Fibromyalgia

Elmostreet

Hello everyone,
I'm Kati, 29 and have Fibro.
You all sound very friendly.
I'm starting hydrotherapy next week for the bursitis in my hip.
This cold weather is not good for Fibro!
If I could stay in a hot bath all day without wrinkling up like a raisin and the watergetting cold I would!
Katix:j

Careful_with_that_Axe

Hi Kati. Welcome!
Good luck with the hydrotherapy.
Can I ask if anyone else suffers with what I've always called "corned beef" skin. It's an attractive shade of blue/grey and mottled unless I am toasty warm. Have often wondered whether this is part of AI prob.
I don't really feel the cold that much and one thing that I've done is bought a teeny tiny very cheap weather station for the living room to make sure that the environment isn't too cold even if I feel comfortable.
Except, I've had some med changes recently and now do find I'm feeling the cold more. I used to joke that not feeling the chill saved me a fortune on central heating and then just when the fuel prices go through the roof ........
I'm going to try to use the Spoons Theory to explain how I feel to my Dad today, although I suspect it's a lost cause.
I think he won't understand because he can't deal with it.
Mum had SLE and I think my developing somethign similar is too much for him, bless. He's 83 and has enough to cope with.
Oh, fog cleared momentarily and I meant to ask if anyone else, like me, has an almost permanent low-grade fever?

Wishing you all sunshine and light today.
J
x

poohbear59

raeh wrote: »

am i the only one that finds swimming really hard? i was advised to do that for excercise as i find most other things too hard but it really REALLY makes my arms hurt and the cold seems to get me no matter how warm the water appears to be i could really do with some excercise though

stay warm everyone x

Swimming really hurts but I have started to do very slow and simple movements in the pool. I did get help from our hospital Physio department. I only go in if the water is warm and usually in the baby pool. People do stare but I am becoming thick skinned and don't care. I agree though that cold (28 or below) water makes my body ache so much. Today is really frosty again and I am going to order some more firewood as we have run out, and get my fire going. I got a new laptop today so now I can sit in the warm and still be in contact with the outside world.

I should be going to the pool tomorrow but if it si still cold outside I won't go as it really defeats the object if I get too cold.


I have to tell you somewhere that I found that made me feel so much better, for a few hours! Center Parcs Sana Spa had two for the price of one days and as soon as I stepped onto the heated floor I loved it. I was able to use the ,not so hot, steam rooms, the foot spa and the lovely warm pool. I did get myself into the pool and then forgot that I can't climb a ladder to get out. DD had some fun trying to get me out of the pool. I was like a stranded whale. The day included lunch and two or three drinks, I can't remember exactly.

I looked on the internet for a hydrotherapy pool and near us there are only pools for horses and dogs!!

poohbear59

Careful_with_that_Axe wrote: »

Not at all beeka. I wonder if I'm alone in being a very late riser?
I struggle to fill my days sometimes without the structure of work and find that in the evenings I'm more comfortable (as I've more pain relief on board) and can entertain mysef with TV etc. So I tend to stay up til 1ish and then, partly due to the "disease fatigue" can easily sleep 12 hours.
I try to get up before 11am, but then mooch about for several hours until meds kick in.

I am a very late riser. I struggle to focus on anything early in the day. This morning DH got a shock when he brought me my cup of tea at 8am as I was already awake. I usually have cold tea around 9 or 10! I try to stay up until I can't keep my eyes open and then I hopefully will sleep. This week I have been complaining about the bed and pillows being too hard, they aren't, they just seem that way.

poohbear59

bigzippy wrote: »

Lol - I know that feeling!

And I third the bath

I've thought about the wii fit thing - I think me and OH are going to go halves on one for christmas to each other :rolleyes: I've heard good things about it but wasn't sure if it was worth the money (aw c'mon it is an MSE board )
I'll look up the shoes URL, I got them from my local gardening centre so bear with me...

Sorry to post lots of times but I can't remember what I have read if I don't do it straight away.

I won a wii fit in JUne.It is great for weighing and body mass and also encourages you to keep a weel balanced posture. The down side for me is I can't really do many of the exercises. I can't hoola hoop, can't do the yoga, or the jogging. I love the balance exercises and very occasionally (three times since June)!

deptfreemoneytart

Hi all
Thanks for the congrats. on our anniversary, we celebrated with a packet of short bread and a bottle of champagne (we know how to live the high life) and snuggled up warm for the night.

On the point of keeping warm I recently applied to EDF Energy for loft insulation. I've already got some in the loft but it's below government standard, so as I'm on DLA (one of the qualifying benefits) I get it free, the company are coming next Mon. to fit it. Hopefully this will help me keep warmer without turning up the heating.
The only problem was that we had to get the loft emptied. This did have a benefit though as we found stuff we could sell on e-bay to help pay for the champagne.

