Aspergers/ASD support thread

samf1971

Thank you for your words of encouragement, I'll certainly keep them in mind.

I did try him in washables and after about 2 days just gave it up as a bad job, he hates being changed as it is and he's petrified of public loos/babychanges, was perhaps thinking about pull ups but don't think they are as absorbent as the regular huggies

Sarahsaver

AFAIK the pull up type nappies from Lidl or Aldi are quite good.

fallen_angel_69

i sometimes think that knowing what you are dealing with is the helpful part at least you know what you are dealing with and hopefully are able to find solutions to problems on here it's helpful knowing people are going or have been through same problems as you and they can stear you in the right direction to get practicall help
i find people labelling all children as naughty and your only saying they have these problems is the most unhelpfull and annoying thing possible sometimes you want to say you think she is naughty spoiled undisciplined child or whatever else you want to say you have her for 48 hours and then see if you can cope i know most parents dont want to put there child on tablets like the melatonin i have for dd2 but sometimes you have to do what you think is best for your kids in the long run i did think for months what to do about the melatonin but in the end i think i made the right decision
i hope that makes sense sometimes it's difficult to write down and get across what you are trying to say without it sounding strange

Carrera74

I’ve just come across this on our local parent partnership leafet –

Signpost is a new web resource from the National Autistic Society that has been designed to give parents, carer’s and people with Autistic Spectrum Disorder personalised information relevant to the situation.

http://signpost.autism.org.uk/Welcome.aspx

I filled it in and it gave me alsorts of information including local schools etc. Well worth a look J

Savvy_Sue

samf, I would talk to your HV about larger nappies / pull ups etc, I am sure these things ARE available, and your HV should know who to ask. Possibly not at 2.5, but if the child still needs them when most children wouldn't, I have a feeling that they are prescribable, although I believe a friend found that what was available on prescription was not as good as what could be bought direct.

Might need advice from a continence clinic? But start with the HV.

Danni

My daughter had those nappies in foster care (she's now living with her grandparents and almost toilet-trained, most if it her own doing) as she's 4 and had grown out of the biggest nappies, and they were horrible, really uncomfortable and they rubbed worse than the nappies (they were also far too big for her). As far as I know they were the prescibed ones. (My daughter isn't autistic, but has a speech delay and had only just been toilet trained when she went into foster care, lost it while there and wouldn't be again the year she was there).

Pullups tend to be bigger, and appear to be just as absorbant, just a little more awkward to change as you have to take any trousers off to put a new one on. You can get pullups to buy (Huggies do them) up to age 15, as they're nighttime ones.

samf1971

Thanks for the advice. The specialist HV is coming to see us next week along with the child psych so I might just mention it. Think I'll give the larger pull ups a try and have a look for the night time ones, are they as absorbent as the "normal" ones or are they just for little mistakes when the little one has forgot to go, I guess it doesn't hurt to give them a try

tinkerbelle

I wondered if anybody could help my auntie. I have just had her on the phone crying. My cousin who is 10 has just been diagnosed with aspergers. They also have 3 other children and they think that my 5 year old cousin also has aspergers.

My 10 year old cousin got run over last week by a car as he just ran out in the middle of the road to see his friends. My auntie is at the end of her tether between him and my younger cousin. She is afraid to go anywhere in case the school phone as they both have behavioural issues. She would like her husband to give up work, he is only on a minimum wage but she is not sure if they would be entitled to anything. My auntie never goes out and never has any time to herself. Does anyone know of a way in which i could help her. Any advice is greatly appreciated.

Sarahsaver

I know it will take ages but get her to read this thread if she can.
and she really MUST get out and about, the more you shut yourself away the more of a problem things will become.
I am getting DLA for my son, and help from the Red Cross, Family welfare Association and Parent Partnerships.
How does she never have any time to herself as the 10 yo and the 5yo are of school age?
As hard as it may seem sometimes she needs to see t he positive in the children and encourage the positive aspects. For example its common to have obsessions but some of them may lead to a lifelong hobby or career.
My DS has no fear so i take him places where he can climb safely.
it sounds like she may need some counselling, I got some free counselling i think I was referred through Young Minds.
hope to help, wishing her all the best;)

Snaggles

Tinkerbell, the thing that has helped us over and above EVERYTHING else is knowing as much as we possibly can about Aspergers. Forewarned is forearmed, so to speak. So do everything you can to encourage her to look into courses (we went on a fantastic one in Leeds that Camhs referred us to), to read books about the subject, and to look for a support group - I don't mean for airy-fairy sitting around drinking tea and talking about how difficult life is (although that's important too), I mean for the nitty gritty of having someone on hand to answer her questions, give advice, help her through things like applying for statements (if needed), etc.

Are you in a position to step in for a bit of babysitting? Because parents of Aspergers children often don't get a break, ever! But in fact, if you know what interests a child with Aspergers, they are pretty easy to entertain for a couple of hours, giving her a much needed break to go and get her hair done, have a walk round the shops etc.