Fibromyalgia 22 October 2008 at 2:21AM edited 30 November -1 at 12:00AM in Disability Money Matters 2.7K replies 84K views

poohbear59

POLO_BINT wrote: »

Morning people!!! Can't believe I am up, showered, dressed and have my make-up and hair done already!!!! OH thinks i'm losing the plot as I am never up and about "properly" until gone midday!!! Woooohooooooo!!!! Just need to clear the ming fog now and i'll be set for the day! After catching up with all your posts early hours of this morning, I have decided that I am going to try not to moan once today! (need to give OH's ears a rest I think lol) So... mission is to see how long before I end up reeling off each and every part of my anatomy which is hurting Its gonna be tough, I have commissioned OH in to timekeeping! I think half the time I say to OH where it all hurts may be out of habit! I am totally fed up with saying to him i'm in loads of pain when he asks how I am feeling. I know he understands and knows i'm in pain all the time and in every part of my body, so have decided it is pointless moaning about it all the time.... So here goes..... Have a fab day everybody!

Thanks, I totally agree with you.I have been trying to do the same, only say positive things. The sun is shining so I think I will go outside for a little wander in the garden.

Careful_with_that_Axe

I agree to looking on the positive side of everything. It means you live despite your problems rather than with them iyswim.
I can't walk very far now, but it means I can wear the most ridiculous shoes because I can't walk far enough for them to hurt my feet!
There's a plus side to everything - you just need to find it.

beeka

septemberblues wrote: »

Im on amitryptiline 150mg and yes, I have put on a little bit of weight, but my face gets puffy sometimes at this dose, I think it could be water retention or something, I read somewhere that if you're on ami you should avoid salt, as that's what makes you puffy IYKWIM.

Thanks! That's really helpful and glad to know my puffy face may be because of the drugs.

@ gipsie - thanks for the offer but I don't think you need to keep posting it, if people want to join your group they will do so through your earlier post. I'm very happy here for now for all the reasons already stated. I'm feeling very supported and at home, even if only in a 'virtual' way! :T

OOPs also meant to say hope you're all doing well as possible today! xxx

nephasu

Hi all fellow Fibro sufferers, i'm Susan and ive been diagnosed with fibro for 2 years now, 1 year after having an accident at work.

We all know how difficult it is to accept this condition, coming to terms with the changes you have to make, realising that you will never be back to the way you were.

Like many i cannot work anymore, and being in my early 40's was very hard to accept.

Ive tried accupuncture and it made me worse couldn't move for 3 weeks.
But Reike has had a profound effect on my life as it enables you to calm yourself down and helps with reducing the pain.

sending love to all my fellow sufferers.
xxx

natzini

Hello everyone! Nearly said good morning, but realised it's the afternoon. Been up since the crack of dawn, then realised I could only have water as I had blood tests this morning, one of which was a fasting one. Got back and threw up, have felt awful ever since.

If anyone is on Facebook there are some great Fibro support groups on there, and I'm a member of FMS SAS so if anyone wants details on that fabulous support group, please pm me

Half term but I have loads to do. It's quite shocking actually. When I get back from work I barely have the energy to heat up some food, so the flat gets ignored, so that needs to be dealt with! Plus we need to get some quotes for our shower and hot water tank to be fixed... wish me luck!

raeh

Good afternoon everyone, i hope we are all having a good day
Half term so even though i have a week off which is lovely im needing more energy as the kids will be wanting to do things lol


Gypsie i apologise if i sounded negative to your help group, i never meant to come across that way, its just that when i first had my formal diagnosis [and i know that was a lot of years ago so attitudes have changed] i was put in touch with a couple of groups to help me adjust and i found that they left me feeling very depressed as the people were very negative about their 'condition' and told me about all the things they couldnt do, thats not what i wanted to hear, i wanted to know everything was going to be ok?? naive maybe? I was left for quite a while thinking this was the way the rest of my life was going to be and i was only in my late 20's, for quite a while i focussed on what i couldnt do and made everyones life miserable and then one day just thought s*d it, i cant have this and concentrated on what i could do when i was well enough and went back to work [they were brilliant letting me go part time and only mornings] there actually isnt much i cant do now,albeit in pain and always knackered afterwards but im living again.
Again im sorry if you feel i was negative towards your group but i find threads like this with likeminded people far more helpful as this is only a small part of me being on mse?? i hope that all makes sense and to everyone else i apologise for rambling on, you may find i do that quite regularly when i get started lol

good luck with your quotes natzini

raeh

Careful_with_that_Axe wrote: »

I agree to looking on the positive side of everything. It means you live despite your problems rather than with them iyswim.
I can't walk very far now, but it means I can wear the most ridiculous shoes because I can't walk far enough for them to hurt my feet!
There's a plus side to everything - you just need to find it.

i love your thinking :T i did the same recently, bought a pair of shoes for a night out [only have about 2 a year so pushed the boat out] and figured they were far too high to walk in but as i cant walk far anyway what the heck :rotfl:

atc28uk

Thought id join this site after reading through this excellent post..

I have for the last 8 years been suffering with what I now think maybe FMS, it all started after a rather nasty stomach infection which I never fully seemed to recover from...

Over the years I have been back and forth to the doctors due to near constant pain, feeling dreadfully unwell, low mood, inability to sleep and even when ive managed to I feel worse than I did before etc etc... Ive been told it was depression, anxiety, tendonitis etc but the docs always seem to have this look on there faces that says "Heres another lazy lay-about" and that is the wall I have always found the most difficult to break down... I get extremely frustrated that I dont look more ill cause I honestly feel that most of the time your judged on appearance, I wish I could let my personal hygene go or let myself look unkept but I cant, as most people who have been in pain for a period of time will tell you, you have to adapt your lifestyle to compensate for your illness... Lookin fresh and bright doesnt mean I am not in pain/feeling down etc...

I have just had spine surgery, fusion, disc removal and a wallice implant and am in my final week of total bedrest before the physio work commences, which im dreading, not because I dont want to get better but because i dont want the agonising muscle pains that accompany it........

I suffer with spine probs, stomach ulcers, barretts, ibs etc and while in hospital for the spine op one of the nurses mentioned I should get check for FBS cause it could have been this all along that could explain alot of the problems ive had, finding this fantastic post has made me even more determind to seek further help as soon as im back on my feet...

Oh im a 37 year old male....lol...

Goodluck and better health to everyone...

raeh

good luck atc28uk, keep asking questions and maybe try to see a different GP as thats when i was told about fms after years of the same gp telling me it 'must be' arthritis pains!!

i hope your physio isnt too bad for you xx

Careful_with_that_Axe

raeh, I understand your feelings about some self-help groups. Mum went to one local Lupus group and they were very much "No, I'm far more ill than you!". She never went back.
The thing that upset me most profoundly was that at her funeral we had a collection for Lupus and raised may hundreds of pounds. We never got so much as an acknowledgement from them.
I sortta feel that self-help groups aren't for me, horses for courses etc.
I've now been inspired by Polobint to go and "do" my hair after a bad hair 3 years
Have a good afternoon all - we rock!