Aspergers/ASD support thread

looby-loo_2

shazrobo wrote: »

it helps in there education, they get a statement of special needs if they need extra help

Thank you for writing that. You are quite right to say they get a statement of special needs if they need extra help. Not all children wih a diagnosis need help in school with their education and these children will not need a Statement.

I often have parents who expect a Statement immediately after diagnosis which is not always necessary.

A bit of good news. Two of my students were issued with a Statement last week for ASD. I'm just waiting for the paperwork. I have put in TA (trained) support this year but now I can employ an extra TA for them as they enter KS4:j:j:j For the record, one took 32 months from start to finish, the other took 14 weeks.

seven-day-weekend

seven-day-weekend wrote: »

She has heard today -she has been awarded Lower Rate Mobility and Lower Rate Care backdated to February 14th!:T

Apparently she will also get a disability premium on her Jobseekers' Allowance . I've googled it and it says £27.50 a week but that seems too good to be true.......have to wait and see.

She has also passed a Maths exam today. Good day for her!

More good news for my son's girlfriend......she has got a job! 30 hours a week cleaning in an old peoples' home. Starts tomorrow.

I'm so pleased for her, it will give her loads of confidence and she won't have to meet lots of noisy people.

And of course she can keep her DLA too.

My son says as she's now the major wage earner (his hours at Matalan have been drastically reduced), he's going to begin to get used to being a kept man. :rotfl:

Mandles

seven-day-weekend wrote: »

More good news for my son's girlfriend......she has got a job! 30 hours a week cleaning in an old peoples' home. Starts tomorrow.

I'm so pleased for her, it will give her loads of confidence and she won't have to meet lots of noisy people.

And of course she can keep her DLA too.

My son says as she's now the major wage earner (his hours at Matalan have been drastically reduced), he's going to begin to get used to being a kept man. :rotfl:

im so pleased that things are working out well for them.:D

barshamhillbilly

rainbow81 wrote: »

Barshamhillbilly - I just wrote 2 long messages that got wiped! Fingers crossed for this one!

After diagnosis me, my son's dad and someone from his school got to go on the Earlybirds Plus course, run in part by the National Autistic Society. It was great but you DO need a diagnosis. It's free too. There's other organisations out there which run things especially for ASD kids, so it's given us a passport into them - can't say we've approached them yet but I'm sure we will when there's fewer appointments to go to!

Have you already applied for DLA then, cos you don't need to wait for diagnosis.

Good luck.

Thanks Rainbow81 - We will look into it. We have the DLA form, but keep putting off filling it in for some reason

Mandles

Hello everyone.Hope you are all doing well.
Holidays nearly over..hurrah!

I wanted to ask a question. Its about family credit as my child tax payment has just rocketed. I get carers allowance about £212 monthly and disablility allowance £281( i get high rate care ).
My child tax credit is now a whopping £758 a month. Is this right? I have rung them and they said yes it is right but i know other people that have queried stuff before and they say yes it is right and then later realise that it was wrong and want the money back.I'd rather know now before i spend it.

I know that it could be posted on another board but i thought others on here may know better as some may also get family credit and give a better answer.

cazscoob

hi all looking for some help, support and advice, i have never noticed this thread before and was over the moon when i discovered it!
i have a 19 month old little boy, he is one of 5 children and the second youngest. Since birth everyone commented on how wild he was and how his behaviour changes in an instant(there is a lot more just dont know where to start) he eats things and enjoys the taste such as poo/coal/mud/sponges basically if he can eat it he will!. we have been referred to the childrens mental health department and have a lot of support from our doctor and HV who all agree that there is something wrong and i cant believe the amount they have sorted for us in the past 4 weeks! i have bad PND at the moment and am finding him very hard to deal with, i have went to work and my OH has taken over the household to help me.
He is a great little boy who is very tall for his age and looks a lot older than he is, he has a very limited vocab and gets very frustrated. as he is so big and strong he attacks his brothers and sisters and has also hurt me at times. i hate him being labelled as the bad boy and we are always on edge taking him anywhere as everyone stares and the nasty comments all start.
does this sound like anything you are going through? i have no experience of aspergers/ASD so do not know what im looking for and am not up to scaring myself with google! you input would be very appriciated!

