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Thanks, I totally agree with you.I have been trying to do the same, only say positive things. The sun is shining so I think I will go outside for a little wander in the garden.
'I had a black dog, his name was depression".
I can't walk very far now, but it means I can wear the most ridiculous shoes because I can't walk far enough for them to hurt my feet!
There's a plus side to everything - you just need to find it.
Thanks! That's really helpful and glad to know my puffy face may be because of the drugs.
@ gipsie - thanks for the offer but I don't think you need to keep posting it, if people want to join your group they will do so through your earlier post. I'm very happy here for now for all the reasons already stated. I'm feeling very supported and at home, even if only in a 'virtual' way! :T
OOPs also meant to say hope you're all doing well as possible today! xxx
- Andy Dufresne, The Shawshank Redemption
We all know how difficult it is to accept this condition, coming to terms with the changes you have to make, realising that you will never be back to the way you were.
Like many i cannot work anymore, and being in my early 40's was very hard to accept.
Ive tried accupuncture and it made me worse couldn't move for 3 weeks.
But Reike has had a profound effect on my life as it enables you to calm yourself down and helps with reducing the pain.
sending love to all my fellow sufferers.
xxx
If anyone is on Facebook there are some great Fibro support groups on there, and I'm a member of FMS SAS so if anyone wants details on that fabulous support group, please pm me
Half term but I have loads to do. It's quite shocking actually. When I get back from work I barely have the energy to heat up some food, so the flat gets ignored, so that needs to be dealt with! Plus we need to get some quotes for our shower and hot water tank to be fixed... wish me luck!
Un sou est un sou
Half term so even though i have a week off which is lovely im needing more energy as the kids will be wanting to do things lol
Gypsie i apologise if i sounded negative to your help group, i never meant to come across that way, its just that when i first had my formal diagnosis [and i know that was a lot of years ago so attitudes have changed] i was put in touch with a couple of groups to help me adjust and i found that they left me feeling very depressed as the people were very negative about their 'condition' and told me about all the things they couldnt do, thats not what i wanted to hear, i wanted to know everything was going to be ok?? naive maybe? I was left for quite a while thinking this was the way the rest of my life was going to be and i was only in my late 20's, for quite a while i focussed on what i couldnt do and made everyones life miserable and then one day just thought s*d it, i cant have this and concentrated on what i could do when i was well enough and went back to work [they were brilliant letting me go part time and only mornings] there actually isnt much i cant do now,albeit in pain and always knackered afterwards but im living again.
Again im sorry if you feel i was negative towards your group but i find threads like this with likeminded people far more helpful as this is only a small part of me being on mse?? i hope that all makes sense and to everyone else i apologise for rambling on, you may find i do that quite regularly when i get started lol
good luck with your quotes natzini
Thank you to everyone who posts comps xxx
i love your thinking :T i did the same recently, bought a pair of shoes for a night out [only have about 2 a year so pushed the boat out] and figured they were far too high to walk in but as i cant walk far anyway what the heck :rotfl:
Thank you to everyone who posts comps xxx
I have for the last 8 years been suffering with what I now think maybe FMS, it all started after a rather nasty stomach infection which I never fully seemed to recover from...
Over the years I have been back and forth to the doctors due to near constant pain, feeling dreadfully unwell, low mood, inability to sleep and even when ive managed to I feel worse than I did before etc etc... Ive been told it was depression, anxiety, tendonitis etc but the docs always seem to have this look on there faces that says "Heres another lazy lay-about" and that is the wall I have always found the most difficult to break down... I get extremely frustrated that I dont look more ill cause I honestly feel that most of the time your judged on appearance, I wish I could let my personal hygene go or let myself look unkept but I cant, as most people who have been in pain for a period of time will tell you, you have to adapt your lifestyle to compensate for your illness... Lookin fresh and bright doesnt mean I am not in pain/feeling down etc...
I have just had spine surgery, fusion, disc removal and a wallice implant and am in my final week of total bedrest before the physio work commences, which im dreading, not because I dont want to get better but because i dont want the agonising muscle pains that accompany it........
I suffer with spine probs, stomach ulcers, barretts, ibs etc and while in hospital for the spine op one of the nurses mentioned I should get check for FBS cause it could have been this all along that could explain alot of the problems ive had, finding this fantastic post has made me even more determind to seek further help as soon as im back on my feet...
Oh im a 37 year old male....lol...
Goodluck and better health to everyone...
i hope your physio isnt too bad for you xx
Thank you to everyone who posts comps xxx
The thing that upset me most profoundly was that at her funeral we had a collection for Lupus and raised may hundreds of pounds. We never got so much as an acknowledgement from them.
I sortta feel that self-help groups aren't for me, horses for courses etc.
I've now been inspired by Polobint to go and "do" my hair after a bad hair 3 years
Have a good afternoon all - we rock!