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The (not so old) Crocks Cafe
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Hi Jazabelle. Good luck with the doc's visit on Tues. All I know is it helps to have a carer with you. . .One life.0
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Jaz, good luck with the dr's visit, definitely try and have someone with you, make sure everything in your house fits with what you put on the form... Read through it. Are you a member of benefits and work? They have a really useful list of 70 or so questions that you're likely to be asked in a medical, and I'm assuming this'll be similar... You might be able to find it elsewhere online, but the most common one is what do you do in a typical day.
Watch out for questions that are made to trip you up- things like can you make yourself a cup of tea? They assume that the kettle is full- 2 litres of water!- even if it's just one cup etc.
Make sure there's no room on your part for them to make assumptions, when you walk to your car do you have to sit and recover for 5 minutes from the walk? Tell them. Tell them the speed you walk, how you walk, the pain you have when you're walking, how long it-exacerbated pain, not just all the time pain- continues after you've stopped walking, how often are you able to do it? I
f he asks you to walk up the stairs, explain that you can only do it once a day to go to bed, tell him who fetches things from upstairs if you need it etc. Again, how long it takes you to recover etc. Really hope it goes well for you
Re: college, thanks Jaz, problem is, after college ends they'll be finishing off a levels, and getting ready to go off to uni, and then at uni, I just feel so lost and left behind. I don't understand the course anymore, I'm not able to do homework and the best I'll get is a C if I'm lucky with my coursework, which I screwed up last year, on the first time and the re-take because my brain misbehaves so much when I actually have to remember everything. I hate that it's all a memory test. My OT is worried that continuing to push myself is going to result in a bigger relapse than the blip I'm in now.
On a brighter note my parents changed my sheets today, I've been well enough to brush my teeth and wash my face and have a wet wipe bath, and I'm hoping that mum'll wash my hair later if I'm up to it0 -
Invasion, Glad you have felt a bit better today, hope it continues.
Hope everyone else is ok.
We had our house valued today, we have been thinking about moving back up north to be closer to family so want to see if it's doable (Is that a word:huh:) Hubby has asked for a tranfer at work and they are getting back to him next week. Pleased with the valuation so its a start.Sealed Pot Challenge Member NO. 853 :j0 -
Evening all
Hope everyone's ok.
We had a trip to Stratford today, which was nice, although it's taken a lot out of me. I have been having some terrible hip pain, along with back pain, and it has spread into my groin, so every single step I take, hurts
DDs got to meet up with their friends though, and I got to meet up with mine, so I'm glad we went. DDs cost me a fortune mind, as they hit the shops, and boy do they love shopping
Try not to worry about your appointment on Tuesday, Jazabelle. Just be honest with the Dr and answer their questions truthfully. You can't go far wrong with that, then
Hope you manage to relocate sandy, if that's what you want. It may help if you have more support, so could be just what you needThere is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter0 -
Try not to worry about your appointment on Tuesday, Jazabelle. Just be honest with the Dr and answer their questions truthfully. You can't go far wrong with that, then
Thank you! It's not what I say, it's what I forget to say!"There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden0 -
Jaz, good luck with the dr's visit, definitely try and have someone with you, make sure everything in your house fits with what you put on the form... Read through it. Are you a member of benefits and work? They have a really useful list of 70 or so questions that you're likely to be asked in a medical, and I'm assuming this'll be similar... You might be able to find it elsewhere online, but the most common one is what do you do in a typical day.
Watch out for questions that are made to trip you up- things like can you make yourself a cup of tea? They assume that the kettle is full- 2 litres of water!- even if it's just one cup etc.
