Aspergers/ASD support thread

Flyboy152

Breast_Cancer_Survivor wrote: »

The school just said sorry we can't help, CAMHS said we can't help because he doesn't have a mental illness diagnosis, Social Services said to phone the police & my GP when he is violent & the GP said to buy him some drawing pencils & paper so he can draw to distract himself when he starts to feel angry.

Wow...all your problems are solved. :D:D:D:D:D:D:D:D

stefano

Luciferswench wrote: »

Help! My 12 year old Ds has just this very week finally been diagnosed with Aspergers. We've always known he was different but no one has ever believed so im currently in shock, but what happens next i just came away from the mental health unit with some reading materials a number of a support group and the mental health doctor is writing a letter to our gp ive also ask that it be forwarded to school. But what do i do next im lost completely..... Its a relief that hes no longer going to be labelled a naughty child but im just not sure how to proceed now im a single parent and extremely overwhelmed.

If your son is having difficulties at school, then seek a Statement of Special educational needs, which will enable him to be entitled to some support in class. My son is 12 too, and was diagnosed with Autism when he was 2.5yo. The statement, together with a very intensive "Lovas program", has enabled him to attend mainstream school from the offset. During primary he has always had one to one support. Now, in secondary school, support has been scaled back, but there is always some, and we have been fortunate to have found a very understanding and supportive school.

Breast_Cancer_Survivor

Flyboy152 wrote: »

Wow...all your problems are solved. :D:D:D:D:D:D:D:D

I know it's rediculous, shows how little experience of asd's that gp's have.

I honestly don't know what to do next as it seems that no one seems to be taking any notice & won't do until he seriously hurts someone.

Luckily he is at him grandma's this weekend as it's usually the weekends when his brother comes gome from residential school when he kicks off.

God knows what he will be like when Ryan leaves school in a few months & moves back home.

Flyboy152

Breast_Cancer_Survivor wrote: »

I know it's rediculous, shows how little experience of asd's that gp's have.

I honestly don't know what to do next as it seems that no one seems to be taking any notice & won't do until he seriously hurts someone.

Luckily he is at him grandma's this weekend as it's usually the weekends when his brother comes gome from residential school when he kicks off.

God knows what he will be like when Ryan leaves school in a few months & moves back home.

I was going to suggest that you look into residential schooling, but you seem to have experience with that. What are Ryan's issues? Do they conflict with Liam's? I can understand Liam's point of view, to some degree, when it comes to having the same as everyone else. When Flyboy11 sees everyone else getting treated differently to him, he gets very frustrated that he can't do the same things, he kind of understands why, but cannot reconcile the logic.

What are the chances of getting some respite care?

Breast_Cancer_Survivor

Flyboy152 wrote: »

I was going to suggest that you look into residential schooling, but you seem to have experience with that. What are Ryan's issues? Do they conflict with Liam's? I can understand Liam's point of view, to some degree, when it comes to having the same as everyone else. When Flyboy11 sees everyone else getting treated differently to him, he gets very frustrated that he can't do the same things, he kind of understands why, but cannot reconcile the logic.

What are the chances of getting some respite care?

Ryan has asperger's but is nowhere near as badly effected by the autism as Liam is & high functioning.

The only Reason Ryan got support was because he had behavial issues at school rather than at home.

It just doesn't seem fair as Ryan is now thriving at school & will be leaving in a few months ready to go to college to do his A levels.

Liam struggles with school & there is no way he would cope at college or be able to get a job if someone doesn't help him now.

I don't know about respite as no one has ever mentioned it tbh.

tessie_bear

hi...as a long time lurker on this thread i would like to ask about peoples experience of asd and dla mobility levels...has anyone been awaarded higher ?

thank u

julie03

i honestly dont know if this would help, but my son has aspergers but is only 8 and is similar to your son but in milder way, the asd co-ordinater at his school has suggested a points system to help with similar problems, the points get him time on his netbook as that is the main thing he likes

he lashes out when he thinks things are unfair and has been known to kick and throw things at my head, and i will admit my reaction was to send him upstairs but he would only get worse and it would only end up in these massive arguments and i would end up losing the plot.

he gets points for things like not tormenting his brother , getting ready for school without hassle, that kind of thing and if he is extra helpful he will gain points so gets him to think more about social skills
the other thing we do is if he is really getting argumentative we have to use our hands and give him two choices the right choice and the wrong one, and we have to make sure we show our hands for each choice so he sees it as a visual choice, its hard work and its like learning a whole new set of parenting rules but he has calmed down a little bit and is slightly more managable

sorry if i rambled
hope this could help you a little, i know its different for kids that are teenagers

Indie_Kid

Breast_Cancer_Survivor wrote: »

The school just said sorry we can't help, CAMHS said we can't help because he doesn't have a mental illness diagnosis, Social Services said to phone the police & my GP when he is violent & the GP said to buy him some drawing pencils & paper so he can draw to distract himself when he starts to feel angry.

You must keep on. And see a different GP.

Have you got in touch with NAS?

julie03

sh1305 wrote: »

You must keep on. And see a different GP.

Have you got in touch with NAS?

i must agree with this , they say those that shout loudest are heard.

i feel quite lucky with my borough and school, both have been excellent, with all my queries and getting seen

Breast_Cancer_Survivor

tessie_bear wrote: »

hi...as a long time lurker on this thread i would like to ask about peoples experience of asd and dla mobility levels...has anyone been awaarded higher ?

thank u

My 14 yr old son has asd & gets lrm/mrc, he was awarded this straight away with no appeals or anything.