Hope you all have the best 24 you can.

sharon59

Careful_with_that_Axe wrote: »

Hi Kati. Welcome!
Good luck with the hydrotherapy.
Can I ask if anyone else suffers with what I've always called "corned beef" skin. It's an attractive shade of blue/grey and mottled unless I am toasty warm. Have often wondered whether this is part of AI prob.
I don't really feel the cold that much and one thing that I've done is bought a teeny tiny very cheap weather station for the living room to make sure that the environment isn't too cold even if I feel comfortable.
Except, I've had some med changes recently and now do find I'm feeling the cold more. I used to joke that not feeling the chill saved me a fortune on central heating and then just when the fuel prices go through the roof ........
I'm going to try to use the Spoons Theory to explain how I feel to my Dad today, although I suspect it's a lost cause.
I think he won't understand because he can't deal with it.
Mum had SLE and I think my developing somethign similar is too much for him, bless. He's 83 and has enough to cope with.
Oh, fog cleared momentarily and I meant to ask if anyone else, like me, has an almost permanent low-grade fever?

Wishing you all sunshine and light today.
J
x

I have fibro and get the mottled strange coloured hands along with freezing cold goose bumped clammy skin when inside lm boiling hot or other times l get dripping persperation out of the blue!
Temperature wise mine is always very low-a raised temperature for me is about 36 degrees.

bigzippy

poohbear59 wrote: »

Sorry to post lots of times but I can't remember what I have read if I don't do it straight away.

I won a wii fit in JUne.It is great for weighing and body mass and also encourages you to keep a weel balanced posture. The down side for me is I can't really do many of the exercises. I can't hoola hoop, can't do the yoga, or the jogging. I love the balance exercises and very occasionally (three times since June)!

I'd love to win one, but I fear I'll be waiting til after the wedding for that! I think if we've got the money (OH should be getting some back pay) we'll get it and if not then we'll think of something else...:rolleyes:

Hydrotherapy, physio, pain clinics... all sounds great... but why isn't it being offered to me?

Last night was not fun. I remembered, too late, that the cold doesn't just affect my fibro, but also my asthma... and ended up in A&E for the night :doh:I tell you what - those hospital gurneys+fibro=PAIN!

bigzippy

Careful_with_that_Axe wrote: »

Hi Kati. Welcome!
Good luck with the hydrotherapy.
Can I ask if anyone else suffers with what I've always called "corned beef" skin. It's an attractive shade of blue/grey and mottled unless I am toasty warm. Have often wondered whether this is part of AI prob.
I don't really feel the cold that much and one thing that I've done is bought a teeny tiny very cheap weather station for the living room to make sure that the environment isn't too cold even if I feel comfortable.
Except, I've had some med changes recently and now do find I'm feeling the cold more. I used to joke that not feeling the chill saved me a fortune on central heating and then just when the fuel prices go through the roof ........
I'm going to try to use the Spoons Theory to explain how I feel to my Dad today, although I suspect it's a lost cause.
I think he won't understand because he can't deal with it.
Mum had SLE and I think my developing somethign similar is too much for him, bless. He's 83 and has enough to cope with.
Oh, fog cleared momentarily and I meant to ask if anyone else, like me, has an almost permanent low-grade fever?

Wishing you all sunshine and light today.
J
x

Seconding welcoming Kati. :hello:
"Corned beef skin" I never used to get, but I get it more on my legs now. I see my veins a lot more now too, which apperently is normal when you're tired - and they are more obvious when I'm more tired.
I never used to feel the cold before... until the last 2 years... now the slightest draft or drop in temperature makes my nose turn to ice, my feet, my fingersand wrists. And yes, as for an "almost permanent low-grade fever" - I'm always going hot and cold and breaking fevers in my sleep. Drives me crazy and makes it very difficult to work out what to wear!
Goodluck with your dad! Hope it doesn't end up like it is with my folks... :wall:

poohbear59

bigzippy wrote: »

I'd love to win one, but I fear I'll be waiting til after the wedding for that! I think if we've got the money (OH should be getting some back pay) we'll get it and if not then we'll think of something else...:rolleyes:

Hydrotherapy, physio, pain clinics... all sounds great... but why isn't it being offered to me?

Last night was not fun. I remembered, too late, that the cold doesn't just affect my fibro, but also my asthma... and ended up in A&E for the night :doh:I tell you what - those hospital gurneys+fibro=PAIN!

I hope you are feeling better today. I've decided not to venture out in the cold tomorrow. I am meant to be going to the pool but, having been reminded, thanks, about asthma too I think I will stay in the warm.