Make sure there's no room on your part for them to make assumptions, when you walk to your car do you have to sit and recover for 5 minutes from the walk? Tell them. Tell them the speed you walk, how you walk, the pain you have when you're walking, how long it-exacerbated pain, not just all the time pain- continues after you've stopped walking, how often are you able to do it? I
f he asks you to walk up the stairs, explain that you can only do it once a day to go to bed, tell him who fetches things from upstairs if you need it etc. Again, how long it takes you to recover etc. Really hope it goes well for you
Re: college, thanks Jaz, problem is, after college ends they'll be finishing off a levels, and getting ready to go off to uni, and then at uni, I just feel so lost and left behind. I don't understand the course anymore, I'm not able to do homework and the best I'll get is a C if I'm lucky with my coursework, which I screwed up last year, on the first time and the re-take because my brain misbehaves so much when I actually have to remember everything. I hate that it's all a memory test. My OT is worried that continuing to push myself is going to result in a bigger relapse than the blip I'm in now.
On a brighter note my parents changed my sheets today, I've been well enough to brush my teeth and wash my face and have a wet wipe bath, and I'm hoping that mum'll wash my hair later if I'm up to it
Thanks very much, that's such helpful advice.
I do understand that very much. I did go to uni, but my friends went to different ones - and to be honest, I've only seen them a handful of times since. It was a group of us that went to primary, secondary and college together. Now I've come back and can't go out at night because I'm exhausted, they don't want to know. The invitations stopped coming quickly.
But a C is good under the kind of pressure you're under. I got Cs too, it's not the end of the world.
Obviously if it is really going to cost you your health, it's not worth it - but in the long run I'm rooting that you can do it!
Oh and completely understandn about the memory test sucking. I got all my marks through coursework, not exams. I wrote three names down, I sat chanting them all morning, I walked up to the exam room with the names, still chanting them in my head, put it down - got to my desk and the names were gone. It was pretty damn important to remember those names, but nope.I got extra time on my exams (dyslexia), but that's not going to help my friggen memory, is it?!
"There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden0 -
Thank you! It's not what I say, it's what I forget to say!
Try not to rush your answers, so that you can give the Dr a full picture of how things are difficult for you.
Think about what he asks - explain it takes a while for you to answer fully, as you have a poor memory but, as I said, answering truthfully how things are, will mean they can get a picture of your care / mobility restrictions and determine what level of DLA you will be on.
If you can make a cup of tea, don't say you can't, because you think it's a trick question. If you think the Dr will be trying to trick you, you will be on edge and that wont help your memory.There is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter0 -
Try not to rush your answers, so that you can give the Dr a full picture of how things are difficult for you.
Think about what he asks - explain it takes a while for you to answer fully, as you have a poor memory but, as I said, answering truthfully how things are, will mean they can get a picture of your care / mobility restrictions and determine what level of DLA you will be on.
If you can make a cup of tea, don't say you can't, because you think it's a trick question. If you think the Dr will be trying to trick you, you will be on edge and that wont help your memory.
I have loads of lists of treatment I've tried, medication I've been on, doctors I've seen and what they said. Am I allowed to use those? I even wrote a 'day in the life of me' that's very detailed, starting from the help needed to get out of bed, to care needs at night.
Can I explain I won't be able to remember a lot unless I use these notes? Or will that look strange?"There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." - Orison Swett Marden0 -
I have loads of lists of treatment I've tried, medication I've been on, doctors I've seen and what they said. Am I allowed to use those? I even wrote a 'day in the life of me' that's very detailed, starting from the help needed to get out of bed, to care needs at night.
Can I explain I won't be able to remember a lot unless I use these notes? Or will that look strange?
If a poor memory is one of your problems, it wouldn't look strange. My only worry would be if they thought you were trying to fit a particular pattern to gain an award of DLA, if you see what I mean. However, if you need to use notes then it's better that you do, so they can have an accurate picture.
Perhaps someone else who has used notes during the medical, may be able to help. I've made notes to take to the hospital, before now, and they were fine, so maybe you will be too.
I know it's easier said than done, but try not to panic over it. I do think the decision maker will compare what's on your form with what the Dr observes, so making your own notes will ensure they have all the information.
Let us know how you get on, or if you need support before then, but do try not to get stressed by it allThere is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter0
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