Fibromyalgia

somebody_else

bigzippy wrote: »

Somebody_else: Thanks very much - as soon as you mentioned agency I got a bit antsy cos I thought it would be more! I've got my head round actually being willing to hire one now, I think, I just have to work up the energy and effort to get one now! Where do I start?

I would start with personal recommendation - do you know anyone who uses a cleaning agency? Then you could try googling cleaning agencies + your area.

I was fortunate in that someone I knew was looking into working for the agency I now use, and as they are a registered charity and one of their stated aims is to enable elderly/disabled people to remain independant for longer I thought I'd give them a call and see if they'd put me on their books.

You might find it useful to give your local Social Services a call - although they no longer provide 'home helps' they do use some agencies to provide a 'deep clean' if someone who has input from them is in dire need. They would be very unlikely to help you themselves but they might be able to send you a list of their 'recommended providers'. Or you might just be one of the lucky ones who lives in an area where the SS budgets aren't routinely overspent so they are able to provide little extras. I wouldn't get your hopes up though.

Elmostreet

thanks bigzippy! i'm doing just that! watching 'The waitress' and eating choccy and cuddling my puppy!

pinguisace

Hi all id like to be an honery member if i can? I have been diagnosed as yet i saw a rhumeatoligsit earlier in the year and wont diagnoise me as my symptons fall into a grey area . Extremelly furstrating 2 me and my carer/friend. I have scolosis and in 2003 i fell about 10 - 12 feet off a balcony which i fractured my t12 and heel plus i shattered my cocyx. I had to learn to walk again etc but never been right since. I just wish i could get a concreate diagnoises to make life easier to explain. I was told by a gp whos a friend of friend that i have but they will still not diagnoise it ho hum. Sorry to bore u all. Reading wot has been writen so far i have been going yep i know how that feels. Im sorry to ramble on. Now ive gone blank sorry. Good luck all and thanx to all who have given words of wisdom esp the spoons theory. All my love clair.

TAKE CARE ALL:A

bigzippy

Elmostreet wrote: »

thanks bigzippy! i'm doing just that! watching 'The waitress' and eating choccy and cuddling my puppy!

I'm telling you - it's the future!!

bigzippy

pinguisace wrote: »

Hi all id like to be an honery member if i can? ... I have scolosis and in 2003 i fell about 10 - 12 feet off a balcony which i fractured my t12 and heel plus i shattered my cocyx. I had to learn to walk again etc but never been right since. I just wish i could get a concreate diagnoises to make life easier to explain.

Hi Clair, I've no prob with honorary members
I had my coccyx damaged years ago and then redamaged during a colonoscopy last year and that was bad enough - can't even begin to think how painful your accident was!! - Actually, I just don't want to!
As for a diagnosis making life easier to explain, I know what you mean but I'm not sure it works that way. It was incredibly frustrating for me when I was in the process of getting a diagnosis (lasted at least 18months, at most about 20 years! :rolleyes:) - I hated that people thought (and still do) just think I'm lazy and workshy and can't be bothered to get a job or anything... I wanted a diagnosis so I could get away from just saying "I'm ill. A medical mystery". Even when I talked to my GP about my diagnosis of CFS/ME he said that it was basically a label given to a number of symptoms as yet unexplained... wonderful(!) :rolleyes:
It is easier, in a way, that I now have some diagnosises, but I think it's more to do with my attitude towards explaining myself and my unemployment - if you see what I mean?
Sorry I think I may have rambled there!

TOBRUK

bigzippy wrote: »

It was incredibly frustrating for me when I was in the process of getting a diagnosis (lasted at least 18months, at most about 20 years! :rolleyes:) - I hated that people thought (and still do) just think I'm lazy and workshy and can't be bothered to get a job or anything... I wanted a diagnosis so I could get away from just saying "I'm ill. A medical mystery". Even when I talked to my GP about my diagnosis of CFS/ME he said that it was basically a label given to a number of symptoms as yet unexplained... wonderful(!) :rolleyes:

It is frustrating when you yourself know you're ill, something is really wrong and you can't get diagnosed. I have M.E. and have had it for around 12 years now. At the beginning you try and fight it because it is so difficult for you to understand let alone anyone else, and the more you try and push yourself (telling yourself there is nothing wrong with me) the worse your symptoms get.

I have been lucky that I have a great GP who is so helpful, understanding and she has tried all kinds of different medication over the years to help with the pain. I saw an ME specialist whom I saw over a period of time but in the end told me that there was nothing he could do only to tell me that he could confirm that I did have M.E. In the end I was unable to carry on working (even part-time) and having to leave work was devastating. I used to have a good job, great career prospects, a hectic social life and was always running around - all of a sudden my life STOPPED!

I have days when I can't get dressed as my body hurts too much and unable to function, brain fog, hangover head, muscle pain, twitching etc. There are times when I can't rest in bed as my body hurts so much the pressure of my body against the bed is painful. Whenever I wake up in the morning (even if it is 4am) I have to get up because my body hurts too much to lie there. I hardly leave the house, don't have a social life an I live alone. It is very difficult to explain to anyone about your condition for them to understand.
Good job I have a sense of humour!;)

deptfreemoneytart

Hi TOBRUK
I've suffered badly in the past with neck,shoulder and head pain plus restless legs.
I've bought numerous " special pillows" all costing the earth, non of which made any improvement. Then I came across a pillow advertised on a FM web site, I bought one and it has improved my head, neck and shoulder pains considerably and it was well priced at £30 + P&P. I can't find the web site but the phone No. for ordering is 0800 3897962 and the company is called The Pillow Centre. The pillow has 50 springs inside so it always supports and never goes flat.
I solved the restless legs problem by buying an adjustable bed and I put the bottom end up to get a better blood flow overnight.
The mattress on the bed is made of bodyform foam and this helps keep other pains at bay.
I still turn over like a chicken on a spit all night and rarely get any rem sleep but turning over is a lot easier and less painful.
I bought my king size bed (2 x 3 ft beds in a king size frame) direct from the manufacturers to keep the price down, but it still cost me £1500 including del. and erection with optional massage. They are a lot cheaper if you leave out the extras and to be fair we don't use the massage very often.
I hope this helps you and anybody else in our world.
Have the best day you can everyone.

TOBRUK

Hi John c, Thank you for that. Every little helps and I too have spent a lot of money on different pillows and spent a lot on a mattress. Recently I bought a very thick feather bed to put on the mattress. This has helped but I still wake up hurting all over,however I have never considered buying an ajustable bed. Are adjustable beds comfortable and are there different types?

poohbear59

Hi Torbruk, The fibro group I belong to has decided that we are all princesses (sorry men, you must be princes) like the princess and the pea. Our beds are always uncomfortable no matter which mattresses we buy. I can find discomfort from a grain of sand in the bed, DH is a builder and although he showers after work each day, bits do still migrate into the bed!!

My chiro and physio have said not to buy memory foam as they tend to encourage you to stay stuck in one position and that makes you sieze up even more in the morning.

I hope all you princesss ans princes have a good Sunday.

deptfreemoneytart

Hi TOBRUK
I bought mine because I was disrupting my OH. This is no longer the case as the beds are separate even though the quilt is covering both of us, and I don't end up with the quilt all on my side every morning. We both find it very comfortable but I still wake up aching in most places, I don't think we can bye our way out of this one, but hey-hoe every little helps.
You can get a variety of different beds, I just went on the net and put adjustable beds in the search engine
I don't get stuck in one place as Poohbear 59,s physio suggests I still spin all night, it's just a more comfortable spin.
Ya pays ya money, ya takes ya choice.
Have the best 24 ya can.