Bed blocking

lisyloo

Did you establish if the £1000 one has any fully funded LA residents? If they say "oh no, we do have some but they are all on a top up" then you can be fairly certainly youre not going to get it without topping up. Note that they will have state pension and AA so if say they have £400 top up but £300 per week income, then it's not a huge top up.

Is £1000 the private rate or the LA rate? and does it include the nursing care or is that fee for purely residential.

As an example my MIL's fee was

£825 - LA

£925 - private (without FNC)

MoneySeeker1

No - I didnt ask that. What I was told was "£x is the charge - of which they should be eligible for £y as the nursing element of this" and I rather took that at face value, ie as "That's what it will cost then and we'll expect the State to pay the £y and hope the State will cover rather more than that at least". This is all completely new territory to me, as we've all of us taken it rather as read that both sides of my family very rarely make it past middle age (as the vast majority of them don't). Errrm...yes....that does mean we've been taken rather by surprise all round I guess - unlike someone I can think of a while back that told me "I've come from a long-lived family and so I will be living well into my 90's" (and they did too).

elsien

In terms of medical treatment, if they have capacity they can make an advance decision to be put on the medical records declining further interventions.
They can also ask for a Respect form/DNACPR (do not resuscitate) to be put in place. 

lisyloo

elsien said:

In terms of medical treatment, if they have capacity they can make an advance decision to be put on the medical records declining further interventions.
They can also ask for a Respect form/DNACPR (do not resuscitate) to be put in place. 

That will work for the person in hospital I.e. there is a system.
i don’t think it will work for the person at home if they are unconscious.

lisyloo

My MIL was initially totally LA funded, then moved to a DPA (deferred payment agreement or loan on the property), then paying directly herself.
its worth noting that whilst the DPA was in place and the LA were paying the fees she got the cheaper LA rate which was £100 per week less.

in most cases there isn’t a choice, but it’s worth noting that you get a better rate if you fund from a property loan than you do if paying cash. This assumes there is a two tier system which I believe there usually is.
in practice unless selling a house there probably isn’t much choice about how to fund, but it could mean you don’t need to be in a rush sell (if that is ever the case) although a DPA means the property must be on the market.

MoneySeeker1

elsien said:

In terms of medical treatment, if they have capacity they can make an advance decision to be put on the medical records declining further interventions.
They can also ask for a Respect form/DNACPR (do not resuscitate) to be put in place. 

That is one thing I do know for sure, ie Hospital Parent told me some time back that they have DNR instructions set down.

Not sure about anyone else in the family and I guess I ought to formalise the fact that I have long been telling everyone I know that well that I am not to be resuscitated if I ever keel over with the family heart attack. Useful reminder that I must make sure that is all down in writing for myself. In the family I'm in you learn a LOT about illness as an observer of so much of it.

thepurplepixie

I have LPA for elderly relative, she has no children but several nieces and nephews.  I do discuss decisions about her health and the home I chose for her but ultimately it is my decision.  I certainly don't produce accounts for them.  It isn't any of their business.  To be blunt if she wanted them to have that involvement she could have chosen them or she could have named 2 or more of us.

When she was in hospital recently other relatives weren't involved in decision making, the hospital were given a copy of the LPA and contacted me about treatment unless I was visiting and then they would discuss it with me.  You have to look at it as she has appointment me as her representative so just like you wouldn't want them discussing your health matters with other people they won't discuss her health with anyone but me, the same goes for your parent.  I'm sorry but you can demand and threaten as much as you like, you don't have any rights here.

I assume from what you have said that you don't have a good relationship with your brother which must make things difficult, in my case the other nieces and nephews are happy with my decisions so it makes it easier.