The (not so old) Crocks Cafe

sandy71

Hello hope you are all ok. Good to se you LW

HopeAndDriftWood

Jaz - The nurse asked me to bend down during my ESA medical, and touch my toes. I told her I would rather not, as I couldn't do it anyway, and it would cause me a lot of pain. I'm not sure what she recorded it as, but I got ESA!

Looking at my DLA appeal papers. Makes me want to cry!

purplecatlover

LameWolf wrote: »

Thanks, Invasion. Been feeling very despondent, and don't want to drag everyone down with me, hence going into "lurk" mode. Still reading the thread, though.

dont get how your posting would drag everyone down, nothing wrong with asking for a bit of support now and then when something in particular is playing on our mind, or as we did in the fibro thread, do here and initially did in the other thread.
if lurking is what you need to do for you then f/e. miss you though.

jazz i sent you a pm elsewhere, hope its gone ok today.

oscar yay for the good nights sleep, shame they havent done what they were sposed to though, maybe they take a few days/weeks to build up to controlling things?

HopeAndDriftWood

LW - You should talk, not lurk. You won't bring everyone down, and I miss you I don't talk to many other people then in here, and my OH, so every one counts!

jazabelle

Thanks everyone!

The doctor has just left. It was okay, I suppose. He didn't look around the house or make me go upstairs. He did a very quick examination fully clothed. He made me do things like put my hands together, and stuff like that. Not quite sure how it's relevant, but ah well. Also did a few tests for my asthma.

Question wise - he would often plough through something without giving me a chance to respond fully.

For example he said on a typical day, first you get out of bed, I then explained the help I needed to do so, and then he like "right then you shower and dress - what then?"

My mum then said it's not just a case of washing and dressing, she need help with that. He was like, okay, so you wash and dress with help - what next? So he never asked in what way, etc.

He always moved onto the next thing before I could expand, so I wonder if a lot of assumptions have been made there.

Will have to see, I guess.

Thanks for everyone's support while I have been freaking out! Very much appreciated.

Invasion

Oh, Jaz, I didn't fall, I just couldn't move from where I was as so exhausted, so had a lie down before trying to make the mammoth trip up the stairs.

LW, I don't think any of us here would have any problem with you un-lurking!

Jaz, hope everything went ok today

jazabelle

Invasion wrote: »

Oh, Jaz, I didn't fall, I just couldn't move from where I was as so exhausted, so had a lie down before trying to make the mammoth trip up the stairs.

Oh good, glad you didn't fall. Although of course exhaustion sucks too!

Invasion wrote: »

LW, I don't think any of us here would have any problem with you un-lurking!

I certainly wouldn't - I've been blathering on the last few days enough, it's your turn to share your worries!

Fantabulous

jazabelle wrote: »

It would be the truth in my case. Well, I can make a ready meal (but have often forgot about it!), but not a main meal.

The main reason is exhaustion. I often start a meal, and then completely drain of energy and have to have my mum take over. I struggle to lift pans and things with my wrists, I forget what I'm doing half way through, I drop things, I burn myself, I cut myself, etc.

Which is fine to sit here and tell you all - but will I remember all this?

You've all been so helpful and I'm so sorry to keep going on about it, but the more I read the more I panic. It seems they judge everything. What if I am having an okay day? I mean I put I had 'good' days, which mean I can function, but am always in pain. But you can't see pain.

I'm also worried he will ask if I will work, and it will be game over. In actual fact I work with my mum, and she's there at all times to remind me take medication and make my meals. I also work from home when it gets bad (which often means taking work home and doing it in my own time) and above all I still struggle with it. I've sat there digging my fingers into myself trying to stay awake, I've almost overdosed by keeping topping up on painkillers because it hurts so much.

Sorry, this isn't a pity me post, I know we're all there, it's about my worry not to tell the doctor all this, or for him to misunderstand.

Just wanted to add my tuppenceworth here

When I originally needed to claim for DLA my GP told me to complete the form as if it were for the very worst day I ever had with my illnesses. So that is what I did and have done with every DLA form since

Hope all goes well for you

jazabelle

Fantabulous wrote: »

Just wanted to add my tuppenceworth here

When I originally needed to claim for DLA my GP told me to complete the form as if it were for the very worst day I ever had with my illnesses. So that is what I did and have done with every DLA form since

Hope all goes well for you

Thanks very much!

That is quite risky though. For example if you say you can't walk (because you can't on your bad days) and then they see you walking, they will take it away and say you were fraudulently claiming.

If you detail sometimes you can't walk, but sometimes can with a stick and then they see you, you've been honest and so it's fine.

Most professionals fill it in saying on a good day it's like this, but on a bad day it's like this. It then covers all your bases.

sandy71

Oscar_The_Grouch wrote: »

Tiny problem with the new tablets; they are supposed to stop my spasms, but my wife got no sleep at all because I spent the whole night twitching!! I'm sitting here now retyping every sentence because my fingers won't go where they are supposed to and when they do, my back spasms and I tpye the worng letetrs!!

Oh well......back to the drawing board.

Hope Jaz gets on well today....

My tablets do similar although I don't twitch all the time I just suddenly throw my arm out or my leg will kick and I can't control it. Gives me a good excuse for kicking my DH when he is snoring
The benefits outweigh the side effects though so I will stick with it.
Your's may be only temporary until your body adjusts to it.

purplecatlover wrote: »

dont get how your posting would drag everyone down, nothing wrong with asking for a bit of support now and then when something in particular is playing on our mind, or as we did in the fibro thread, do here and initially did in the other thread.
if lurking is what you need to do for you then f/e. miss you though.

What she said ^^^

Jaz, glad it wasn't too bad, hope you get the decision you deserve.