Mandles

cazscoob wrote: »

hi all looking for some help, support and advice, i have never noticed this thread before and was over the moon when i discovered it!
i have a 19 month old little boy, he is one of 5 children and the second youngest. Since birth everyone commented on how wild he was and how his behaviour changes in an instant(there is a lot more just dont know where to start) he eats things and enjoys the taste such as poo/coal/mud/sponges basically if he can eat it he will!. we have been referred to the childrens mental health department and have a lot of support from our doctor and HV who all agree that there is something wrong and i cant believe the amount they have sorted for us in the past 4 weeks! i have bad PND at the moment and am finding him very hard to deal with, i have went to work and my OH has taken over the household to help me.
He is a great little boy who is very tall for his age and looks a lot older than he is, he has a very limited vocab and gets very frustrated. as he is so big and strong he attacks his brothers and sisters and has also hurt me at times. i hate him being labelled as the bad boy and we are always on edge taking him anywhere as everyone stares and the nasty comments all start.
does this sound like anything you are going through? i have no experience of aspergers/ASD so do not know what im looking for and am not up to scaring myself with google! you input would be very appriciated!

My little one also enjoys eating cat poo! He has poor vocabulary, hits out at others and very violent(got loads better in the last year though...only hits his siblings), has to have certain cutlery, changes clothes and is obsessed by certain clothes..likes to spend most of the day in pyjamas that are too small and really worn out.He does not listen to adults and has no fear of danger. He has aspergers and life is getting easier as he gets older although he still has to be watched 24/7, at the moment he is always trying too tie things around his neck.
Sounds like yours has something and it is such a vast spectrum he needs checking to see what exactly. Prepare for lots of ups and downs but once it is all in place it does get better(just my opinion). I have been close to a nervous breakdown but with age life with him is definately getting better. This thread helped me so much and sure it will you too.;)

Around the age of yours my lad also climbed over stair gates, up to windows(had to have stair gates at windows). Fits were violent and used to smash his head on things repeatedly when angry.I also have never been able to take him in shops etc as he always tries to escape or go mad..Kids like him "don't do queues!". Also mine has now and always had poor eye contact and had echolia where he copies exactly what others say rather than comminicating.

Edit. Even if he does have something, don't get too down (dont read symtoms like i did as it will just depress you).Being different also gives you things that other "normal kids" do not have and these often give us a smile and make us love him even more. We all agree that although he was a surprise to us all he gives us so much joy every day and we laugh so much with the things he does and my lad often laughs along with us. He is wonderful as i'm sure yours is too.

blue_monkey_2

If you do not mind me asking, how much do you earn Mandles, this will make the difference as to how much you get as it 'tops up'. You have 2 kids don't you? Also try entitledto.co.uk and if there is a discrepacy put the additional money aside until you get confirmation next April that it was the right amount.

As an afterthought, that is not just for one month is it as they usually make the adjustment in one month then it falls back in line the mnth after. You di get an additonal amount if you have a child with a disability and get more than MR DLA.

blue_monkey_2

Mandles wrote: »

my little one also enjoys eating cat poo! he has poor vocabulary, hits out at other and very violent(got loads better in the last year though...only hits his siblings). has to have certain cutlery, changes clothes and is obsessed by certain clothes..likes to spend most of the day in pyjamas that are too small and really worn out.He does not listen to adults and has no fear of danger. He has aspergers and life is getting easier as he gets older although he still has to be watched 24/7.
Sounds like yours has something and it is such a vast spectrum he needs checking to see what exactly. Prepare for lots of ups and downs but once it is all in place it does get better(just my opinion). This thread helped me so much and sure it will you too.;)

Yep. Sounds just like mine!! And heaven help if the clothes wear out, we will hear about it for hours!!! Or is the plate is not the right colour. The fork is the wrong type. We let him wear what he wants to wear, it is not worth the headache otherwise. DS will eat anything and so we have to watch him too, he will try anything to see how it tastes - he licks everything too, if we are out I'll catch him licking posts and stuff.

You do get used to things, the frustration is not knowing something is wrong and not knowing how to deal with things, once you start getting that support and finding out what you can do to help it will get a little easier to deal with. You do end up thinking that he should be doing normal things, you watch other kids and hope that they might be doing some sort of normal things and get depressed when you see they are not, you also feel really happy when they find that one thing they excel at.

However, roll on Friday when they go back to school. My son is currently attacking his sister over a giant inflatable banana he wants. *Sigh*

blue_monkey_2

Also, it might not help everyone but I've started my son on EyeQ Capsules, I thought I would try this rather than Ritalin that the clinic wanted to give him and he can now sit and watch TV for certain periods which he could never do before, he has been doing the odd bit of colouring too which he never did before. I am hoping that it might help with school.

They say they wanted to give him Ritalin but that does not help with the violent outbursts (so please remember this if considering it) and so I decided that, for now, it was not for us. I would be giving him it to make my life easier and for that reason I did not think it fair on him. My friends boy had it and he stopped growing for 18 months, once off it he grew 4 inches in a month. I guess I know more bad than good about these drugs BUT I guess if he gets too bad then I'll do what I have to do for him.