Fibromyalgia

septemberblues

poohbear59 wrote: »

Hi Torbruk, The fibro group I belong to has decided that we are all princesses (sorry men, you must be princes) like the princess and the pea. Our beds are always uncomfortable no matter which mattresses we buy. I can find discomfort from a grain of sand in the bed, DH is a builder and although he showers after work each day, bits do still migrate into the bed!!

My chiro and physio have said not to buy memory foam as they tend to encourage you to stay stuck in one position and that makes you sieze up even more in the morning.

I hope all you princesss ans princes have a good Sunday.

Oooh, my mum has recently bought a memory foam mattress type thingy for me, I don't tend to move at all during the night - maybe that's why I'm seized up in the morning............................ I like the memory foam thing though as it's warm, before I had to have an electric blanket, I hate a cold bed!

Careful_with_that_Axe

Hello everyone.
Slept looooong last night and have a quiet day planed today with hopes of hitting the ground running next week.
deptfreemoneytart - I'm with you on the night spinning. It's no wonder we're all tired when we're woken at night with pain and have to adjust position.
That aside, I'm glad you came back and posted - you've been in my mind these last few days as you seemed very sad in previous posts.
Stay and chat with us and take support wherever you can find it.:grouphug: (dodgy hug!)

Found a "bath spa" in Superdrug the other day for £9.99. Am still considering it as it could make my daily hot bubble baths have dual purpose. If I put enough bubbly stuff in, do you think I could fill the bathroom and thus clean it at the same time? :rolleyes:
Stay warm everyone.

Careful_with_that_Axe

p.s. for those who have stomach probs with amitryptiline, I've been on Omeprazole (stomach protector) due to long-term steroid use and haven't experienced any tummy ache with ami. May be worth mentioning to medics to see if it would be worth it for you?

septemberblues

Careful_with_that_Axe wrote: »

p.s. for those who have stomach probs with amitryptiline, I've been on Omeprazole (stomach protector) due to long-term steroid use and haven't experienced any tummy ache with ami. May be worth mentioning to medics to see if it would be worth it for you?

OMG if I ask my doctor for anything else she will have kittens! (But I will ask)

I was wondering, I have FMS and suffer from depression, does anyone else on here?(That's why I'm on 150mg Amitryptiline). Do we suffer depression because of the FMS (or as part of the illness), or do I just happen to have FMS & depression IYKWIM!

Hope you can understand what I mean, the fibrofog is not going to let me be any clearer today...........................

somebody_else

septemberblues wrote: »

OMG if I ask my doctor for anything else she will have kittens! (But I will ask)

I was wondering, I have FMS and suffer from depression, does anyone else on here?(That's why I'm on 150mg Amitryptiline). Do we suffer depression because of the FMS (or as part of the illness), or do I just happen to have FMS & depression IYKWIM!

Hope you can understand what I mean, the fibrofog is not going to let me be any clearer today...........................

Bearing in mind that I'm not a doc, but I a) have plenty of experience with my own conditions (pick any one of a dozen - although no-one is quite sure what's causing my symptoms, but they're all pretty sure that the suba
rachnoid haemorrhage didn't help much), and I also used to work with a CMHT (admin only, not clinical, but you do get to pick up a lot of information one way or another). Right, now that waffle is out of the way...

Amitryptiline is known as a 'mood locker'. I was also put on it some time ago, as a muscle relaxant in the hopes that the pain wouldn't keep getting me out of bed every night, and I was gradully titrated to 150 mgs a night. It didn't seem to make a noticeable difference to the pain at that dose but it did leave me feeling very, very depressed and in floods of tears a lot of the time. I asked to come off it, and was again titrated down very slowly - once I got down to around 100 mgs I felt my mood lift considerably. I was taken right back to 10 mgs, and then gradually brought back up to 25 mgs nocte. At this dose, I find it's beneficial with regard to being able to stay in bed most nights, even if I still wake regularly to shift position to ease the pain in various joints. Another beneficial side-effect with it is that I'm not now getting up 3 or 4 times a night every night to go to the toilet. Which has got to help.

It might be worth discussing a reduction in dose with your GP to see if your depression improves.

septemberblues

It's all a bit complicated, I was put on 150mg Amitryptiline by a psychiatrist, not my doctor.

bigzippy

Careful_with_that_Axe wrote: »

p.s. for those who have stomach probs with amitryptiline, I've been on Omeprazole (stomach protector) due to long-term steroid use and haven't experienced any tummy ache with ami. May be worth mentioning to medics to see if it would be worth it for you?

Oooh now that's interesting - I've been on both for the last few weeks cos I went to the GP complaining I felt sick all the time and like my food was stuck in my throat. He said it was more than likely an acid problem and if I kept taking the Omeprazole then it should cure it (can I just say - how difficult are those blisters to get into?? :mad:). I'd never thought to connect it to the Amitriptyline... I really think I might wanna try coming off them now... I don't wanna keep putting on weight (esp before the wedding) and I can't be doing with the sick feeling forever... Think it's time for a GP return -I'm sure he'll be pleased to see me again so soon

deptfreemoneytart

Thanks , Careful with That Axe, I enjoyed the dodgy hug and gave the wife one, hug that is.
I'm not sad, I sometimes come across that way when writing.
Enjoyed the hug anyway.
Enjoy the next 24

somebody_else

septemberblues wrote: »

It's all a bit complicated, I was put on 150mg Amitryptiline by a psychiatrist, not my doctor.

Erm... but you could discuss it with whoever you're likely to see first? Or a CPN if you have input from the CMHT.

I'm not suggesting that you just stop taking it - but maybe discuss the possibility that the amit is exacerbating the depression rather than treating it? After all, very few people find the right anti depressant first time round. I was put on Prozac many years ago 'cos a doc was adamant my problems were in my mind rather that my brain. Dear God... but that's another story entirely.

It's entirely up to you - I won't be the least put out (not my place) if you choose to ignore what I've posted (sorry, brain's turned to sludge and this isn't coming out right - at least I can't find the right words for what I want to say), but it's information that helped me that my GP wasn't aware of at that time, so I just wanted to pass it on.

raeh

good afternoon everyone :wave:

i cant believe how much we all have in common, after people never understanding the way i feel

id kill to have a nights sleep where i feel like iv actually slept for any length of time i bought the feather matress topper, i have a memory foam pillow and also one that supposedy supports but doesnt go flat? i still ache constantly and have to shuffle to try and get comfy all night... makes for not a great night for DH too! we had looked at the memory foam beds but i think i might look at the adjustable beds, thanks deptfreemoneytart im not sure where il find the money though :rolleyes: i would love to find a painkiller or relaxant that lets me sleep without making me feel the next day like i have a bad hangover and a cotton wool head.
does any one else bruise? sometimes when iv laid with maybe my knees touching for ages in bed i will get a bruise where they touched together, and i only have to knock myself slightly and i get bruises, as someone esle said a while back though whenever i see the gp about anything they just put it down to the fms

re the depression and fms , when i was diagnosed [after 18 months of prodding and poking and endless blood tests] i was just sent on my way with the message that i should get antidepressants and most people with fms are depressed due to living with thepain!! i was determined that it wouldnt affect me that way and up to now even though the pain really gets me down i wouldnt say im really depressed...but im sure depression is connected due to what we cope with? does that make any sense all?


ok iv waffled again for ages, i hope everyone is having a relaxing sunday and keeping out of this terrible rain! xx