Aspergers/ASD support thread

Strapped

Carrera74 wrote: »

My problem with school is they don't think there are any triggers - he just flips :rolleyes:

We had exactly the same problem with DS's school - they were supposed to be keeping an ABC log (what happened before, what happened during an incident and what the consequences were) but we, the Ed Psych, Behaviour Team, Autism Team all had to keep repeating ourselves 'till we were blue in the face to get them to do it!

3_cheeky_princesses

Hello all

I hope you do not mind me joining the thread.

I have a beautiful 6 yr old dd who has aspergers. Her main issues are def social ones and the need for familiarilty and routines.

I know this is going to sound silly but for the last year or so because we have adapted a lot in our home life and managed to get her settled as much as she can be in school we have just bopped along iykwim.

But the other day we realised that she will be going to junior school in September and feel compared to my ds and dd at that age she is quite immature in the way she behaves and her interests etc. She still likes things like Noddy, Postman Pat etc... Has anyone else found this with their Aspie child? I know some parents do "mumsie" and can keep their child young but we do not feel we have done this and we do have a 18 month old.

I am concerned she will be bullied for this. We already have had upset over her chose of packed lunch bag this year as she wouldnt have a new one and wanted her Noddy one which she has had for 2 years. We managed to get her to chose another new one but she would only have Power Rangers She then got taunted for having a boys ones by some children. She only has 1 friend really since she started in reception and when he has days off for ilness etc it affects her badly. Other children are always talking to her and saying hello but she quite often ignores them and wont talk to them (she hardly talks at school only if spoken to unless it is her friend then she will natter away to him).

shazrobo

hi 3 cheeky princess, i watched a documentary about autism on the tv few weeks ago, and there was a 15 year old lad who still watched thomas the tank engine at home, but had learned to keep quiet about it in front of friends. was interesting to watch as one of my 14 year old still likes noddy etc, but he also tries to watch some more grown up stuff to talk about at school, so he feels he fits in.
sorry cant be of more help

3_cheeky_princesses

shazrobo wrote: »

hi 3 cheeky princess, i watched a documentary about autism on the tv few weeks ago, and there was a 15 year old lad who still watched thomas the tank engine at home, but had learned to keep quiet about it in front of friends. was interesting to watch as one of my 14 year old still likes noddy etc, but he also tries to watch some more grown up stuff to talk about at school, so he feels he fits in.
sorry cant be of more help

Thank you. Maybe i should try to encourage her to watch other programmes and have other interests to go along side with Noddy, Postman Pat etc

angie_baby

sorry, wrong thread

Indie_Kid

3_cheeky_princesses wrote: »

We managed to get her to chose another new one but she would only have Power Rangers She then got taunted for having a boys ones by some children.

Many children probably won't care though.

A friend of mine and my brother are both autistic; but can talk. Howver, most of the time, talking to them is a bit difficult because they don't understand at all what I'm saying. How do I stop feeling as though I'm banging my head against a brick wall? To make it harder, I can never explain what it is I mean either.:o

seven-day-weekend

Hope this will make you all laugh.

My son was looking at my facebook page. He said 'Why have you listed Elizabeth Slater (not her real name) as your sister?' I said '....well because she is! It's Auntie Lizzie! What did you think her name was?'' His reply: 'Auntie Lizzie'.

He's nearly 30. I despair.

wornoutmumoftwo

Just wanted to drop by and say hello again, not posted for a while.

I spoke to my psychologist today about DS (7) not getting a diagnosis, and he was shocked. The mainstream school were shocked and the specialist ASD school were shocked (and of course me).

He's going to speak with the diagnosis team as he thinks DS just performed well on assessment day but he knows what he'd like in school (misbehaving).

Also, been summoned to the school next week for meeting with Psychologist, special and mainstream school - (It was meant to be a meeting about younger son but they changed to elder DS who is misbehaving instead).

I'm hoping they'll put him in the special school full time for a while, get him settled and then slowly reintergrate him. So fingers crossed.

mousytrap

Hi all,

I haven't been on this thread for a while but I'm pleased to say that, after a 16 month wait, my elder son's autism assessment has finally started. That's New Forest area and apparently it's got worse since we joined the queue. He's 7.

We had the parental interview last week and the cognitive testing today. Next week is speech/language, communication, behaviour. Then the week after we have the meeting to decide the diagnosis.

Am I to assume if they can't diagnose aspergers they'll say "on the spectrum but can't diagnose" or will they just say "not autism/aspergers" fullstop?

We were very worried when he started at junior school in September, but actually they are much stricter with him and he seems to be responding. As a consequence it is easier for us to follow suit and tighten up at home.

I think the infant school crowd were bending over backwards to help him and as a result providing almost no discipline and he was just laughing at them, metaphorically speaking (and hitting and kicking them left right and centre). They made the mistake of giving him a rookie teacher in his second year there, aged no more than about 22. For the last 6 months, he was attending there part time and part time at the behaviour centre and losing a great deal of schooling, but now he's gone back to full time. He also seems much happier.

I'm a bit worried that his younger brother (aged 4) will also find the infant school too lax. He has developmental problems and wouldn't rule out a HFA diagnosis for him at some stage. Paed is keeping his eye on him. He's just started at that school and has a good teacher for the moment (same one his brother had the first year). OH and I have both agreed that we are prepared to shift him to another school if we are not happy with the next teacher assigned and can't sort it internally.

Oh well, at least things are looking up. :j

mousy

angie_baby

Hi All,

Ive got a question kind of

Since the school know DS had ASD ive not recieved one phone call to go and collect him. I mean everyday before half term i had a call to collect him early, and now nothing Has anyone else had this?

Also, does anyone have any idea on DLA for ASD?

Thanks Guys

Angie