?) ill and wouldn't be recovering anytime soon, so would be pretty much permanently affected by what I could and couldn't do with them... :rolleyes: My point is, I know what it's like and I've managed to come out, relatively, the other side so I'm confident that you can too

black_paw

natzini wrote: »

I have FM, was diagnosed just under 3 years ago. I'm 26 and have managed to go back to work full time (teaching). I can't do much else apart from that, so my OH is pretty much the caregiver, cook etc. The fatigue is really getting to me at the moment, but then again I was also diagnosed with ME and an underactive thyroid.

Have any of you with FM seen Professor Davies? I'm hoping for a referral to him, just changed GP surgeries as the last one I felt as though I wasn't being listened to.

I try and pace as much as I can, I think that's why teaching is a good job for me, as in Secondary School we have the separate lessons. My workplace is very supportive, especially compared to the last one who wanted me gone as soon as my symptoms got bad.

yes i have seen him a few times, a very nice understanding man , but i went private as it was quicker to see him that way , does reduced rates for people on benefits. very understanding as took a long list of questions to be answered , well worth seeing as gives you extra back up went trying to get benefits.As he believes you ! and understands what you feel like . good luck

LameWolf

Hi everyone.

Firstly, my thanks to everyone who's offered wise and comforting words in a week when the Black Dog has had me by the throat.

Once we get the holiday period out of the way, I hope to be able to get on something of an even keel, get back to my cross stitch, candlemaking, etc, which I just haven't had the energy or inclination to do recently.

I don't know many people in MK, and those I do know are 1) my husbands pals, and 2) at work, same as him. But he has said he'll ask if I can borrow Molly Dog now and again, for the day. She stays with us when her folks go away, so she knows the place, and having her there would give me an excuse to get the scooter out.

I'm going to try and start taking a bit better care of myself generally in 2009 - something I've never been any good at; feel free to nag me on this front.:rolleyes:

Thanks again folks - you lot are great!:o

bigzippy

Wow! I've refreshed this page 4 times cos I didn't believe it had been so quiet!! I guess everyone is in the full throes of Christmas.

If I don't get online again then Merry Christmas everyone!! :xmassign: Hope you all have an ace one and come back with tales of merriment

:xmastree:

Magenta

Jamla wrote: »

yes i have seen him a few times, a very nice understanding man , but i went private as it was quicker to see him that way , does reduced rates for people on benefits. very understanding as took a long list of questions to be answered , well worth seeing as gives you extra back up went trying to get benefits.As he believes you ! and understands what you feel like . good luck

Hi Jamla do you have his contact details please?

Thanks.

Magenta

Well, I wish my self a pleasant Christmas Day with my Teddy Bear!!

I hope there is some thing worth watching on TV.

May the New Year bring ALL of us better health:santa2:

scarletsladyintheparc

Hello there, well as you can see I'm a complete Newbie to this site, so thought I would use my first post to introduce myself in this forum.

I am a sufferer of Underactive Thyroid, ME/CFS, Fibromyalgia and other associated illnesses. Hopefully I will meet you all in the new year when things have settled back down.
By the way, if anyone mentions Xmas, I go into hibernation mode.......LOL. It's the only way I can deal with it.

Wishing everyone a painfree, peaceful Xmas,
take care.....scarletsladyintheparc.

suep

Magenta wrote: »

Hi Jamla do you have his contact details please?

Thanks.

If you go back a page or two I posted his website addy
sue

suep

Welcome Scarletlady, it's usually buzzing in here but everyone must be busy with xmas stuff, I've come upstairs to go on the laptop and watch Eastenders because my d/h and d/d are playing with the Wii.

Merry Xmas, I hope everyone has a good day
sue x

raeh

Iv been really busy and so havent had time to nip in here but just wanted to come on and wish everyone a :xmassign: have a great day everyone


:xmastree: :santa2: