The (not so old) Crocks Cafe

black_paw

blue dog welocome here.what a nice note you read , sorry to hear of your saga ..but it seems you have to fight for every thing these days..i had a brilliant disabled group take on my stuff , and sign over my rights to them so they could pull doctor notes hospital stuff ..direct to them , by fax ,e-mail ...they where brill..did'nt know even on day of tribunal you could cancel by fax if your waiting for more evident to arrive ! they where brill and took all weight off me/mine and did all the paper work, and came to tri too ....brilliant
waves to all and hugs to the needed

Trialia

Sorry I've been so quiet, guys. Got a move-in date for the new place: 4th February. Hopefully I will be physically fit enough to handle packing by then - have been pretty bad the last week or so, overwhelming fatigue, lots of subluxations and chest pain, though I think that last is the usual costo flare. I've got to get an appointment with my doctor before I move...

Glad you're all around. I hope everyone else improves too *hugs you all carefully*

jazabelle

black_paw wrote: »

blue dog welocome here.what a nice note you read , sorry to hear of your saga ..but it seems you have to fight for every thing these days..i had a brilliant disabled group take on my stuff , and sign over my rights to them so they could pull doctor notes hospital stuff ..direct to them , by fax ,e-mail ...they where brill..did'nt know even on day of tribunal you could cancel by fax if your waiting for more evident to arrive ! they where brill and took all weight off me/mine and did all the paper work, and came to tri too ....brilliant
waves to all and hugs to the needed

Was it DIAL? I keep hearing good things about DIAL, but they are miles away from me, and said they couldn't help when I asked.

I'm worried about if I have to got to tribunal again I will have no one to support me. CAB were useless last time, our town don't have a Welfare Officer that helps individuals, I've tried various Essex Disability Groups etc. If you found someone useful I'd like to know who they were so I can see if we have one?

I would love someone to come with me to the tribunal to represent me. I don't think I could go through it again.

HopeAndDriftWood

I know how you feel Jaz, I'm preparing for tribunal at the moment but the CAB near me 'don't deal with DLA', there isn't a DIAL close enough so they say they can't help and the disability group said they didn't know, and were worried they would get it wrong.

I'm finding it really stressful and horrid...I'm hoping I can get an extra doctors note explaining everything and maybe they'll change their mind without tribunal?

jazabelle

SaucySecrets wrote: »

I know how you feel Jaz, I'm preparing for tribunal at the moment but the CAB near me 'don't deal with DLA', there isn't a DIAL close enough so they say they can't help and the disability group said they didn't know, and were worried they would get it wrong.

I'm finding it really stressful and horrid...I'm hoping I can get an extra doctors note explaining everything and maybe they'll change their mind without tribunal?

Aw, I went through a tribunal last year and it wasn't a fun experience at all.

Are you in Essex? There seems to be a huge gap here with no help near me at all. Just wondered if we were in the same area!

CAB said they were too busy to get the claim forn. They did help a little with the tribunal - but they simply wrote to a couple of people to get additional information, which I could have done. I needed someone to help me gather evidence and present it effectively instead.

Did you have medical evidence in your original claim? GPs letters, consultants, etc? I don't think one letter will change their minds, sorry. Have you asked for an oral hearing?

bigzippy

jazabelle wrote: »

Aw, yeah, it's a very stressful experience. Obviously I keep thinking about it again, and I think I missed out loads of points. He barely asked about the care I needed.

He didn't ask anything that wasn't on the original claim form. The claim form contains 100 x the information his report will.

Maybe he was only checking that what you were saying in person was relevant to the form, so they could believe the content of the form, and therefore didn't have to ask you everything in detail?

Invasion wrote: »

I get sore nostrils too, and I'm on amitrip and tramadol- both things which can give you a dry mouth.. Though can also be related to allergies. Mine get to the point where the insides of my little nose-y get so sore and dry that they scab and it's really uncomfortable, I find Sterimar- 100% natural sea water spray- really helps to stop them getting to dry and sore... you squirt it up your nose for long enough for it to drain back out of your nose, just don't swallow any

Yeah I do too, I got it before the drugs started tho, and I don't take Tramadol that often if I can help it. I'm on Ami all the time, but still - I'm sure I used to get this before anyway...? I'm on a really strong antihistamine too. That spray sounds pretty hideous tho lol. But if it helps? I get a Nasonex spray from the docs - it's a steriod spray that's supposed to help with the production of phlegm etc... It does help.

SaucySecrets wrote: »

I know how you feel Jaz, I'm preparing for tribunal at the moment but the CAB near me 'don't deal with DLA', there isn't a DIAL close enough so they say they can't help and the disability group said they didn't know, and were worried they would get it wrong.

I'm finding it really stressful and horrid...I'm hoping I can get an extra doctors note explaining everything and maybe they'll change their mind without tribunal?

I'm finding it difficult to believe that your CAB wouldn't deal with DLA full stop. Didn't they mean that they could only help with certain aspects of the claim? Afaik CAB have to help you with anything to a point. Maybe their point is that they can't go to tribunal cos they don't have the resources and staff?

I'm highly doubting that they would change their minds about the tribunal. The only way it would get dropped is if you withdraw. The only reason there's a tribunal is if you're pushing for a resolution that can't be reached any other way. If you stop pushing, then there's no tribunal, but you won't get the resolution that you want either.

Tria I hope you get the energy for packing soon. I know how it feels to know it has to happen but not have what it takes.

:wave: to everyone else, I can't remember anything else!

I only got to sleep about 5.30am and then woke up at like 4pm. It's annoying me now. I'm starting to consider staying up through tonight to try and reset for sleeping tomorrow night.:cool:

black_paw

after dropping mug coffee on kitchen floor, i have now dropped the container with the chicken oil in it , did pieces of chicken in oven ...arggg...sort out tomorrow now ! arggggggg dropping day !

Oscar_The_Grouch

Bad day today. Left hand is cold. Typing is all over the place and spasms in my back are bad. Not feeling my legs very well....

Be back tomorrow.....

SingleSue

I've overdone it....in a bid to keep my brain busy to stave off the down feelings I have been having, I did a mad sort out of my cupboard under the stairs (which is also where the pc is).

This produced 2 big bin bags of stuff to throw out (I have been very brutal) but instead of waiting for eldest to get home and take them around to the back garden where our wheelie bin is, I took them around myself...one of them, only by kicking at the bottom while lifting at the top one step at a time.

Now my shoulder is agony, my back a nightmare, I have a headache...and to top it all, finally sat down, a sad song came on on my media player and I sat here and blubbed like a good un.

Oh well, won't have to do that clear out again for a while.

The_Dragon

Good luck with the DLA Jaz (and what is ESA people?), not been on much as my computer is playing silly beggars (as is my pain and my SAD), fed up with ,medical appointments, Dr Dragon hopes to get the computer back and working well tonight (well for a little longer but I probably need another computer *sigh*)

Hugs to everyone else and if anyone has made any coffee cake recently ......... :whistle: