Fibromyalgia

natzini

raeh wrote: »

i love your thinking :T i did the same recently, bought a pair of shoes for a night out [only have about 2 a year so pushed the boat out] and figured they were far too high to walk in but as i cant walk far anyway what the heck :rotfl:

You have the same thinking as I do! You have to stay positive through it all. I get really sad sometimes but I was diagnosed 3 years ago at 26 and there is no way I am going to go through the rest of my life with a bad attitude, it just won't work, or be me being who I am.

raeh

thats just ignorance careful with that axe and nothing else to not acknowledge a donation!!! :mad:

and inspired by my fellow sufferers [and after living with bad hair and face for many years!!!] I am going to give myself a full face of make up and most fabulous smokey eyes :rotfl: even if i wont be leaving the house!! Thats my almost at the end of october resolution.....look good, as if im off out somewhere even when im not.

Careful_with_that_Axe

Go for it! I'm going to do the opposite - give myself a mini-facial.
Hope no-one knocks on the door when I have the homemade porridge face mask on
Will also have to stop myself licking it off :rolleyes: I have the munchies

beeka

raeh & careful with that axe - that's exactly my experience too. I have met some lovely people whilst attending various groups and courses, but there have always been these dominant characters who just want to complain and they really take over and spoil things for everyone.
It's good to be able to share, because that tells you that you're not alone; it's good to be able to tell others that a particular pain or health issue is going to be a problem for you today, because it's reassuring that they'll understand where you're coming from; it *isn't* good to hear constantly that life is crap etc, we have enough of that going on our own heads without getting drowned in it from someone else.
The way I see it is that yes I've had some awful s**t to deal with in my life, not just Fibro, but there are plenty people who are far worse off than me. So, it helps to come here for the solidarity and to see what tips everyone has, and to be understood. Beyond that, I'm trying to keep my eye on the good things and keep going towards that as much as possible.

Hope you've all had a lovely day and are about to have a restful evening
xxx

beeka

Oh dear... it looks like I have killed this thread! Sorry! Hope I didn't offend anyone?

Anyway, I hope you're all feeling ok as can be this morning and that the freezing cold isn't causing you too much pain - get snuggled up in your duvet if you can!

Careful_with_that_Axe

Not at all beeka. I wonder if I'm alone in being a very late riser?
I struggle to fill my days sometimes without the structure of work and find that in the evenings I'm more comfortable (as I've more pain relief on board) and can entertain mysef with TV etc. So I tend to stay up til 1ish and then, partly due to the "disease fatigue" can easily sleep 12 hours.
I try to get up before 11am, but then mooch about for several hours until meds kick in.
I am constantly being criticised for this by my Dad who is a very early riser and I do sometimes think I'm out of synch with the normal world.
It's partly fuelled by living alone (apart from the moggie).
I've never asked about this before, but am I alone in doing this?
Anyhoos, the rain has stopped today and the sun is doing it's best. I was given some bath bombs, so my daily hot bath will be an extra special treat today!
I'm going to motivate myself to doing some housework in the bedroom with this to look forward to at the end of the day. That and some Ben & Jerry's that I've discovered since my Dad gave me his old freezer!
How is everyone else?

beeka

TBH I've always been a late riser because of the Fibro, even to the extent that I changed my work patterns. I am starting a new job though in 2 weeks so at the moment I'm trying to give myself an earlier routine that I can manage.
I have to say it is a bit scary to me to consider that I might not be able to work in the future as so many here seem not able to manage it. I'm really hoping that I can manage the pacing and routines well enough to work for as long as possible. To do this though, I've taken a drop of a third in my wage so that the work is work I can do with my eyes closed (hoping it won't come to that though!) and still be able to do everything else I want to do - it's scary though because until I start I won't know whether I'll cope...
I find that I'm not an early bird but also not a night owl - my best time is from 10ish till 1300 :rolleyes: not great...
Ah well, I can only try!
xxx

raeh

good afternoon, i dont get up late as usually im out at work early but if i was left in i think i would sleep the day away and still not feel rested lol. Its better for me to get up at the same time even though its the holidays as my back is terrible when i lie in.
Beeka i worry about being too tired to work but i find as long as i rest when i need it in the afternoons and usually use the whole weekend for recuperation im ok? i know everyone will be different but i do think its all about the way you view things? and im not giving in to any blinkin 'illness'

Does anyone else have the trouble i have though? i have this especially with a friend/neighbour..... because im a stubborn cow and never ask for help and say i cant do something [id rather struggle through until im collapsing] she thinks that the fms cant be that bad! and if anyone asks how i am my standard answer is fine thank you

anyway i hope you are all coping ok with this horrible icy cold weather x

Careful_with_that_Axe

Absolutely with you on that raeh. I became very proud of my independence when my second marriage ended and now, asking for help feels like defeat.
However, I'm always grateful if someone offers as it's a lot easier to say "Yes, please" when you do need a hand that to ask.
Ths sun lasted all of 5 mins here, and there wasn't as much needing doing in the bedroom as I thought, so I've rewarded myself with a bowl of Strawberry Cheesecake ice cream. :rolleyes:
Am off to Theatre on Sat to see an Agatha Christie production and have just been persuaded to book a ticket to see Caberet. I've seen neither the film nor the stage show and had been dithering for a while as there's no matinee available.
But I've been and gorn and done it

Hope everyone has found something to smile about today.

Now, hot bubble bath or ironing??

raeh

Hmmmmm hot bubble bath or ironing, let me ponder that for a micro second..... bath!!! :rotfl: id choose almost anything over ironing

the theatre sounds fab, sleep the day before, sleep the day after and you will be fine

i know what you mean about asking for help, il say yes when someone offers to help me but il never ever actually ask for help